Cover news reporter Shi Wei
"We never thought there would be a miracle, from the time she was born to now she was numb, thinking that she could cure one day is one day." Others say that her eyes are beautiful, and we want to keep her eyes to continue to see the world, and donate her body to help develop medical technology, maybe save other children. On February 9, Zeng Meijuan of Zhuzhou, Hunan Province, looked at the empty bed next to her, and she had not yet adapted to the death of her daughter.
For 16 years, her daughter Xinyi has been sleeping next to her from birth to death. Because of the brain damage caused by the lack of oxygen at birth, Xinyi was diagnosed with cerebral palsy after birth, and could not be cared for for 24 hours.
Photo of Xinyi before her death
On the morning of February 6 (the sixth day of the first lunar month), she got up as usual to change her daughter's diaper and found that she had lost her breath. 120 ambulance personnel rushed to check and told her that there was no need for rescue. She and her husband decided to donate the child's cornea to other patients and the body to a medical institution for anatomical research.
The couple has been caring for their cerebral palsy daughter for 16 years: every day they worry about the accident
In 2005, Zeng Meijuan and her husband welcomed their first child, and the joy was followed by bad news: because of the lack of oxygen in the brain at birth, the child was diagnosed with severe cerebral palsy shortly after birth, and there was little hope of a cure.
Zeng Meijuan accompanied her child to the hospital, went home for a period of treatment, and then returned to the hospital for treatment, while her husband went out to work to earn medical expenses, and this life lasted for 6 years.
"The hospitals in the province are all over the place, and in the early years, in order to save money, I lived in the countryside with my children, and my husband worked in the city. The child often fell ill in the middle of the night, had a fever and convulsions, and her father rode a motorcycle back overnight to take us to the hospital, and almost had an accident. Later, in order to facilitate rehabilitation in the city, the whole family rented a house together. Zeng Meijuan said that she could not calculate how much money had been spent, and some people advised her to lose the child, she said that she had never touched this idea, the child was born by herself, and it was difficult to stick to it. Even if she and her husband know in their hearts that there will be no miracles, they may not hear their children call mom and dad in this life, they still continue to earn money to be hospitalized, discharged and hospitalized.
"The child's life is completely unable to take care of himself, and he can only lie down every day and do not sleep at night. I stayed by her side all night, and her father took over the care whenever he didn't go home from work, scrubbing her, feeding her, cutting her nails, and I watched the first half of the night and he watched the second half of the night. Her father and I were the only ones in the family who could feed her. Zeng Meijuan said that children can hardly chew, can only soak the rice little by little to send to the mouth, often feeding a spoonful of spit half a spoon, and then continue to feed. In order to make it easier for the child to swallow, she and her husband mashed the rice for a period of time and fed it, and it took at least half an hour to feed it at a time.
"When I was 6 years old, the doctor said that the treatment effect was not obvious and there was no need for a long-term hospitalization. At that time, I was pregnant with the second treasure and often cried at home. Later, I became numb, and felt that God had given you a tribulation and you had to accept it. Later, after Erbao was born, she grew up slowly, and when she saw her sister not sleeping and shouting in the middle of the night, she would also gently pat her to comfort her, shouting 'Sister is not afraid, sister sleeps', making people feel that they must take care of her more. Zeng Meijuan said that at that time, every day would worry about the accident, and every morning she had to make sure that the child was still breathing and could shout.
Painful donation of daughter's body: I hope to save other children
On the morning of February 6, when Zeng Meijuan got up as usual to change the diaper and wipe her child's body, she found that her face was pale. "This used to happen when I wiped my body, but then it got back to normal. This time there was an accident, when 120 came, saying that there was no need for rescue, and the person had cardiac arrest and was no longer there. ”
Zeng Meijuan said that her daughter's eyes are very beautiful, big and bright, and she sometimes smiles when someone calls her. "In the past, when she was in the hospital, the doctor also praised her good looks, mentioning that if there was a case, she could donate the cornea. When I was hospitalized, I also saw many blind patients, so I thought about this problem at that time, thinking that if she was gone, I would be able to keep her eyes and continue to see the world. ”
On the 6th, when the Red Cross contacted the donation, it asked their husband and wife whether they were willing to donate the child's body to the medical institution. "We initially disagreed, and then considered that she had not studied the principle of the disease for so many years, if one day we could study it clearly, maybe we could save other children." If she had had such a medical level earlier, she would not have suffered so much. ”
Body donation letter
Zeng Meijuan said the couple's decision to agree to donate corneas and remains was discouraged by relatives and friends, but they persevered. "There have been too many tribulations over the years, and many people have helped us, and I think it is most practical to make real returns to society, and other gossip is not important."
On the morning of February 7, relatives, friends and volunteers who heard the news came to the scene and held a farewell ceremony for the children. "I hope her eyes can look at the blue sky and white clouds more, and we will also cheer up and continue to live, and strive to pay off the debts we have incurred in these years."
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