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In September 2021, the "Autumn Tiger" is threatening, but it cannot stop the enthusiasm of Xinxin students.
After all, after ten years of cold window, finally stepping into the campus of their dreams, no one can hide their inner excitement.
The joy of being rewarded, the curiosity about college life, was enough to withstand the heat of the weather.
Even Xing Yifan, who was sitting in a wheelchair, opened his eyes at this time, turned his eyeballs, and observed The Beijing University of Aeronautics and Astronautics with the afterglow of the corner of his eyes.
(Xing Yifan enters the university campus)
He had always wanted to study at a relatively large university, and Beijing University of Aeronautics and Astronautics was bigger than he could have imagined.
The school's meticulous arrangements for him make him look forward to the future.
Even if he is a frostbite sufferer who has lost his mobility;
Even at the age of 18, he weighed only 18 kilograms.
When he learned that he scored a good score of 645 points, he was admitted to Beijing University of Aeronautics and Astronautics.
He knew that a new journey awaited him.
And to this point, which is hard, people who have not experienced it, really can't imagine.
Sudden doom
In 2003, Xing Yifan was born into a happy little family.
When his father, Xing Dacheng, was studying, his grades were among the best and he was admitted to the ideal university.
After graduation, in the case of many people graduating and unemployed, he successfully joined Northeast Dianli University and became a university teacher.
Proud of the workplace, he also gained his own love in the love field.
He soon married his girlfriend, who worked at a communications company.
Soon after, they ushered in their own love crystallization - Xing Yifan.
(Xing Yifan is studying)
At that time, Xing Yifan was not yet called Xing Yifan.
Xing Dacheng hoped that the child could be "extraordinary" and "xiangrui" in his lifetime, so he named him Xing Chaorui.
Until later, when bad luck came, Xing Dacheng hoped that the child would become an ordinary mortal.
"Do yourself well and benefit from the ordinary", only to rename him "Yifan".
The arrival of Xing Yifan has given the family more laughter.
Looking at the child's white face and smart eyes, the small two mouths are sweet in the heart, and the eyebrows are happy.
Just when Xing Dacheng felt that his life was already regretless, Heaven made a malicious joke to this happy little family.
In the process of growing young children, people often say "three flips, six sits, eight climbs".
However, when Xing Yifan grew up to more than three months, he would not turn over.
(Xing Yifan goes out)
Originally, the child turned over early and late, and did not have to worry too much.
However, during the routine growth assessment physical examination of Xing Yifan, the couple was told that the child suffered from muscle weakness for unknown reasons.
In order to find out the cause of the disease, the two children ran all over the major well-known hospitals inside and outside the province with their children.
But even experts, just by looking at the color, can not determine the cause of the disease, and must use surgical means every time.
Seeing the child get stitch after needle, the pain made him cry and tear his lungs apart.
They can only accompany the tears, and hate that they cannot do the examination instead of the child.
Eventually, Xing was diagnosed with an extremely rare disease, LAMA2-related congenital muscular dystrophy.
This is one of the types of frostbite, which affects less than 100 of the country's 1.4 billion people.
Through the doctor's introduction and the relevant books purchased, the couple got a general idea of the development of the disease.
People with this disease, with the growth of bones, muscle atrophy will become more and more serious, people will become more and more thin;
Coupled with the lack of strength of skeletal muscles, over time, the patient's various joints will slowly lose strength, and the person's mobility will gradually decline.
Until the end, all parts of the body cannot move.
The whole process is the process in which a person can clearly perceive that he is gradually "frozen" and loses his mobility.
Just like the famous physicist, Stephen William Hawking.
The more they knew, the more the couple dared not think deeply.
They did not ask what the child would become when the disease progressed.
The only courage left told them that one step is one step.
Since the child has this disease, they can only take good care of the child in order not to waste this fate.
The couple did not heed the advice of friends, family and doctors to "have another child."
They decided to give all their love to Xing Yifan and gave him a nickname, Mao Mao.
They hoped that Xing Yifan could have a tenacious and unremitting vitality like Mao Maocao.
Father's love and mother's love
But the wish is beautiful; the reality is cruel.
