If there must be suffering in this world, let it exist, but there should always be a glimmer of light. Leave at least a little glimmer of hope to prompt the nobler parts of humanity, with hope, to fight ceaselessly to alleviate this suffering. —Emerson
In our lives, there are nine times out of ten unsatisfactory things, some people are optimistic and still love life; some people are self-pitying, cynical, and choose to escape.
Just like Emerson's words, the meaning of suffering is to separate different people, and everyone faces the same suffering, but how to face suffering divides people into different people.
In the United States, there was a little boy who was plagued by illness at birth, who had never touched this beautiful world, nor had he ever touched his loved ones, and spent twelve years in a separation hood, not touching his mother until he died.
Even so, the little boy still faced the disease optimistically in these 12 years, loved life, and his name was David.
The short course of 12 years of life has made those who know him feel the new meaning of life.
Born with rare diseases
When David was born that year, nurses noticed erythema on his body, accompanied by convulsions and difficulty breathing.
When the nurse found out, she immediately notified the attending doctor and sent him to the treatment room, and after several hours of hard work, David was out of danger and his breathing became normal.
Just as David's parents were breathing a sigh of relief, the doctor told them bad news: David was not a healthy child, he had a SCID deficiency.
SCID, known as combined immunodeficiency, is a recessive genetic disorder caused by genes.
Although David's parents both show normal traits, they all carry recessive genes for this genetic disease, and the recessive genes meet together and become dominant in David.
The symptoms of this disease are manifested in the patient's immune system has a great defect, almost unable to perform normal functions against external viruses and microorganisms, so the physique is very bad, very easy to cause allergic reactions, resulting in a large area of erythema.
At the time, the disease was almost uncommon, and there was no record of a corresponding treatment.
Therefore, this disease, at that time, seemed to be incurable, and the only way was to isolate David from the environment with microorganisms and bacteria.
But in this way, David also lost his freedom and could only stay in this special environment.
This was his only way to survive, and after asking his parents' permission, David was sent to a sterile isolation hood.
A different life for the Bubble Boy
The isolation cover where David is located is round in shape, like a bubble, and David, who stays in it, has the title of "bubble boy".
There is food, water, and toys in the isolation hood, all of which are sterilized and put in to ensure David's safety.
And David grew up in it slowly, he was not sullen because he could not get out of this isolation cover, but he was very optimistic, and he had a lot of fun in it.
He felt that apart from not being able to get out of this isolation cover, he was no different from others.
David's parents, who learned of their son's illness, were very depressed and pessimistic at first, but when they saw their son in the isolation hood, who was still optimistic, they seemed to have the motivation to persevere.
Although they are not able to get close to their son, David's parents are working hard to raise high treatment costs for David, while doing their best to accompany David, so that he feels the warmth of the family and does not feel lonely.
Even with a glass cover, David would say goodnight to his parents every day and smile brightly at them.
This unfortunate little boy, even if he has never had contact with his parents and has never had the experience of embracing with his parents, he is still strong and optimistic, which is the only comfort for David's parents in the midst of misfortune.
First contact with mom at the age of 12
When David was three years old, stories about him were told by reporters. The local television station was touched by the child's experience and decided to make a documentary for the boy.
Because of David's special circumstances, anyone who enters must wear a thick protective suit to be able to contact David.
When the reporter is fully armed, he enters David's "bubble room", and he finds that David is not as taciturn and uncommunicative as other seriously ill patients, and David is the opposite of them.
David was so lively and cheerful that it was hard to imagine that this was a seriously ill boy who was very willing to communicate with others.
He took the initiative to ask the reporter what the camera in his hand was, and he also showed the reporter his toys and books, which made the reporter's heart more painful.
The boy was obviously so unfortunate, he was still working hard to live, even if he only had a small space to move, he was satisfied.
When the documentary was released, David immediately gained the attention of the audience, and everyone was very sympathetic to the poor little boy, willing to raise money for his treatment, and moved by his spirit.
One after another people came to visit the little boy, bringing him new toys and books, and they also chatted with David and listened to David talk about the funny things in the "bubble room", which made David very happy.
When David was 12 years old, the hospital developed a plan to transplant David's sister's hematopoietic stem cells into David's body, and if he could survive, it might be able to save David's genetic problems.
But this method has never been tried, and whether it is safe or not is uncertain.
However, David decided to give it a try, he was so desperate for freedom that he told his parents that even if he failed, he would not regret it.
Hopefully, David underwent surgery, and unfortunately, David carried a negative virus in his cells, inducing lymphoma.
A few months later, this unfortunate little boy finally left this world.
Before he died, at David's request, the hospital transported David out of the isolation hood, David stretched out his hands and hugged his mother tightly, he finally felt the warmth of his mother, smiled and shed tears, and said: "I love you, Mom"!
epilogue
As an unfortunate little boy, David endured the pain that he should not bear at this age, he did not have the happy life of an ordinary child, and could only stay in his own "bubble room".
Even if fate was so unfair to him, he did not complain, lived with his heart and seriously, loved the world, loved his family. That's what David inspires us.
First of all, suffering and setbacks are often accompanied by our lives, and if we want to escape, then it is useless. We should face the suffering and setback seriously and bravely, and overcome it with a smile.
Second, even when our world is cloudy, don't sigh in discouragement, because the rain will always pass, the sky will always be sunny, and everything will be fine.
As Emerson said, suffering has its value and necessity, and countless people have chosen to retreat in the face of it.
But as long as we can understand the enlightenment brought to us by David, I believe that in the future road of life, even if the thorns are thick and the road is bumpy, we will still cut through the thorns and move forward bravely.