Jimu news reporter Ke said
Photojournalist Huang Shifeng
"'Porcelain dolls' sound beautiful, but they are a more uncomfortable disease." Tang Ziyan so lightly described the osteogenesis imperfecta that had tormented her for 20 years.
At the age of 20, she is very petite, and she cannot live without a wheelchair, and she must be wary of fractures that may occur at any time, but Tang Ziyan always smiles at life. In the more than a month since enrolling in Wuhan Transportation Vocational College, Tang Ziyan has been surrounded by strong love, and she has also influenced everyone around her with an optimistic and sunny attitude.
Classmates pushed Tang Ziyan on campus
8 surgeries in 6 years
Tang Ziyan is a native of Jingzhou, Hubei Province, and was born into an ordinary family in Tanqiao Town, Jiangling County.
When Zi Yan was a child, her family found that she seemed to be "delicate" compared to other children, and she would cry out in pain when she touched it slightly, and she would cry for half a day when she fell. When I went to the hospital to take a picture of the film, the sore places were broken.
Later, Zi Yan's legs gradually deformed, bent like a sickle, and they were so thin that they could not walk at all. Since then, Tang Ziyan's parents have carried her around for consultation, and she has been diagnosed with osteogenesis imperfecta in the hospital in Tianjin.
In 2008, 8-year-old Xiao Ziyan underwent her first surgery, wearing steel nails in her leg bones. Tang Ziyan recalled: "I was still young at that time, I didn't feel afraid, but I just saw that my parents were crying, so I took their hands and told them not to worry." ”
However, bones grow as the body develops, so constant surgery is required to replace the right length of steel nails. From the age of 8 to 13, Tang Ziyan underwent eight surgeries in Tianjin, leaving dark brown scars of varying lengths on her legs.
After class, the students sent Tang Ziyan back to the dormitory
The biggest surgery Tang Ziyan underwent was a spinal correction surgery in Shenzhen when she was a sophomore in junior high school. At that time, her spine was severely curved, affecting cardiopulmonary function and possibly even life-threatening.
Before the operation, the doctor punched four 0.5 cm steel nails into Tang Ziyan's skull and adjusted the traction by hanging weights, reaching 25 pounds at the heaviest weight. What followed was a 14-hour major surgery that finally helped her straighten her spine.
"When she did skull traction, her hair was shaved. I burst into tears during the video call, but she smiled and comforted me, telling me not to worry, it didn't hurt at all. Tang Ziyan's good friend Liu Dani said.
No matter how difficult it is, you must also read
After undergoing large and small surgeries, Tang Ziyan was miraculously able to stand and walk slowly for a short time, but her daily travel was still inseparable from a wheelchair.
In order to cure the disease, Tang Ziyan's family, which was not rich, owed a lot of debts.
Her mother, Peng Qinmei, said: "We have two things, no matter how hard it is, we must persist." One is to see a doctor, and the other is to read. The child likes to read, so I reassure her that I will accompany her to school wherever she goes. ”
Peng Qinmei said that every time her daughter went to the hospital for treatment, she would bring her textbooks and homework with her and study as long as she had time. At the time of surgery in Shenzhen, there were volunteers to help her with her homework.
Tang Ziyan and her mother Peng Qinmei
Tang Ziyan's junior high school class teacher, Dong Gaojie, recalled that she had good grades in the first year of junior high school, and had always been the top three in the class, and once she also took the first place.
When Tang Ziyan was in the second year of junior high school, because she was hospitalized for surgery, she left too many courses and repeated the grade, but she never gave up studying, and once helped Teacher Dong to work for the students who were bored with school, advising them to cherish the opportunity and study well.
"The value of people is created by themselves, and we must believe that you are unique!" Whenever Tang Ziyan encountered difficulties, she would think of these words. These are the words that her junior high school ideological character teacher, Peng Hongxia, gave her a notebook after she scored a perfect score on one of the tests, and wrote down on the title page.
After arriving in high school, Tang Ziyan had just been in class for two months when she fractured her bones due to an accidental fall. Because of this hospitalization, Tang Ziyan's mathematics became a "lame" subject, and she specially took out the notebook to make mathematical notes to motivate herself.
In her third year of high school, Ziyan said that she felt that her waist hurt after sitting for a long time, and her hands were plastered for a long time. I persuaded her to go home and rest for a while, but she gritted her teeth and insisted. Tang Ziyan's classmate Liu Zhimeng said.
In the end, Tang Ziyan was admitted to the cross-border e-commerce major of Wuhan Transportation Vocational College. Tang Ziyan said that cross-border e-commerce is a sunrise industry, and it is more in line with her reality that she can work while sitting.
The school gave her a custom dormitory
After receiving the university notice, her mother Peng Qinmei cried with joy and did not sleep that night - she was happy for her daughter and worried that she would not be able to adapt to the new environment, as well as tuition and living expenses.
Tang Ziyan also saw her mother's concern, and she took the initiative to contact Yang Guifen, a teacher at the college, to explain her physical condition. "Don't worry, let's find a way." The promise on the other end of the phone reassured the mother and daughter.
