Elephant News, Chief Reporter of Oriental Today, Zhao Dan/Wentu
Because she helped daigou collect packages containing clopazan drugs, in 2021, Li Fang, the mother of a one-year-old child, was involved in a "drug-related" case.
Li Fang's son has a rare epilepsy, intelligence is different from ordinary people, so far can not speak and can not communicate with people, clopazhan is one of the treatment drugs. What she did not know, however, was that clobazan was a controlled drug. After the disclosure of her case, the purchasing channels were very popular, and countless children faced a shortage of drugs.
In late December, Li Fang revealed to Elephant News that with the joint efforts of the parents of the children, such as "Songsong Daddy", the relevant departments began to count the information of children with medication needs - this is the best news she heard at the end of the year.
After the storm, continue to take the child to seek medical treatment
At the entrance of a top three hospital in Zhengzhou, Henan Province, a ride-hailing car stopped, and the driver hurriedly got out of the driver's seat and went around to the trunk to take out the stroller, waiting for Li Fang to hold his sleeping son down with some difficulty.
"I'm sorry." Li Fang greeted the reporter who had agreed to be there, and placed her son in the stroller. On this day, Li Fang took her son to the procuratorate early in the morning to submit the appeal materials, and rushed to the hospital after the end.
She is in her 30s, and under the mask is a pair of large, rather gaunt eyes, and her hair is messy draped over a black down jacket. Her son is one year and 9 months old, weighs 41 pounds, and it can be very tiring to carry alone. However, in the past few thousand days and nights of getting along, Li Fang has trained a full strength, can hold her 41-pound son, carry a large backpack containing bottles, milk powder, thick medical records, wet wipes, water cups, diapers and other items, and run east and west alone.
This time back to the hospital, Li Fang's purpose is to find a doctor to check the results of her son's recent examination.
She entered the doctor's consultation room, the reporter helped her hold the child in the waiting area, and after a while of kung fu, she felt that her arms were painful, and she felt that Li Fang was hard to take care of the child alone. Possibly sensing the stranger's smell, he gradually became irritable, but fortunately Li Fang returned in time.
"The doctor told me not to toss last time, and this time he said that I had done my best to treat my children." Too late to sit down, Li Fang looked disappointed and relayed the kind admonition of the familiar doctor to herself - which indirectly showed that the child's examination results were not very satisfactory.
She asked in frustration why most of the children with the same disease look better and better, while their own children do not get better, but the brain atrophy is getting worse and worse.
While Li Fang told her inner worries, she made milk powder for the child. The moment the nipple was stuffed into her mouth, the little boy swallowed it in a big mouth and quickly choked. Li Fang patted her on the back and said that she was relieved that the child would drink milk powder, because many children could not even swallow on their own.
Because of the illness, Li Fang's children currently mainly drink milk powder, which is fed every three hours, and the added complementary foods must also be beaten into a thin paste.
Since the child's diagnosis, she quit her job and circled the child 24 hours a day, taking care of her daily life, seeking medical treatment everywhere, taking her out to climb mountains, go to the playground, tell stories, do rehabilitation, and so on. She set the time for multiple children to take medicine on the alarm clock of her mobile phone, and what medicine to take at what time of day, all of which were clearly marked.
This consultation, the doctor's words did not let Li Fang give up, she still took the child around to seek medical treatment, and the child is currently hospitalized.
In the hospital, Li Fang saw a mother who was also worried about her child's condition, and was touched to send such a circle of friends: "During the baby, I saw such a mother. My tears also suddenly surged out. I deeply understand that if you can exchange your life for the health of your child, the roof of the hospital must be full of parents, grandparents, and maternal grandparents. My children, and all your children, you must be well..."
The use of clobats for the treatment of young children
Li Fang still clearly remembers that her son had an abnormality on the 9th day of birth.
At that time, just a few days after her cesarean section, she found that the child's jaundice was somewhat high. This is a situation that almost always happens to newborns, so she didn't feel worried at the time. In the community hospital, the child was carried into the room inside by the doctor for examination, and Li Fang and her family were waiting outside for the doctor to sign. Suddenly, a paramedic ran out and shouted, "Something is wrong with the child!" ”
At that time, Li Fang "giggled" in her heart, because only her own children were carried in for examination. When she ran over, she saw that the child's whole body was convulsing and was rushed to the hospital. Later, there was a problem with the EEG examination - normal people's brain waves are rhythmic, while Li Fang's child's EEG showed that the waves were undulating and messy, and the brain was discharging abnormally.
"The doctor said that the child's intelligence would be damaged, and I thought about the damage and was damaged, and I was not so desperate." Li Fang recalled that what she did not expect afterwards was that the child began to have frequent seizures, each time the symptoms were different, blinking eyes, stunned, convulsions, physical rigidity, spasms... The hospital diagnosed a rare form of epilepsy: infantile epilepsy accompanied by wandering focal seizures.