Although xing yifan was taken out, there were always strangers casting strange glances, and the family's heart would be more or less cast with a shadow.
But this is all small things, every day must be done in life, trivial things, is more test of people's patience and physical strength.
Xing Dacheng and his wife are both working-class, and the cost of treating their children is quite large, and the two sons have no courage to quit their jobs to take care of their children.
Before the age of six, the couple had to entrust the child to their grandparents to help bring it.
And Xing Yifan only learned to sit, like turning over, standing, running and jumping, etc., there is no way to complete.
(Xing Yifan in the classroom)
Seeing that the grandparents were older and took care of Xing Yifan, they were a little overwhelmed.
The couple can only work while taking the burden of childcare back on their shoulders.
Anyone who cares for a child knows that in the first two years after the birth of a child, it is impossible for adults to sleep a full night because of feeding at night and giving their children and urine.
And such a life, Xing Dacheng and his wife lived for eighteen years.
Because you can't turn over, lie still in one position for a long time, and your internal organs are oppressed, and people will become particularly uncomfortable.
At night, Xing Yifan often moaned involuntarily because of discomfort.
In order to relieve the child's pain, the couple turned him over every two hours.
18 years, 6570 nights, night and night.
And this time, it has been extended.
Lama2-related congenital muscular dystrophy is one of the symptoms of increasing age, the wrist will gradually weaken, the ability to take care of life is getting weaker and weaker.
Therefore, Xing Yifan's daily chores such as dressing, washing his face, brushing his teeth, eating, and going to the toilet need to be assisted by his parents.
For the average person, brushing your teeth is a very simple thing, which can be solved in three or five minutes.
However, for the Xing Dacheng family, it was a silent battle.
The brush is heavy and fast, afraid of hurting the child's gums;
The brush is lighter, and it cannot play a role in cleaning.
Xing Dacheng had to use an electric toothbrush for his child.
Even so, every time he brushed his teeth, Xing Dacheng had to first hold Xing Yifan in his arms and set up a good position.
Then stabilize him with his chest and arm bends, find a balance point, find the rhythm of brushing his teeth, and brush his teeth for him.
When the toothbrush is good and the mouth is rinsed, one of the couples lifts the child up a little and holds the head, and the other picks up the water cup to feed the child.
Before and after, it takes at least twenty minutes to brush your teeth once, and so do other trivial things in life.
In fact, once or twice is better to say.
As the days go by, the process really feels like a challenge.
Xing Dacheng also described the process as "desperately needed to work hard to settle one thing after another." ”
(Xing Yifan)
And Xing Yifan going to the toilet is also a rather difficult thing.
Although the teachers at the school were enthusiastic to help Xing Yifan, Xing Dacheng felt that he could not bother the teacher so much all the time.
Moreover, with the increase of age, Xing Yifan's self-esteem has gradually awakened.
In addition to his parents and male teachers, he did not want others to see his privacy.
In order to solve the problem of children going to the toilet after class, Xing Dacheng copied down the school's class schedule.
He compared the time, discussed with his wife, and took turns to go to the school to take The Torturer To the toilet.
In this way, from elementary school to high school, for a full 12 years, the couple shuttled between their own units, their children's schools, and their families.
When the reporter asked if there were any plans at home, Xing Dacheng said:
Our home is not planned.
There is no time to be sad and not to be sick.
Life in our family is like a charge.
The task of the day is to think about how to live the 24 hours of the day.
As netizens said, the daily life of Xing Dacheng's family of three is a battle.
The end of the day is a victory.
Fortunately, in such a difficult life, because of some people and some things, they feel that this world is worth it.
The love of the school and the teachers
When Xing Yifan was three years old, Xing Dacheng wanted to send him to kindergarten.
However, no kindergarten will accept it.
Xing Dacheng felt that it was understandable, so he did not dwell too much on this matter.
But when Xing Yifan reached the age when he should go to elementary school, Xing Dacheng's heart became increasingly anxious.
Because, he deeply hopes that children can be like other children, in the spacious and bright classroom, get a good education, make friends of the same age.
(Xing Yifan in the classroom)
However, the child's physical condition made him worry that there was still no school that would accept the child.
