I had dreamed of one day succeeding in my studies, changing the fate of myself and my family, and if I had not been seriously ill, I would have studied intensely at school now. I had longed for a better life in the future, but now everything has become out of reach. I never thought that my life would be so short, so short that I didn't have time to say goodbye to my classmates and friends, and maybe we would never see each other again. Because my life has been pressed the "pause button", if there is not enough treatment cost, it may also become the "shutdown button".
My name is Wang Xiaoman, I am 19 years old, an ordinary Tujia girl, born in an ordinary rural family in Hongshilin Town, Guzhang County, Hunan Province. My parents were not highly educated, and in their spare time they earned a meager income from odd jobs to support our whole family. My parents saved money to provide me with education, and although the family did not have money, my parents were very kind to our sisters. After ten years of hard study, I was admitted to the university and studied in the Xiangxi Vocational College in Hunan Province, where I was a special post student. Originally, I longed for an ordinary job to support my family after graduating from college, so that my elderly parents could enjoy the blessings, but unexpectedly, all my dreams were shattered.
Around August 20, 2021, I noticed that there were many red dots on my body, and I didn't care at the time, thinking that I had been bitten by mosquitoes. Later, I felt dizzy and had no strength in my whole body. On August 29, 2021, my mother and I rushed to the emergency department of Changsha Second Xiangya Hospital overnight and did various examinations such as CT, color ultrasound, blood test, bone marrow puncture, biopsy and so on. On September 2, 2021, my condition began to get serious, and the doctor called my mother and asked her to sign a critical illness notice. On September 6, 2021, the results of the bone marrow puncture came out, and I suffered from extremely severe aplastic anemia.
When I saw the words "extremely severe aplastic anemia" on the diagnosis book, it was like a thunderbolt on a sunny day, and the tears fell uncontrollably. That night, the hospital room was filled with an atmosphere of sadness. I looked out the window at the night sky and kept asking myself, "Why am I suffering from this disease?" "I am particularly guilty and self-blamed, my parenting grace has not been repaid, and my family, which is not rich, has made it worse because of me."
The doctor gave two treatment options, one is to do ATG treatment, which has a recovery rate of 60%, and the other is to do stem cell transplant treatment, which has a recovery rate of 70% to 80%. In order to save my life, my sister and sister competed to come to the hospital to match my stem cells. Dad borrowed money from relatives and friends at home to treat me, and he said that no matter what, he must cure me well, let me take good care of my body, and don't worry about money. Relatives and friends are helping, and teachers and classmates at my school are also trying to find ways to help me.
Because of the serious infection of my lungs, which led to another high fever, the doctor said that he might not be able to wait for the matching results of stem cells, so he suggested that I hurry up and do ATG treatment. On September 14, 2021, I started receiving treatment at ATG. That night, because of the side effects of the medication, my whole body was trembling, and my lips were purple, which frightened my mother. On September 16, 2021, I was transferred to the laminar flow ward and stayed in a small room with my mother, unable to see the sun outside. I stayed inside for 4 days, and the ATG treatment was done, but it took 3 to 6 months to take effect.
On September 25, 2021, the doctor suggested that we be transferred to the Third Hospital of Changsha City for observation and treatment. A few days after the transfer, the doctor asked me to do a CT lung examination. After doing ATG, my body's immunity decreased and my lungs became infected with fungi. Because the fungal infection is more serious, the doctor asked us to go outside and buy our own antifungal infection medicine: amphotericin B. At first, I hit one bottle a day, but I couldn't hold back the fungal infection, so I had to get two bottles a day. My body reacted, my whole body was swollen, my weight kept falling down, and I couldn't move while lying on the bed. My body has been suffering from pain, and when the doctor told me the good news that white blood cells were slowly growing back, I was doubly confident.
The torment of illness and the side effects of medication made me worse off than dead. I can't count how many times I've woken up from sleep, sometimes with painkillers to relieve the pain. I felt so tired and physically and mentally exhausted, and just when I couldn't hold on, it was my parents who kept encouraging and comforting me at the hospital bed. When I was most helpless and in the most pain, my parents said to me: "The girl is not afraid, my parents will not give up on you, you must get better quickly." "In those long helpless and dark days, I relied on the love of my parents and persevered strongly.
However, wave after wave of unevenness has risen again. On November 7, 2021, while doing blood cultures, bacteria were found again, and there were blood clots in the place where the infusion tube was implanted on my arm. The next day, I came together with a cough, accompanied by a fever. The ct review results came out, the doctor said that the lung infection was more serious than before, the small blood vessels in the lungs ruptured, the situation was very bad, the most afraid of lack of oxygen in the lungs, the parents once again signed a critical illness notice.
The cost of treatment is very small, and the high cost of the day makes parents feel bad. To save money, my mother starved in the hospital. My parents couldn't sleep day and night for me to raise money, and I saw the pain in my eyes. It was because I was sick that I dragged down my parents and dragged down our family. From the moment I saw the diagnosis, I was fearless in life and death. But I was afraid to see the helpless and sad eyes of my parents, I didn't know where my future was, I didn't know how long I could live. If possible, I want to live and grow old with my parents.
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The "Photosensitive Project" bridges public welfare photographers, charitable organizations, and fundraising platforms, publishes pictures and stories of families in distress, and helps raise donations. The plan is a photo public welfare project jointly initiated by today's headlines, the China Photographers Association, the China Children's Charity Relief Foundation, the Chinese Welfare Foundation, the China Social Welfare Foundation and other charitable organizations with public fundraising qualifications. If you have difficulties, you can send a private message to the official headline number of the "Photosensitive Plan".