Sure enough, the school not only agreed to Tang Ziyan's mother to accompany them to the school, but also arranged a special dormitory for them. "This is the closest dormitory to the school building and the library, which saves more than 10 minutes than the rest of our class." Tang Ziyan said.
At the beginning of the school year, the teacher went to the dormitory to care about the life of the mother and daughter
Jimu News reporter saw that this dormitory is close to the dormitory management duty room, and the original six-person room is dedicated to the mother and daughter. The school replaced the toilet squat toilet with a brand new toilet, and installed handrails on the walls. Shower water heater, wash basin all available.
"The care of the school is really meticulous, you see my bed has been modified." Tang Ziyan said that in order to ensure that she did not stumble on and off the bed, the master of the General Affairs Office sawed off the railing next to the bed and repainted it; there was a wooden board next to the door for wheelchair access; and even according to her height, the mirror was specially cut and mounted on the column.
The words of encouragement left by the sister
On the door of the dormitory and on the wall in front of the desk, there are several hand-drawn pictures with blessings such as "Welcome to the Wujiaoyuan Academy", "It is a pleasure to meet you", "May you have a happy three years of university". Tang Ziyan said that these were left by the sisters who helped them clean their dormitories at the beginning of the school year.
For Tang Ziyan's study and life, the school also made full consideration, arranged the classes in her class on the first floor as much as possible, and also set up a support group for her.
"At the beginning, the members of the support group were 3 people, and then all the students in the class became members of the support group, and there was no need to schedule at all, and every time after class, students took the initiative to help her push the wheelchair and take the bag." Squad leader Zhan Yuming said.
Peng Qinmei is doing cleaning work
Not only that, the school also arranged a cleaning job for Peng Qinmei. Usually, when her daughter is in class, she cleans the next bedroom building. Peng Qinmei said: "Although the salary is not high, it is timely rain for us. Schools are also helping to apply for tuition waivers and bursaries. ”
"Now everything is fine. You see, this is the network cable that the academy just helped install. I saw that other freshmen had computers in their dormitories, and I worked for two more months to buy one for Ziyan. Peng Qinmei said to the reporter with a smile, but his eyes were red.
Sunshine Girl warms her classmates
Now that the school has been open for more than a month, with the help of all parties, Tang Ziyan has long adapted to university life. The students said that they did not help Tang Ziyan much, but gained a lot from getting along with her and learned a lot.
"Sunshine, love to laugh" is the unanimous evaluation of Tang Ziyan by the students. Jiang Weican, who was at the same table, remembered that at the first class meeting of the school, It was Tang Ziyan who took the initiative to introduce herself on the stage.
Tang Ziyan is a girl who loves to laugh
Tang Ziyan has big talking eyes and usually likes to share her happiness with her classmates, but she never talks about the tribulations she has experienced. Jiang Weican still heard it for the first time because she accompanied Tang Ziyan to an interview, and she couldn't stop quietly wiping away tears.
Jiang Weican said: "Ziyan is two years older than us, usually like a sister, often reminding us to eat on time and not stay up late. Sometimes there were sports competitions in the class, and we were afraid that she would feel uncomfortable and wanted to accompany her to rest in the dormitory, and she also took the initiative to ask to go to the sidelines to cheer together. ”
The students said that because of Tang Ziyan, the entire cross-border e-commerce class is very united and friendly. Not long ago, on Halloween, the student class teacher specially brought candy to the students before Halloween. After self-study, the girl sent Tang Ziyan back to the dormitory, and received a small snack from Aunt Peng Qinmei.
Tang Ziyan in class
It is also because of Tang Ziyan that the learning atmosphere of this class is obviously better than that of other classes.
Tan Yixuan, secretary of the class group, said that Tang Ziyan was always engrossed in class, and sometimes she stood and listened to the lecture when she couldn't sit still. When the teacher asks a question, she is always the first to raise her hand to answer. "Seeing that she is so serious, how can other students be lazy?" Tan Yixuan said.
"She not only learns quickly and deeply, but she is also very organized and has leadership." Tan Yixuan introduced that not long ago, in the basic practical training course of management application, she had to compete in groups to simulate the company, and she and Tang Ziyan's group unanimously elected Tang Ziyan as the "general manager".
After a week of simulated operation, Tang Ziyan's "company" created a lot of revenue, but in the end it was ranked by profit, they took the penultimate first, and were fined for performing a show. Seeing the disappointed expressions of the members, Tang Ziyan showed her signature smile again: "It's okay, the responsibility is all on the 'general manager'." If we don't take this 'first', we haven't had a chance to perform a unique skill. ”
"College life is better than I thought before, I want to cherish the present, study hard, and the first small goal is to take the entrance examination." Tang Ziyan said that she also joined the new media center of the school's publicity department, hoping to be responsible for the operation of official micro-operations and record a beautiful campus life in the future.
Correspondents: Huang Jing, Wang Yunfeng
Source: Jimu News