Someone gave him an idea to send Xing Yifan to a special school.
But looking at the child's bright eyes and hearing the child's logical and clear words, Xing Dacheng could not bear to do so.
After all, although the child has physical problems, there is no problem with iq.
If he is deprived of the right to education, he really loses his dignity and becomes a wasted man.
Seeing the start of school, Xing Dacheng, who had wandered in front of the bilingual experimental primary school in Chuanying District many times, finally plucked up his courage and walked into the school.
When he explained the child's situation to Principal Cheng Yanchun and waited for the final "verdict", Principal Cheng said without hesitation:
Children have the right and qualifications to receive compulsory education and can come to school.
A new door opened unreservedly to the Xing Dacheng family of three.
On the first day of school, the class teacher, Mr. Hou Suyun, stood at the door of the classroom, waiting for Xing Dacheng to send Xing Yifan.
As soon as Xing Dacheng arrived, Teacher Hou quickly picked up the child and carried him to his place.
(Teacher picks up Xing Yifan)
Teacher Hou hugged this for 6 years.
For 12 semesters, as long as Xing Yifan's parents had something to do and could not come to school, it was Teacher Hou who carried Xing Yifan to the toilet, participated in extracurricular activities, changed classrooms to do experiments, and basked in the sun after class...
Xing Dacheng always remembered a sentence that Teacher Hou had said: "I think that if anyone is not sick, he can get out if he breaks through." ”
Fast forward six years, and at the beginning of Xiaosheng, Xing Dacheng found the counterpart junior high school of bilingual experimental primary school, Jilin No. 23 Middle School.
The headmaster said without hesitation: "You can rest assured, you will definitely receive it." ”
At that time, Xing Yifan had reached adolescence.
He was also carried to the toilet in public, which made him feel embarrassed.
Xing Dacheng understood that the child's self-esteem had been hit, so he had to "cheekily" propose to the school leaders that he hoped that the school could find a separate bathroom for Xing Yifan.
Unexpectedly, the school immediately took him around the empty classrooms and lounges of the entire teaching building.
They found a suitable single room for Xing Yifan to rest and go to the toilet.
The class teacher, Yang Weihong, was lenient and strict with Xing Yifan, which not only touched Xing Dacheng, but also admired the teacher's foresight.
(Xing Yifan and teacher)
In life, Teacher Yang's care for Xing Yifan can be described as meticulous:
Knowing that he was tired in class, he would let him lie on his lap and rest during recess;
When Xing Yifan's parents were busy at work, they took him to their own home, cooked for him, and tutored him in his homework;
When she learned that Xing Yifan was depressed after the death of her idol Hawking, she encouraged him that he should learn from the spirit of hard work of his role model...
However, in terms of learning, Teacher Yang did not relax the requirements for Xing Yifan because of his physical reasons.
She said: "Don't lower the standard because the child is not in good health, believe that he can." ”
For example, Xing Yifan's words are not good-looking, and Teacher Yang encourages him to practice words.
Through practice, Xing Yifan's words became more and more beautiful, and he was never deducted from the roll points again.
In high school, Jilin No. 1 Middle School was very considerate and put Xing Yifan in the class of a male homeroom teacher after the 90s.
In this way, it is convenient to take care of Xing Yifan, who can no longer sit for a long time, but also because the age difference is not large, there are more common languages between teachers and students.
Teacher Ding was also able to detect Xing Yifan's psychological fluctuations in time and solve his worries and difficulties.
In 2021, Beijing University of Aeronautics and Astronautics admitted Xing Yifan with excellent grades.
And for him to equip a professional medical team, to provide independent dormitories and other corresponding resources, so that his study and life, there is no worries.
Just like Xing Dacheng said, along the way, people from all walks of life have given too much help to this family, which has made Xing Yifan come to this day.
Companionship of classmates and friends
In addition to allowing Xing Yifan to receive a normal education, the school and teachers also took pains to socialize with him.
Before the age of six, because he could not go to school and to avoid others from looking at Xing Yifan with strange eyes, his family rarely took him out.
It can be said that before going to elementary school, Xing Yifan had almost no friends.