That was the first time Li Fang heard the name of the disease. Since then, she has been accompanying her child to frequent hospitalizations, doing various examinations, and using various drugs.
Li Fang said that in the process of taking her child to seek medical treatment, many doctors introduced her to the over-the-counter drug "Clopazan". She found this medicine through purchasing, and after the child took it, it really brought great relief to the disease. But what she didn't know was that the drug was a state-controlled second-class psychotropic substance.
In November this year, Li Fang helped a purchaser to collect packages, so she was involved in suspected drug transportation and then released on bail pending trial. She provided the police with the relevant medical records of her son, made a record at the Public Security Bureau, and the clobats in the home were not confiscated by the police. Subsequently, the purchasers and the families of several patients who helped him collect the package were transferred to the procuratorate for review and prosecution, and their suspected crimes were "smuggling, transporting and selling drugs".
Li Fang did not understand how the medicine she gave her child to treat was a drug. She could not accept that she had become a "drug trafficker" because she had treated her child and purchased the drugs recommended by the doctor.
"In this process, my most painful thing is that I feel that everyone is a good person." Li Fang said that since she was involved in this matter, whether it is a drug purchasing agent or a case-handling personnel, she has felt goodwill, especially the drug purchasing agent is also for the parents of the children. Confused, she appealed to the prosecution.
Li Fang said that in the past, many purchasers did not dare to do purchasing, which made many children with refractory epilepsy fall into the dilemma of no medicine available.
At the end of November, an email titled "How to Keep Our Children Alive?" The joint letter circulated on the Internet, and the 1,042 signatures on the letter came from 1,042 parents of children with refractory epilepsy across the country. Everyone has only one purpose: the child is about to run out of medicine, and he is anxious to ask for chlorinated. Among them was Li Fang, who signed it.
"You probably don't know about me because I used to be anonymous when I was reported." Li Fang said that she joined a number of patient groups, and learned that the enthusiastic group owner investigated the parents of children who were taking and urgently needed chlorpachan, and also wanted to sign a sign to contribute. In the end, a total of 1,042 group friends, including her, came forward to respond, but she felt that there were still many children who had not been seen.
A mother's wishes and hopes
Entering the end of December, 2021 is about to pass, Li Fang still continues to run on the road to see her son. She saw hope, and with the joint efforts of the parents of the children, the relevant departments began to count the information of the children with medication needs.
In an interview with Elephant News, Li Fang always recounted the experience of the past two years in a calm tone, saying that she had long accepted the fact that her son was ill, and everything she did for her children was out of the mother's instincts, "Most of the time there is no time to collapse." ”
She lost control only once.
In November this year, after being involved in the daigou case, Li Fang felt panic and anxiety, and then thought about her child's condition that had never improved, and other things that had happened, and the whole person's mentality collapsed. "At that time, I felt that only I was gone, and everything was solved." Li Fang recalled that on that day, she placed the child, left a letter for her husband, and chose to run away from home. On the way she received a call from her husband. "He said he was driving and if he didn't want something to happen to him, he would hurry home."
After this incident, Li Fang once again recovered her positive attitude and bravely faced all difficult problems. She was interviewed by the media to face the public, "In fact, the biggest purpose of standing up is not to complain, attack or unfair, but to hope that everyone will pay attention to this group." Because there is one such child in the family, it can be said that several families have been dragged, and the impact on the family is very large. ”
When not busy with children, Li Fang will pay attention to the dynamics in the patient group and feel empathy when she sees the information of seeking medicines one by one, because her own drug inventory is also insufficient. Public information shows that at present, Chlobarzhan has been listed in the United Kingdom, France, Germany, Italy, Argentina, India and other countries. However, according to China's Catalogue of Psychotropic Substances (2013 Edition), chlorinated drugs belong to the second class of psychotropic drugs and may not be marketed for sale, and any unit or individual who produces, operates, transports or uses such drugs may be suspected of violating the law and committing crimes.
How to solve this problem?
"There is no substitute for this drug, and I hope that this drug can be legalized as soon as possible, and there is a legal way for children to take medicine." Li Fang said that after the signing of the parents of 1,042 children attracted widespread attention, the relevant departments began to pay attention, which made everyone see hope.
The hope of medication has been there, and Li Fang also said the New Year's wish in her heart - to find the cause of her child's illness as soon as possible, symptomatic treatment, and her health can be better.
When alone with the child, she will talk to the child: "Say you, give your mother a kiss, do you kiss it?" Don't want to kiss it? However, the child cannot make a single response, and his eyes are always squinting upwards, immersed in his own world.
"In this life, I don't ask my children to call out to their mothers, they can just look at me." Li Fang whispered.
(At the request of the interviewee, Li Fang is a pseudonym in the article.) ）