A gifted child, born "lonely"?

Apple house, strawberry house, grape house...

In every classroom with fruit logos in Xi'an Traditional Chinese Medicine Encephalopathy Hospital, special children come to receive rehabilitation training every day.

Outside the classroom, there are waiting parents, who are either sitting quietly in chairs, standing against the wall, or looking into the classroom.

"I hope my child will get better soon." Some parents said.

Looking forward to the eyes of the outside world to understand and accept, and looking forward to children's self-reliance one day, is their greatest wish.

And this wish also belongs to every family of autistic children here.

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It turned out to be autism

One word, two words to "jump" out, can not say it can not be said anxiously to make a "hum" sound. Unlike most children, Xiao Qi (pseudonym) is more than 4 years old before she speaks, but it is often an incomplete expression.

"Maybe this doll in my family is talking late." For Xiao Qi's performance, at the beginning, Liu Qin (pseudonym) and her husband did not care.

Living in rural Yulin and dealing with farmland for nearly half a lifetime, they never knew what autism was, let alone thought that their children would suffer from this disease.

But gradually, Liu Qin found that Xiao Qi always liked to walk around alone, and often talked to himself.

Until the age of 6, after entering the kindergarten, the teacher reflected to Liu Qin that Xiaoqi often stayed alone and encountered children who took the initiative to play with him, he often reacted fiercely, and "drove them away" in an unfriendly way, which was very unsociable.

"As we get older, similar manifestations become more and more obvious, and it wasn't until he was 8 years old that we realized that the child might have a problem and should take him to check it out." Liu Qin said.

△ Xiao Qi's father's mobile phone keeps Xiao Qi's back when he was discharged from the hospital

Also aware of the child's problem is Zeng Mei (pseudonym) of Shangluo Shanyang.

In her eyes, her child Xinbao (pseudonym) is too attached to many things, too "rules", and a slight change will cause a big emotional explosion.

"Xinbao must go out at 6:30 p.m. every day, and must come back at 8:30 p.m., which road to take when he goes, which road to take when he returns, are fixed, and once he changes his route, he will cry and make trouble in the street." Zeng Mei said.

In fact, such "stubborn" behavior appeared when Xinbao was a child.

According to Zeng Mei's recollection, in the beginning, Xinbao did not like to eat, and in the face of hunger, he would only do two things, run into the supermarket to buy snacks to eat, or eat a lot of fruits.

When he grew up, although Xinbao began to accept eating staple foods, he always looked for the same food, a bowl of dragon's whisker noodles every day, ate for two or three years, and later only ate dumplings.

△ When I was a child, Xinbao and my mother visited Xi'an

"The same environment, the same procedures, the same movements seem to bring him a sense of security." Zeng Mei said: "I used to think of his stereotypical repetitive behavior as naughty, until after the hospital examination was diagnosed, I did not know that it was autism. ”

For xiaoqi's family, after walking through many hospitals in Beijing and Xi'an, they understood that Xiaoqi's language and unsociable problems are actually language communication disorders and social communication disorders, which are the main manifestations of autism.

"Xinbao came to Xi'an Traditional Chinese Medicine Encephalopathy Hospital at the age of 12 and began to receive medical intervention, and the doctor told us that it would be better if we were earlier, but often encouraged us not to give up."

Zeng Mei said: "Now I have learned to understand every 'strange' behavior of Xinbao, but sometimes when I take him out, I find that others still don't understand." ”

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They can also be "genius" kids

"Social interaction, language communication disorders, narrow interests, and repetitive stereotypes are the two core manifestations of autistic children. However, in the clinic, it was found that many children may not have obvious defects in both aspects, and it is difficult to name them with a specific 'label', so the concept of 'autism spectrum disorder' has been introduced in the medical community, and the related behavioral manifestations of autism are regarded as a spectrum, the degree is from low to high, and the serious one is 'typical autism', and some mild disorders are expected to gradually approach the general population. Zhao Ningxia, director of the Autism Department of Xi'an Traditional Chinese Medicine Encephalopathy Hospital, said.