The school and the teachers made up for this regret of Xing Yifan.
Teachers know that a healthy and good social environment must be based on equality.
Although they felt sorry for Xing Yifan, they never felt that Xing Yifan needed someone to be pitiful.
What's more, pity for these emotions will affect the children's cognition of Xing Yifan, which is not conducive to their getting along.
To this end, they always treat Xing Yifan equally with other students, and encourage Xing Yifan to communicate with classmates and be friends.
(Xing Yifan with classmates)
Every extracurricular activity, the teachers did not let Xing Yifan be absent.
In the first year of junior high school, the school held a school games, Xing Dacheng wanted to let Xing Yifan rest at home, but Teacher Yang did not agree.
He said to Xing Dacheng:
"You must not be absent, when you are an audience member."
That day, Xing Dacheng only sent Xing Yifan to the school as usual.
The second item of the school games is the class appearance.
On the playground, one class after another took a neat step, shouted loud slogans, and walked through the rostrum.
When he saw the classmates pushing Xing Yifan to the square team, and the audience erupted into warm applause, Xing Dacheng felt that Teacher Yang's decision was right.
Only if you don't see yourself as a special member, others will not cast a special eye on you.
As a member of the class, only by participating in more class activities and integrating into it can Xing Yifan grow up normally like other ordinary children.
Under the leadership of the teacher, the students not only accepted Xing Yifan, but also took the initiative to help him overcome various difficulties in life.
In high school, whenever the class ends, the students will take turns to push Xing Yifan outside the classroom to bask in the sun and visit extracurricular activities;
There are also classmates who help him sort out the examination papers and books, and set up a study group with him, and everyone checks and fills in the gaps together.
In short, no matter where he is, there is always a classmate who will accompany him to prevent him from accidentally falling.
(Classmate and Xing Yifan)
It can be said that to a certain extent, it is the students' undifferentiated gaze and communication with Xing Yifan that enables Xing Yifan to correctly understand himself, so that he will never be arrogant and self-effacing, inferior and self-pitying.
In this benign growth environment, Xing Yifan not only had a good relationship with his classmates, but also became an optimistic and self-motivated young man himself.
Our own unremitting efforts
If Xing Yifan can achieve today's results, parents, teachers, and schools as external factors are indispensable.
Then, his own courageous and indomitable spirit of hard work is also crucial as an internal driving force.
Many children have a certain learning foundation in kindergarten, such as writing, arithmetic, pinyin, English, etc., but Xing Yifan has not even taken a pen.
And because he usually communicates with people less, his language expression ability is much worse than that of his peers.
Originally, Xing Yifan's parents did not ask him what he could learn and how much he could learn, but he himself did not think so.
(Xing Yifan)
In the first grade, faced with a new environment, he felt that everything was fresh and fun.
But when he found that his study was lagging behind, he did not accept the psychology of losing, so he took the initiative to ask his mother to tutor his homework.
If he can't sit for a long time, he will study for a while, rest for a while, and then learn again for a while.
Seeing that he was in a hurry, Xing Dacheng busied himself and told him:
Learning is not as good as others is not a loss, stopping is losing, losing to yourself is losing.
I don't know if It was Father Xing who said too much, and Xing Yifan was no longer impatient.
After calming down, the learning effect is more obvious.
Not long after, Xing Yifan scored 100 points in the test.
After returning home with a red card that his teacher had rewarded him, he asked his mother to take a picture of himself as a souvenir.
(Xing Yifan)
Later, he learned on a tech show that there is no gravity in space.
If you can go to space, you can control your body.
To this end, he set his life goal as going to space, and he was more motivated to study.
By junior high school, Xing Yifan's health was deteriorating, and he could do fewer and fewer movements.
Even if you sit, you will gradually not be able to support the 45-minute class.
But he didn't want to miss a lesson.
Finally, the teacher thought of a way to use a table at the back of the classroom to build a "bed" and let Xing Yifan lie on it to listen to the lesson.
Also, ask a classmate to sit by the "bed" to prevent him from falling.
