Author | Mulberry
Henan Hebi, a dilapidated building.
Every morning, my mother would carry her 140-pound son downstairs and take him to school in an electric tricycle.
Pick him up again at noon, send him back to class in the afternoon, and pick him up again after school in the evening.
Image source @ rice video
That's it, four times a day.
It lasted for 7 years, more than 2500 days and nights.
At first, it was still a bit difficult to carry the child, so she put a table at each staircase to rest.
Later, she became more and more skilled, with more and more strength, and it only took 3 minutes to carry the child downstairs.
It turned out that this was a child with a rare disease.
From the age of 5, pseudo-hypertrophic progressive muscular dystrophy was detected.
Although he is only 15 years old, he weighs up to 140 pounds, which seriously affects daily walking.
But even so, his mother insisted that he return to school:
"If the child doesn't give up, what reason do I have to give up?"
A very simple sentence that sounds moving.
Many people do not know that there are currently about 20 million rare disease patients in China, and about 200,000 newborn rare disease babies are born every year.
In other words, 1 in every 100 newborn babies has a rare disease.
Seeing this number, I could not calm down for a long time.
Every child is the most precious and softest existence in the hearts of parents.
In case of illness one day, the parents are like being pulled into the abyss of despair and executed.
When a child is sick, it is always the parents who blame themselves the most
Have seen such a true story.
Nanlishi Road Park, Beijing.
At night, it is crowded with middle-aged people from other places, most of whom come with their children for treatment.
In order to save money, I was reluctant to stay in a hotel and had to squeeze into the park.
Zhang Fuzhong, 50, is one of the thousands of troops.
A few years ago, the 10-year-old daughter suddenly had a high fever.
From villages, towns, counties, and then to Beijing, they traveled all the way to learn that their daughter had a rare disease that required bone marrow transplantation, and the cost of various treatments was 600,000 yuan.
He didn't know where the money came from, he could only treat one step at a time.
For this reason, he was extremely harsh on himself.
Living in the park every day, I can't afford to spend money on bathing.
Then buy ten yuan and two pounds of flatbread, drink the free hot water received by the hospital, which is a day's meal.
The only time I ate buns was because I gave my daughter a bone marrow matching test and needed to draw blood.
In order to successfully match, he laid down blood money that day and ate 9 buns.
This scene reminds me of the scene in the movie "Send You a Little Red Flower".
After my son developed brain cancer, the pace of the family's life changed dramatically.
Source: The movie "Send You a Little Red Flower"
On weekdays, the optimistic and generous mother keeps breaking things up for a few dollars of parking fees.
The decent father at work, in order to save a few more money, went to Doi part-time after work, and the vest was broken and he was reluctant to change it.
You see.
When a child is sick, the most painful thing is the parents, and the one who blames themselves the most is also the parents.
Don't look at some parents, talking and laughing outside, bright and beautiful.
As long as the child is ill, he is immediately pulled into purgatory and does not want to die.
They don't even dare to treat themselves even a little better, otherwise they feel sorry for the child.
It is enough to unleash a man's boundless potential and give him a child
In the movie "Chinese Flying Man", such a poignant story is told:
Men are delivery men and women are nannies.
Their 6-year-old daughter suffers from partial pulmonary venous ectopic drainage, suffers from atrial septal defect, coughs badly every day, and can't breathe in severe cases.
If you do not perform surgery, you may be in danger of life.
The cost of surgery is a full 200,000.
Source: The movie "Chinese Flying Man"
But they only have 50,000 yuan in their hands.
Looking at the expensive bills, the woman after a moment of silence proposed:
"Or I'll go to Foshan and give people a footcut."
For the job that the wife has to do, the man is naturally unhappy in his heart.
But in the face of the child's 200,000 surgery fees, the man could not say half a "no" word.
And he also began to deliver takeaways during the day and do driving at night.
Whenever I can't hold on, think about my daughter's surgery fee.
At that moment, he became more motivated.
Every day, I get up at seven o'clock, send my daughter to school at seven forty o'clock, and pick her up at four o'clock in the afternoon.
In order to get his daughter back in time, he had to be faster than everyone else, delivering at least 60 orders a day, no more than 10 minutes each.
Familiar with every customer in the jurisdiction, every building, know where to go to the toilet without queuing, and even remember how many seconds each traffic light.
All the time, he was accurate to the second.
At 8 p.m., he finally delivered the last takeaway, but then he had to change clothes and nibble on a bread at the speed of a 100-meter sprint, and then work part-time as a substitute driver...
Later, the father who treated his daughter was called "China Flying Man" because the speed and performance of food delivery were too good.
And parents in real life, why not?
Just like the father who was on the hot search, he personally medicated to save his children, and to some extent, he was also a "Chinese flying man" who robbed the child with the god of death.
Source: Weibo @ Live up to my time
I believe that in the process of treating their children, they must have despaired and cried bitterly.
But a thousand times of collapse, can not compete with a child's smiling face.
After each frustration, they regain their spirits:
For the health of the child, for the faith in the heart.
Say nothing, can not give up!
Having a healthy child is already the greatest blessing for parents
Speaking of which, what is the greatest luck of parents?
Not wealth, not status, but having a healthy child.
Some time ago, my friend shared with me the story of her going to the hospital, and I still have palpitations in retrospect.
That day, she took her daughter to get a medical report.
Looking at it, the above 4 words are extremely conspicuous:
malignancy.
Her legs were weak and she almost collapsed to the ground.
I found the doctor and asked, and before I could say anything, the tears had already come down.
It wasn't until the daughter on the side reminded her, "Mom, this is not my name on it," that the friend shook her head.
It turned out that because of a momentary emergency, my friend took the wrong report form.
At that moment, the friend found that having a healthy and safe child was already a great happiness.
She said to me with emotion:
"This thing is wrong, it is also a wake-up call for me, in the past always required children to keep running forward, but stop and look, health is already very lucky." 」
Oh, yes.
Sometimes when you think about it, parenting anxiety in parents is really too serious now.
Watching children become famous all day long, as if this is the greatest joy of a family.
But you go to the door of the Third Hospital of Beijing Medical College for a walk, and you go to the Children's Hospital to take a look.
Parents there, their greatest wish, is to let their children be a healthy and healthy person, living in peace and security.
Their dream is that they hope that their children will one day be able to walk out of the hospital by themselves, and then run to the playground, run to the playground, and play happily!
Writing this, I can't help but breathe a long sigh of relief -
In this era of inner volumes, grades, rankings, and awards are important.
But as soon as the word "health" is encountered, everything will turn into nothingness.
Nothing is more important than a child's health, just as nothing is purer than the love of a parent.
How fortunate we are to have a healthy child.
That's nice.
—— End ——
Author: Sang Zi, write with heart, write with love. Focus on marriage and parenting articles, so that you can take fewer detours on the road of marriage and childcare. Some of the pictures are from the Internet, and the copyright belongs to the original author.