Hello everyone, my name is Yu Jing, and I am the mother of Little Yuzu. Invited by Wang Yichao, director of the Department of Pediatric Genetics and Metabolism of Hunan Provincial Maternal and Child Health Hospital, I came to share the growth experience of our little grapefruit from zero to six years old. When Director Wang told me about this, I gladly agreed, but when I really sat at my desk, picked up a pen and paper, and quietly reviewed the growth process of these six years of children, I suddenly felt full of tears, tears wet clothes!
Time flies, the child is almost six years old, these six years of bittersweet, let me feel as if I have lived again, when I recall the past difficulties again, really like a knife cut, I picked up and put down the pen in my hand several times, but think carefully and calmly, Director Wang's proposal is particularly good, if each of us can bravely face their own real experience and ideas, the difficulties encountered in the child's growth process, twists and turns, Then it will be of great help to the child or other children, which is a very significant thing.
I think I can talk about the growth of our children in two parts.
The first part is before the age of three. Because our little grapefruit was born in New Zealand, after birth, we found that he had a little difficulty in sucking milk, and now it seems to be a very obvious indicator, representing that the child may have problems and need to be checked in time, but at that time, our understanding, at best, is that the laryngeal cartilage is underdeveloped, which should not be a particularly big problem, and in the face of this newborn little angel, our sensibility is greater than rational, and we are only willing to believe that this is a small problem, and our baby is absolutely healthy, so we did not pay attention to it. At that time, the hospital in New Zealand felt that this laryngeal cartilage was still a more serious problem, so they did not let us be discharged, but their screening methods were very conservative, and finally under my insistence on discharge, I gave him a laryngeal cartilage surgery, only to agree to our discharge, after being discharged from New Zealand, I directly brought The grapefruit back to China, when in China, he has been almost 3 months, but there is a particularly large indicator, that is, its head can not stand up, We still insist that because he spent more than a month in a hospital in New Zealand, so that he delayed his development and growth, so that we missed the second golden indicator in life, that is, the indicator of the three-month vertical head. And then later... I took him back to Xiangtan, Hunan, in Xiangtan Women's and Children's Hospital, where he went to check every month and consulted a doctor, who said to observe first. In this way, we miss the assessment indicators of each stage of the child's development. When the child was nine months old, I took her to New Zealand, including chromosome examinations, etc., after arriving in New Zealand, the family doctor regularly gave us a check-up, in fact, I also discussed with them at that time, saying that our child's developmental delay, gradually some of his problems have been presented, such as his sense of touch is very sensitive, eczema, dry stool, like to rotate things, and then eleven months of independent standing is still a little difficult, but he has been developing towards the indicators of a healthy child. So the advice given to me by doctors in New Zealand at that time was that as long as it was developing, I could continue to observe.
Time passed so slowly, wait until the Spring Festival in 2017, we returned to China, this time the little grapefruit has been more than one year old, we found that his standing posture was not very good in the process of doing a physical examination for him as required, and then walking was still very unstable, a little out of eight, the foot shape was not very good, at this time we went to the Provincial Children's Hospital to check, and the doctor diagnosed him with vertical talosis. When I received this diagnosis, I couldn't sleep all night, it was difficult to accept, but I knew that I had to be strong, the vertical talus treatment process was very difficult, the plaster cast, which limited the child's movement and rehabilitation, and then went through five surgeries, large and small, the span and cycle of treatment were relatively long, from the first plaster cast, to the final ability to remove the stitches, to be able to wear normal shoes, after more than two years, to be honest. That process was a dark moment that I didn't want to look back on in my life, of course, everything has two sides, and through the two years of treatment in the orthopedic department of children's hospital, I became a lot more rational. I began to gradually accept the fact that the grapefruit was born with problems with development. Therefore, I began to look for various rehabilitation institutions, and then to understand the various behavioral abnormalities manifested by the general children of this developmental delay autism, how the child should do rehabilitation, and began to actively intervene in rehabilitation treatment. On the one hand, I looked for various rehabilitation institutions for him, and on the other hand, I also checked a lot of books and materials myself, looking for treatments for children with this kind of developmental delay, and the child's congenital gene may have a mutation problem.
The second part is when the little grapefruit is more than three years old, friends introduced me to the director of the Department of Pediatric Genetics and Metabolism of the Provincial Maternal and Child Health Hospital, after seeing the director I learned about the treatment method from him, he said that by eating vitamin drugs, you can treat the child, considering that our little grapeman has so many surgeries, so many injections, and also took so many medicines, I really didn't want to give him a lot of medication at that time, when people become rational, they will become more cautious, and they are not willing to choose treatment methods too blindly. So I chose to wait and see. But I have not given up, because I have found so many hospitals, asked so many doctors, Director Wang is the only one who is willing to express: such a child can be treated by drugs, the director told me that they need to let their brains absorb nutrients, otherwise the child's brain has no way to develop normally, which I actually recognize. On the one hand, I am watching, on the other hand, I am also following, all the children who have this kind of medicine I will understand, when more and more children around me begin to take medicine, and I can see some of their changes, I think I should choose to believe, give myself, but also give the child a chance. In this way, in August 2021, when Yuzu was a little more than five years old, I chose rehabilitation plus drug therapy, which is Director Wang's biological therapy combination treatment plan. To tell the truth, if you really make up your mind, you will know this road, in fact, it is also very difficult, it is not easy. Whether it was the first large number of examinations that Director Wang had prescribed, or the process of sterilization and prescription medication, I fainted at home for at least three days before I began to straighten it out. I don't know if you have ever felt that way, that is, when you encounter a completely strange and complicated difficulty, you really need to calm down, sit down and let yourself calm down, and then take a deep breath and say to yourself, don't be afraid, don't be afraid of difficulties, just like that when I have been in the blood draw, test, check, take medicine, check allergic reactions, adjust the drug for more than half a year, the child's progress is more and more obvious, and our whole family sees hope.
An educator once said: If you love your child, you accept the child's lower limit, and then help the child live out the infinite upper limit. If before the age of three, our lower limit for little grapefruit is to help him live and take care of himself when he grows up, then the lower limit of our current small grapefruit is to be able to go to ordinary primary schools with normal children, the road ahead is still very long, and the child's rehabilitation process also requires us to accompany the child to persist in working hard. But in the past 6 years, I am sincerely grateful to everyone who has helped my children full of love and responsibility, and I am even more grateful to many good doctors like Director Wang Yichao who have great love and are willing to help children become roses!
(Family members of autistic patients Yu Jing)