Hello, here is the Language Villain Book.
I hope to share more content and dry goods related to parenting, mother and baby and education with you, and discuss more in-depth topics.
Today I would like to share with you a horror film released last year, the film tells the story of a boy who can only live in a sterile environment to seek medical treatment, when going out, the little boy must wear aviation suit and helmet, otherwise as long as the skin is exposed to the air, it will turn red and then burn.
Combined immunodeficiency disease
This is not unique to the movie, there is such a disease in real life, called combined immunodeficiency disease (SCID).
In the 70s of last century, there was a little boy David in the United States, who unfortunately suffered from SCID, from birth to the end of his life at the age of 12, he has been living in a plastic bubble, after suffering from SCID, as long as he touches the air, he will be infected with fungi, viruses, bacteria... Then pneumonia, diarrhea and other diseases died.
Newborns have a chance of SCID in between 1 in 100,000 and 1 in 50,000, which is a rare disease in newborns, and girls will not get this disease, it can only be carriers, only boys will have SCID.
David's parents have been looking for ways to save David, such as using his sister Catherine's hematopoietic stem cells to give David a bone marrow transplant, but what people did not expect was that 12-year-old David died of lymphoma four months after the operation.
Before leaving this world, he finally did something that he had never had a chance to do: kiss his gentle mother.
Today, with the development of medical technology, as long as newborns with SCID undergo bone marrow transplantation within three months, there is a 75% to 90% chance of having a new life.
Parents of "Bubble Boys"
For 12-year-old David, it was difficult for him to understand why he was "locked" in a place only 1 inch in size, and as he grew older, it was also a test for David's parents, who constantly explained to their son why he was different from other children, and constantly encouraged their children to have a day when they walked out of the door. Even they don't know if that day will come.
David's parents have always held the hope that their son will be cured, so they have never given up on him, and the growing David will not be satisfied with living in the plastic bubbles between the square inches, he faces the ethical problem of wanting to go out, and his parents have to face greater pain and pressure.
When talking about "Bubble Boy", everyone mentions his short and lamentable life, as well as his contribution to the research of joint immunodeficiency disease, but people do not seem to pay attention to his parents, the most admirable should be David's parents, they have not given up on him, nor absent from David's life, perhaps David's life is short, but not so regrettable.
There is love that does not die
Emerson said: "Home is the kingdom of the father, the world of the mother, the paradise of the child".
A loving family will not be defeated by poverty or disease, and David will always remain in the hearts of his parents, the "bubble boys" in the eyes of the public, in the eyes of their parents, just their beloved little sons.
The March family in "Little Women" is always so happy, even if they are poor, they are willing to help their neighbors, the third daughter Beth has no fear in the face of death, and the girls finally understand that death is a fusion with nature after the initial inability to accept it, because there is love and memories, so everything is not so bad.