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Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

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Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

Late at night, in a small rental house in Zhaotong, Yunnan, looking at his son who was already asleep on the bed, Chen Shencai almost did not dare to take a deep breath, afraid of waking his son up. She gently took out the hidden elastic cord and carefully tied herself and her son together. Since her son fell ill, Chen Shencai can only sleep 2 hours a day. From time to time, her son would be woken up because of poor breathing, sometimes he couldn't get up in one breath, and his small face was so red that she needed to immediately pat her son, so Chen Shencai couldn't sleep almost all day. Staying up late for a long time, Chen Shencai sometimes couldn't control it, lying on his son's bedside and squinting slightly. The picture shows Chen Shencai and his son Xiaoyu.

Chen Shencai's act of "tying" his son has been repeatedly staged in the past two years. Because only by tying her son to herself can she "save" her son at the first time.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

Chen Shencai, 28, lives in a small mountain village in Zhaotong City, Yunnan Province. In 2016, she and her husband Niu Jiakuan met each other, and it was not long before the two fell in love and married. The picture shows Xiaoyu's appearance is very cute.

Soon after the marriage, Chen Shencai became pregnant. On August 19, 2019, Chen Shencai went to the hospital for prenatal examination at the 39th week of pregnancy, and the results found that there was insufficient amniotic fluid and the child in the abdomen also had an umbilical cord around the neck. The situation is urgent, Chen Shencai can only choose to give birth to a son by caesarean section. In the midst of uneasiness, his son Niu Haoyu fell to the ground.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

But what she didn't expect was that Xiao Yu was discharged from the hospital and returned home, and bad luck could not wait to come. Chen Shencai gradually found that his son did not sleep all day, sleeping less than 2 hours a day. Until Xiaoyu was 1 year old, the situation not only did not improve, but also intensified. I don't sleep every day, I cry all the time, and I even have symptoms of my head not standing up and my feet turning outward. Looking at her skinny son, Chen Shencai was anxious, and she began to take her son around to seek medical treatment. The picture shows the mother Chen Shencai massaging her son Xiaoyu.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

However, Chen Shencai and his son ran all over the surrounding hospitals, large and small, but they could not find out the cause of his son's illness. At this time, Xiaoyu's symptoms are becoming more and more obvious, every day when sleeping, he will be woken up because of poor breathing, holding his breath more and more severely, and often appear for several minutes without normal breathing. Xiao Yu was too young, and when he was woken up, he could only express his discomfort by crying, he clutched his throat tightly, and stared at Chen Shencai with tearful eyes, as if to let his mother save him. Seeing his son uncomfortable, Chen Shencai's heart was broken, and he could only slap his son's back vigorously, and there was no other way. The picture shows the mother Chen Shencai accompanying her son Xiaoyu for treatment.

It was not until March 2021 that Chen Shencai took her son to Kunming Children's Hospital, and the doctor checked out congenital muscular dystrophy, which led to emaciation and muscle atrophy, poor breathing all night crying and not sleeping, also because of this disease, and this disease is complex and difficult to be treated, and the doctor recommended that she be transferred.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

Chen Shencai suddenly collapsed after hearing the doctor's words, and she couldn't understand why this cruel disease appeared in her son. She couldn't control her emotions any longer and cried loudly. Relatives and friends who got the news also rushed to the hospital, some people said that as long as they try their best, some people advised her that this disease is a bottomless pit, and in the end it is very likely that people will have two riches, and the whole family will be dragged down, she and her husband are still young, and they can have another one. The picture shows the mother Chen Shencai teaching her son to recognize the picture.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

Countless figures swayed around Chen Shencai, and countless voices buzzed in her ears, but she couldn't see or hear them, and at this time there was only her son in her world. Just at this moment, Xiao Yu also turned his head and smiled at his mother, and Chen Shencai's tearful face also smiled. She said softly to her son: "Mom is here, you are here, you are Mom's son, and mom's only son." It was also from this moment that Chen Shencai faded her innocence, and this young post-90s girl chose to use her thin shoulders to support her son's hope for life. The picture shows Chen Shencai worried about the condition of his son Xiaoyu.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

