[Floating clouds] do not have wrinkles and are full of collagen, which should be the dream of many people, but when an Australian woman obtained such talent, she only felt miserable, why?
Claudia Sultan, born in New South Wales, Australia, is a well-known local freelance writer, occasionally works as a project consultant for some magazines, earns a good income, and usually likes to travel around, on the one hand, to relax, on the other hand, to have more creative inspiration.
During a deep winter trip, Claudia seemed to not feel the cold, and actually stretched out her hand to feel the temperature of the sea, and when the people next to her exclaimed, "Oh my God, this is too cold", her face did not wave, and she even enjoyed it a little.
Since then, friends have jokingly called Claudia "Little Burning Man", changing the method to test whether she really can't feel cold, but every time she fails, no one expected that this is the body sending a danger signal to Claudia.
In 2013, Claudia woke up from a dream for the first time since she became a writer, so she stretched out and slowly got up, intending to make herself a cup of coffee, make a delicious and healthy breakfast, and then sort out the manuscript that she didn't finish last night.
But unexpectedly, when Claudia finished breakfast and was about to write, her fingers suddenly turned blue, and at that moment, she thought she was dazzled, but immediately, the color of her fingers changed from blue to red, and then to white, and she could feel the piercing pain.
At first, Claudia did not take this matter to heart, but such a strange situation lasted for three weeks, until she found that the pain was increasing, and she could not continue to tap the examination plate to write, and finally made up her mind to go to the hospital for a full body examination to find out.
It was a hot summer, and I shouldn't have felt the biting cold, but Claudia just went out and felt that her hands and feet were cold, so she could only return to the room and put on a coat to go out again, driving all the way to the hospital, and when she was about to get out of the car, she suddenly found that her legs seemed to be frozen and couldn't move.
After a long ten minutes passed, Claudia felt that the situation had improved somewhat, and she walked quickly to the hospital gate with all her strength, and after a series of examinations, the doctor frowned and said to her: "You should have Raynaud's disease, there is no cure at present..."
Claudia didn't know how she was in the mood to get out of the hospital, she called her mother as soon as possible, and the mother and daughter agreed to meet at a nearby café to see if they could find authoritative medical experts who had research in this area through other connections, and then make plans.
In the process of waiting for her mother's arrival, Claudia learned that Raynaud's disease, also known as Raynaud's syndrome, is a disease characterized by arc ischemic changes caused by paroxysmal acral arterioles after cold or emotional stress, and the incidence is not low, generally more common in women between 20-40.
In general, treatment is mainly relieved by drugs, which can reduce the number of symptom attacks and reduce the degree of pain to a certain extent, and during this time, patients need to maintain absolute relaxation, adequate sleep, and avoid cold stimulation and so on.
Seeing this, Claudia suddenly felt that this disease did not seem to be so serious, although the doctor said that there was no cure, but as long as you insisted on taking drugs and lived in a warm environment all the time, could you avoid another attack?
But who knows, the diagnosis given by that hospital is not accurate, and when the mother took Claudia to a larger hospital for examination, she was told that she had scleroderma, an autoimmune disease that is extremely rare worldwide.
Usually, people with scleroderma are filled with more and more collagen, which in turn makes the skin very hard, the connective tissue firm, and at the same time, it is accompanied by constant pain, but this is not the most frightening.
The doctor may have thought that this sentence was too cruel to say, so she asked Claudia to look up this condition on the Internet, but when she saw that "the disease affects the vital organs of the body, once it begins to harden, it means that she can only live for up to 15 years", she finally couldn't help crying in the hospital corridor.
Because collagen is constantly being produced in the body, Claudia's face is becoming tighter and tighter, and although the loss of wrinkles is undoubtedly a great joy for the vast majority of elderly people, it has become a lingering nightmare for Claudia.
What is even more frightening is that Claudia can only watch her skin become harder and harder, her hands deteriorate and deform, and she looks like a poultry paw, and then she received 6 courses of chemotherapy accompanied by her mother, experiencing hair loss, insomnia, nausea and other side effects, thinking that when she could finally see the light, fate joked with her again.
In 2018, Claudia's scleroderma recurred again, causing her respiratory system to be seriously affected, and during the treatment, she changed her previous sadness and became more positive and optimistic, and even comforted her mother: "Since you have reached this point, instead of complaining about the unfair fate, it is better to enjoy life, Mom, believe me, everything will be fine." ”
Relying on this optimistic and positive attitude to life, Claudia bravely fought against the disease, and wrote a book "Changing Life", describing her process from illness to long-term treatment, hoping to encourage those who suffer from strange diseases like her through this book, believing that in the near future, she will be able to create miracles! #硬皮症 #