Zhao Ningxia said that among children with autism, there are a very small number of children who have shown abilities beyond the level of normal children in memory, numbers, paintings, music and other aspects, and some can be diagnosed as "Asperger's syndrome" in medicine, which is popularly said to be the "genius" child in autism.

△ Write carefully

Xiao Qi and Xinbao are such children.

As long as you say a date of "a few years, months and days", Xiao Qi can quickly say what day of the week it is, and even say the weather of the day. During the hospital intervention treatment, doctors and rehabilitation therapists discovered Xiao Qi's superiority.

"Xiao qi is in the hospital, he will stare at the calendar as soon as he sees it, and he seems to be really sensitive to dates." Feng Ni, the head of the rehabilitation therapy division of the 3rd department of rehabilitation treatment in our hospital, said: "Sometimes when talking about what happened a year or two ago, such as which year, the number of months and days of vacation, the number of months to go home, the number of months to do the treatment and discharge, he can remember, more accurately than adults." ”

△ Shinpo who entered school when he grew up

And Xinbao's talent in numbers is evident in kindergartens.

Learning "hand-brain arithmetic" with other children, Xinbao always learns the fastest and most accurately, so he has also become a "little genius" in the mouth of the kindergarten director.

"Usually I will buy him some cards and number drawings, teach him, he will learn, two or three years old can recognize two or three hundred words, from one to a hundred, along the back, backwards are very fluent." 」 Zeng Mei said.

In the Autism Department of Xi'an Traditional Chinese Medicine Encephalopathy Hospital, there is a consensus among medical staff - the "children of the stars" in the world's population can not only be synonymous with loneliness and closure, they are also "children who can shine".

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The whole society is working hard to let them live a normal life

In order to let more autistic children like Xiaoqi and Xinbao get the understanding, acceptance and attention of the whole society, our hospital organized nearly 100 special children in the province to set up the "Xingbao Angel Children's Art Troupe" during the "World Autism Day" in 2019, and the famous cross-talk actor Miao Fu served as the general consultant of the art troupe free of charge.

In the past three years, the art troupe has organized and participated in various forms of performances, so that children with autism and Down syndrome can stand on the stage and shine, promote integration, and let special children and their families have more happiness, sense of gain and security.

△ On March 31, 2019, the young performers of the "Star Treasure Angel Children's Art Troupe" performed in Xi'an Qingqu Society

"This is a way for us to continuously develop integrated education and promote the integration of medical education." Zhuo Kunli, the organizer of the art troupe and vice president of our hospital, introduced: "In recent years, our institute and the Xi'an Disabled Persons' Federation have continued to carry out the 'Love Is Not Lonely' Autism Day public welfare activities for the disabled, building a platform for special children to show themselves. ”

In addition, in the process of rehabilitation treatment between Xiaoqi and Xinbao, the Rehabilitation and Assistance Project for Disabled Children of the Xi'an Disabled Persons' Federation has also brought support to the two families.

It is reported that in recent years, the Xi'an Municipal Government has established a rehabilitation and assistance system for disabled children, among which the Municipal Disabled Persons' Federation has taken the lead in formulating the implementation plan for the rehabilitation assistance of disabled children and adolescents, determining the designated rehabilitation institutions, and through the implementation of a number of rehabilitation assistance projects, to achieve "finding a case, assisting a case, and guaranteeing a case", reducing the burden for many special children's families and bringing more hope to the growth and future of special children.

△ On April 2, 2021, the public welfare activity site of "Love Is Not Lonely" Autism Day

"Xinbao now receives regular rehabilitation treatment in the hospital while receiving more comprehensive and systematic knowledge learning in school. I myself will buy some books on autism and guide him at home. ”

Zeng Mei said: "Hospitals, society, etc. have given my children a lot of help, as parents, we should know how to accept their children, they are born special, they will have a special life trajectory." For so many years, the whole society is working hard, as a mother must not be discouraged and can not give up, my biggest wish is that one day in the future, the child can finally truly integrate into society and live a normal life. ”