Subsequently, Chen Shencai and his relatives and friends borrowed a large amount of money and embarked on a journey to Beijing to seek medical treatment. After Chen Shencai arrived in Beijing several times, he immediately rushed to the hospital, but after running seven or eight hospitals without results, Chen Shencai's heart was like ashes, and he stood alone with his son in a daze in the crowd of people. Just when she was desperate, someone recommended an expert from Peking University Children's Hospital to her, and Chen Shencai seemed to grasp the straw and immediately took her son to find this expert. The picture shows Chen Shencai taking care of her son Xiaoyu.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

"The child's condition is very serious, but as long as he can insist on rehabilitation, there is a great chance of treatment." The doctor's words gave the desperate Chen Shencai hope, but the cost of rehabilitation treatment was very high, tens of thousands a month, which was simply not something she could afford. However, she was unwilling to give up the hard-won opportunity in this way, and with the help of the doctor, Chen Shencai took out the only 200 yuan left on her body to learn a rehabilitation course for her son and returned home. The picture shows Xiaoyu receiving treatment.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

Because Xiaoyu could not sleep, since treating his son, Chen Shencai had never slept completely once, almost always resting on his stomach next to his son's bed. Since taking care of his son, several times Chen Shencai really couldn't stay up, and slept next to his son, causing Xiaoyu to almost be in danger due to breathing stagnation several times, and even several times was sent to the hospital for rescue. Chen Shencai thought of many ways, binge-eating peppers, and even pricking himself with needles, but he still couldn't control his drowsiness. She had to tie herself to her son so that she could be treated as soon as he was in danger. The picture shows the mother Chen Shencai taking her son to read a picture book.

At this time, the rehabilitation treatment course pinned all of Chen Shencai's hopes. When she got home, she watched the course video over and over again, learning it over and over again. Give your child head control exercises every day, exercise the arms, and massage the ankles. After a while, Chen Shencai was pleasantly surprised to find that his son had really improved and could already sleep a little more than in the past. Chen Shencai is more eager to take his son to a professional hospital for rehabilitation training, so that his son will usher in real hope.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

In June 2021, Chen Shencai got the news that there is a rehabilitation hospital in Zhaotong that can waive part of the treatment fee, and the treatment effect is very good. This is undoubtedly great news for her, and she immediately took her son to go through the hospitalization procedures at Zhaotong Hospital. In order to better accompany her son for treatment, she rented a small room next to the hospital, accompanied her son every day to do acupuncture, physiotherapy, cognition and other courses, and came back in the evening to train her son. The picture shows the mother Chen Shencai helping her son Xiaoyu exercise and walk.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

Because Xiaoyu's body is too emaciated, the doctor recommends drinking special milk powder to provide nutrition for the child, but a can of special nutritional milk powder costs 318 yuan, and can only eat for 4 days. In order to have money to buy milk powder for her son, Chen Shencai began to demand herself more harshly, in order to save the bus fare, she carried her son to the hospital every day, ate a meal every day, and it was just a simple steamed bun pickle, so little by little she accompanied her son in the hospital for treatment. The picture shows Xiaoyu on the hospital bed.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

Chen Shencai never felt bitter and was full of hope every day. Fortunately, the suffering was not in vain, and after treatment, Xiaoyu recovered better and better. Not only have I gained weight, but I have grown taller, I can already walk alone for a short distance, and even my sleep time has increased than before, although I will still be woken up, but the time to hold my breath is getting shorter and shorter. Chen Shencai finally saw hope, she felt that she had persisted for so long, and although she had suffered all the hardships, she felt that everything was worth it. However, she also faced the biggest problem, the family was already in debt, and her husband's meager salary alone could not afford Xiaoyu's subsequent treatment costs. The picture shows Chen Shencai's mother and son in the hospital.

Boys suffer from rare diseases, and their mothers after 90 only sleep for 2 hours a day, and they dare not let themselves fall asleep when they eat peppers

"It took my son a long time to usher in hope, do you have to watch the loss?" My husband desperately delivered to people, delivering them to midnight every day, but he couldn't even earn half a can of milk powder money for his son, and I really didn't know where the cost of my son's treatment would come from next. Chen Shencai said with tears in his eyes, his voice full of despair. The picture shows the mother Chen Shencai playing with her son Xiaoyu.

If you want to help your child, please go to the Tencent Charity Donation link: [Rescue Xiaoyu who can't sleep] You can also go to WeChat - Pay - Tencent Public Welfare - Search [Save Xiaoyu who can't sleep] to complete the donation. Original works, it is forbidden to reprint in any form, infringement will be investigated!

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