My name is Ruan Ya, 33 years old, my family lives in a small mountain village in Shaoguan City, Guangdong Province, our family of 6 people, in-laws, me and my lover, and two children. My husband and I got married in 2012, and in October of the same year, the eldest son Lu Zibo was born, and in October 2019, the younger son was born. Since my in-laws are old and in poor health, and need to take medicine from time to time, I take care of the elderly and children at home!
At the end of November 2020, the eldest son Lu Zibo got up in the morning and vomited and was weak, my husband took him to the hospital for gastroscopy and blood checks, the test results were chronic gastritis and anemia, we immediately went through the procedures, and then we were hospitalized, and after blood transfusion and injections, the child's condition improved.
However, near the New Year, the child had vomiting and anemia again, general weakness, and gradually emaciated, so in mid-February 2021, we took him to Wuhan Tongji Hospital for a lot of examinations. After waiting for the results to come out, the doctor said that my son was diagnosed with myelodysplastic syndrome - EB2 - and must have a bone marrow transplant to be cured.
At that time, I felt that the sky was falling, and I couldn't believe that this kind of drama, which only appeared in TV dramas, actually happened in our ordinary family, our children were so innocent and cute, and their bodies were stronger and taller than children of the same age. He grew up in good health and rarely got sick, let alone seriously ill. I did not dare to face this reality for several days, hoping that it was a misdiagnosis, but with the series of examinations in the future, the final result was still the same, and the doctor recommended treatment as soon as possible, otherwise it would delay the condition!
In order to be treated as soon as possible, my husband decided to accompany the children to the hospital for treatment, let me send my young son home to be cared for by my in-laws and mother-in-law, and then return to Wuhan to accompany them. In order not to let me see the pain of the child's chemotherapy and injections, my husband insisted on taking care of the child in the hospital. Since the child was admitted to the hospital, he began to have chemotherapy every day, injections, blood draws, and his arms were all blue and purple.
Because of the chemotherapy, the son began to lose his hair, his appetite was not good, he always threw up when eating, and his husband changed the law to coax him to eat every day. During the treatment period, the doctor also issued several critical illness notices, saying that the child's condition was serious, the development was too fast, there was a serious infection after chemotherapy, the fever was high to 40 degrees, the fever injection and various antibiotics were given for several days before it was withdrawn, and there were rashes and various symptoms of discomfort on the body.
After surviving the first round of chemotherapy, one day the child asked dad, when can we be discharged from the hospital? In order to let the child not have a burden of thought, we said to him, your anemia is a bit serious, you need to be treated here for a period of time, cured, we can be discharged. Slowly the child is also more cooperative with the treatment, at the same time, the doctor told us that to match as soon as possible and put together the cost of the transplant warehouse, it takes about 300,000, if you add the follow-up anti-infection and anti-rejection treatment costs, at least prepare about 500,000.
My husband and I are ordinary rural people, before the children did not get sick, I took care of the elderly and children at home, my lover is also an ordinary migrant worker, my father-in-law still needs to take medicine all year round, we have no savings, and we owe some foreign debts. In order to treat the child, we sold everything that could be sold at home, the father-in-law picked up scraps at home to subsidize the medical expenses, we borrowed all the money of relatives and friends, and finally collected the operation fee for the warehouse!
In late March 2021, my son successfully entered the transplant warehouse, and after 36 days in the transplant warehouse, we successfully left the warehouse. After leaving the warehouse, there was intestinal discharge, began to fast food and water, infused nutrient solution every day, and people were thinned into skin and bones, which was painful to watch. After more than a month of difficult treatment, the child finally got better and reached the standard of discharge, and we returned to the rental house for conditioning.
One day the child asked me if he would soon be able to go home to school. He said he missed his classmates and wanted to go to school with them. But who knows, God gave us another blow: when the bone marrow puncture was rechecked in three months, the child had bone marrow residue again, which was an early recurrence. Hearing this news, I collapsed at that time, we have gone through a lot of hardships and do not know how many painful days have been endured, only to come to this step, and now there is a situation, are our previous efforts in vain? Is the road ahead of us going to be repeated again?
Now, the son has done two more re-infusions, followed by immunotherapy and anti-rejection therapy. And the cost of treatment, our family really can't afford it. In the past, in order to treat our children, we had already found relatives and friends to piece together, and now they did not have the financial ability to help us.
In order to earn money to treat his son, my husband used his mobile phone to live stream the goods every day after busy with the children's affairs, but the live broadcast with the goods for more than 20 days, and only earned 510 yuan 9 Mao 2, which is not enough for the son's oral medicine money for a day.