(Xing Yifan lying down to listen to the lecture)
With such learning momentum, Xing Yifan scored the first place in the whole school and the twenty-fifth place in the city when he took the middle school examination.
Because of the excellent results in the middle school entrance examination, Xing Yifan not only successfully entered the local key high school Jilin No. 1 Middle School, but also was admitted to the innovation class.
However, entering the innovation class means that you can learn three hours more a day than your classmates in other classes.
Mom and Dad advised him to go to the parallel class and not to be too tired.
However, Xing Yifan did not want to give up.
At this time, he could not sit still, and his neck could not stand upright for a long time.
When you can't move for a long time, the internal organs will cause great pain.
Many times, he can only rely on his parents to massage him to relieve pain, and put his chin on the desk to study.
And holding the chin on the desk for a long time, the chin bruise is a common thing.
Many times, some students encounter difficult problems, or look at the answers, or confuse the past.
But Xing Yifan had to think independently and always attacked the problems one by one.
With this drilling strength and tenacity, Xing Yifan's achievements have always been among the best, and he has won a variety of honors every year.
(Part of Xing Yifan's honor)
Behind these honors, in addition to studying hard and carefully living every day, we also need to deal with the "accidents" caused by physical weakness.
Open-mindedness in the face of surprises
Unable to control his body, when Xing Yifan was in elementary school, he once fell to the ground without warning, and his head landed on the ground first.
On the way to the hospital, he kept vomiting.
Fortunately, only a slight concussion in the brain was diagnosed.
After a few days of rest, Xing Yifan, who did not want to leave too many courses behind, went to school on time.
In junior high school, because I was lying down to listen to lectures, I had to pay close attention.
On several occasions, Xing Yifan listened too much, causing the ears to be pressed for a long time, resulting in edema and even bleeding.
Because he didn't want to bother the people around him too much, in order to reduce the number of times he went to the toilet, for a while he reduced the amount of water he drank, resulting in blood in the urine.
Xing's father still thought that his son had some complications, but Xing Yifan himself did not think so.
In high school, Xing Yifan will generally study until eleven or twelve o'clock in the evening;
But in the third year of high school, studying until one or two o'clock in the morning is a common thing.
(Xing Yifan Learning)
One day, Xing Yifan learned that at one o'clock in the morning, when Xing Yifan's father carried him to bed, he was too tired and a little confused, and he did not expect to cause Xing Yifan's right arm to fracture.
The hospital did not dare to operate on him, and finally could only take splint fixation treatment.
For three whole months, Xing Yifan played the splint and studied harder than before.
Looking at his increasingly curved joints, and his increasingly rickety body, Mom and Dad strongly demanded that he rest, but he did not listen.
Until one day, when Mom and Dad asked him to rest again, he said:
My body is like this, maybe one day it will be...
I wanted to see where I could go, and I wanted to run forward.
When the husband and wife heard this, they both fell silent.
It is hard to imagine that such open-minded words facing life and death could be uttered by a person who is only 18 years old.
The Emperor's heavens paid off.
In the 2021 college entrance examination, Xing Yifan was admitted to Beijing University of Aeronautics and Astronautics with a score of 645 points.
In an interview, Xing Yifan said: "Learning is a happy thing, and I can't think of a reason to retreat. ”
Now, Xing Yifan is 19 years old and a sophomore.
The school also assigned him a professional medical team, and let him learn programming while learning professional courses, so as to lay the foundation for the future treatment of his own diseases.
(Doctors discuss Xing Yifan's condition)
People always say that life is too fragile to withstand the slightest accident.
And there are always some people who, just by virtue of their thin and weak bodies, create one miracle after another.
We see in it that life is strong and tenacious.
All this That Xing Yifan got was inseparable from his parents' hard work and resentment, the help of teachers and schools, and the support given to him by all walks of life.
Even now, there were not many places where Xing Yifan could move physically, and even turning the pages of the book could not be completed smoothly.
But someone will do his hand and become his foot.
Aito lifted him to a prestigious school and helped him complete his dreams.
Good wishes to Xing Yifan, may he return from his studies, not only to realize his space dream, but also to save himself from illness.
Author: Zhu Xiaolu & Copper Peas
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