The picture shows Xiao Kai wearing corrective shoes.
Eight years ago, my son Xiao Kai was born, because his legs are not the same length, was diagnosed by doctors as osteogenesis imperfecta. The doctor told me: "This is an extremely rare genetic disease, the sick child is also called "porcelain doll", the slightest collision will cause serious fractures, if not treated in time, it is very easy to be disabled." "After listening to the doctor's introduction, I almost fell to the ground when I just got out of the delivery bed. Since then, I have taken my son around for medical treatment, and then I have washed his face, carefully put on his corrective shoes, helped him out of bed, and then let him slowly practice walking with the help of crutches, which has become a "compulsory lesson" for me to do every day.
My name is Zou Yan, an ordinary farmer in Zhenxiong County, Zhaotong City, Yunnan Province, the whole family farms for a living, and the elderly parents in the family suffered from severe rheumatism and hypertension and other diseases in the early years due to too much work. On weekdays, my husband and I work hard to save more money, treat our parents and take medicine, and let our family, who have worked hard all their lives, live a good life. Later, when I became pregnant, my whole family was very happy when they heard the news, and I prayed day and night for the health of the child in my belly. However, in May 2013, his son Tao Kai was diagnosed with osteogenesis imperfecta by doctors just after birth.
The picture shows me playing with my son toys.
Knowing that my grandson might be disabled and unable to walk, my mother fainted on a seizure of high blood pressure and spent three months in the hospital. My father was unable to come to the hospital to take care of his mother because of his leg and foot problems, and my husband had to work outside the home to maintain the child's expenses in the hospital. At that time, although I was still confinement, I still had the burden of taking care of my mother and guarding the newborn Xiao Kai all the time, worrying about his bumps and injuries.
The picture shows Xiao Kai practicing walking on crutches.
After staying in the hospital for a while, the doctor told me that it was no longer meaningful for Xiao Kai to continue to take medicine, and only surgery could be effectively treated, but the child was now too young to undergo surgery when he was older. I was relieved and took the child home to take good care of him, hoping that one day he would be healthy.
According to the doctor's advice, I never dared to leave my son for a moment, because one of the important symptoms of osteogenesis imperfecta is that it is very easy to fracture. However, even if I was very careful, Xiao Kai still had 2 serious fractures due to slight movement of his feet, and some small fractures with less displacement and less pain were even more.
The picture shows Xiao Kai lying on the bed studying.
Looking at the child's terrible screams of pain after each fracture, my heart was like a knife but I couldn't do anything, I could only stand by and kiss his face, constantly comforting him. Due to the child's right leg fracture many times, the difference in length between the two legs is getting wider and wider, and by the time he is 7 years old, the difference is more than 20 centimeters. The doctor told me that the child's bones are still developing, and the operation may not be too good, but if he does not have surgery, he may be disabled for life. The doctor's words made me feel like I was struck by lightning, did I really want to make my child disabled? If I am gone in the future, who will take care of him?
The picture shows Xiao Kai wearing thick corrective shoes on her right foot.
In 2019, considering the future of our children, my husband and I gritted our teeth, pawned out the valuable things in the house, and went to relatives and friends to borrow some money. A week later, with all our belongings, we hospitalized Kai and began to perform leg correction surgery for him.
Kai's leg correction surgery required an intramedullary needle deep into the thigh, which was extremely painful and had to be performed several times. After each operation, I was heartbroken to see my weak, pale son. Such surgeries have been performed 6 times in just one year. After several painful corrective surgeries, Xiao Kai's condition improved greatly, and his right leg was successfully extended by 6 centimeters. The doctor told me that the next step was to wear corrective shoes for a long time for leg correction.
I'm teaching my son to read.
The trauma of the operation has not yet healed, coupled with the thick and clumsy corrective shoes, Xiao Kai often feels breathless in pain when walking, and I can't help but keep encouraging him. I always think that although the current life is dark, I can still see a glimmer of light, as long as the child can persist and not give up, sooner or later he can walk like a normal person. However, my son's recovery road is far more difficult than I thought, and recently he accidentally fell while practicing walking, resulting in a leg fracture and was admitted to the hospital again.
The picture shows the lonely Little Kai playing with a toy alone.
The doctor told me that the child's right leg was fractured again, and he had to undergo surgery again immediately after being cured, and now the effect of corrective shoes could not meet Xiao Kai's treatment. Hearing this news, I instantly broke down. Eight years, eight years! We have lost our family to treat our children, and now we can no longer afford to continue the treatment. But I am not willing, do I have to fall short like this? I ran out of the doctor's office like crazy, breathing heavily in the courtyard, tears falling uncontrollably.
The picture shows Xiao Kai wearing corrective shoes on his own.
Under the comfort of my husband who followed me, I gradually regained my composure. My husband told me he had just made several phone calls to borrow money and that no one was willing to help us anymore. Hearing this, I couldn't help but cry again. Now that we are in debt and our son has to undergo surgery as soon as possible, I don't know what to do next. As a mother, I just want my son to walk like a normal person, won't this wish come true for me? Dahe native original works, unauthorized reproduction is prohibited.