Aftermath
Cao Fenghong recently went to school to see her son Zhenzhen and received a slightly dissatisfied reply from the child. "Mom, if you look at the parents of other classmates, none of them still come to see their children between classes, I have to take advantage of this effort to make up for the notes, and you will not come later." Cao Fenghong was still relieved and instructed, "Then you must remember that you must get up and stand for a while after class, and you can't sit all morning." ”
(Vibration of still writing homework between classes)
Zhenzhen has always been sensible, but over the years, Cao Fenghong still has worked too much for her son.
She vividly remembers those sleepless nights 16 years ago. The child was born prematurely, just after birth, he was sent to the rescue room, and after turning the crisis into safety, he stayed in the incubator, and the next day the nurse thought that there was no situation, so he pulled out the oxygen tube. After a while, the child was bruised and appeared with obvious symptoms of suffocation, and was quickly sent to the city hospital, where he lived in the intensive care unit for more than a month.
After the rescue, the reply waiting for it was not satisfactory, "the rescue is saved, but there will be many problems in the future."
At that time, Cao Fenghong only felt the joy of the rest of her life, and did not know the fate of the child and the family.
When Zhen Zhen was one year old, he could not turn over and talk, and his head could not stand up. The family was in a hurry and took them to the hospital. In the mouth of the doctor at Cangzhou Hospital, the Zhenzhen family heard a clear diagnosis: cerebral palsy.
Moreover, it is moderate to severe spastic biplegia. To put it simply, the child's upper and lower body have problems, not that they cannot move, but that they do not move obediently, "as soon as the arm moves, the leg moves." "The damage to the brain nerves caused by biplegia is permanent, irreversible, there is no drug treatment, and patients can only recover little by little by surgery and rehabilitation.
This is not the most serious problem of vibration. Unlike children with cerebral palsy in general, his spine is dysplasia, with two adhesions to the left sternum and one undeveloped sternum on the right, which causes him to always look high and low on the other. "There are not many of these severities in the whole country."
In 2010, Cao Fenghong had been treating her child in Beijing for several years — in those years, Peking University Maternity and Children's Hospital (Peking University First Hospital), Peking Union Medical College Hospital, Beijing Children's Hospital, and those well-known hospitals in the country, she almost looked for all the rehabilitation teachers she could find.
In fact, her economic strength at that time was quite good - running a small hardware factory, was a factory owner, did not have many workers, but had a lot of money, had a car and a house, and could afford a good rehabilitation in the country.
But a few years later, the money was spent, and the child's effect was very slow. The most important thing is that the child's optimal recovery period is also consumed a little bit in the waiting.
(Cao Fenghong is rehabilitating Zhenzhen)
Cao Fenghong was anxious, walking around the building of the China Rehabilitation Research Center every day, not daring to rush out, and afraid that the "parents" who were too active were medical trusts. Once, she overheard a conversation between three or two parents and accidentally learned about Li Xiusong, a rehabilitator. At that time, Li Xiusong was just a young guy who had just graduated from college for a few years, but the most important thing was to have an effect and a small reputation in the parent group.
Hearing the satisfactory result, she asked her parents for Teacher Li's phone number and called several times.
"Teacher Li, if you can't open it, is it okay to give my child a simple assessment first?" Or if you look at which child is sick one day, you can also take the time to come to me to see the child. She persevered, "every day to beat me and I am afraid that the teacher is annoyed, just fight every two days", tactical "harassment".
Li Xiusong finally agreed. He later lamented that he was a newborn calf who was not afraid of tigers, "still young, not long after leaving the campus, not so big baggage." I thought, let me try it."
Twelve years
Within a few lessons, Cao Fenghong saw the curative effect. It was as if I had struggled for a long time in the vast sea, and finally saw the life-saving log.
(Li Xiusong's apprentice is giving Zhenzhen a rehabilitation lesson)
"Teacher Li, can you get up early and add a little to our children?" It was hard to see the child's little progress, afraid that Li Xiusong would not agree, Cao Fenghong's voice was already tinged with crying.
"The child is so young, can he get up?"
"Yes! I can get up, and so can the child. ”
Since then, every morning at 6 o'clock, Li Xiusong can be seen in an old residential area in the southwest corner of Beijing.
Cold and summer, day after day, this run is nearly 12 years.
The rehabilitation training of every child with cerebral palsy is a systematic project, and it is even more arduous for Zhenzhen.
In this process, Li Xiusong slowly discovered that Zhenzhen was still a blind child, more precisely a congenital cataract patient. Perhaps afraid that Li Xiusong would not agree, Cao Fenghong did not confess to him at first, until he found that the child changed glasses frequently.
He later learned that the child, who was less than 6 years old, had undergone 3 surgeries. Two cataract surgeries, one spr surgery (selective spinal nerve posterior root severance). After the operation, Zhenzhen often wears special waist guards and special glasses, but even if he wears glasses, he must type the words to the maximum extent when he looks at things.
In the first month, Li Xiusong curled up the child's legs and straightened them, then curled up and straightened again, practiced hooking his feet, rubbed the back of the thighs and calf muscles, and then repeated them continuously, and then increased the intensity, slowly, Zhenzhen was able to try to sit on the stool and sit on the floor by himself.
Two years later, 7-year-old Zhenzhen finally sat up.
(Vibration in skating)
"A rehabilitation expert in Japan once concluded that if a child with cerebral palsy can sit up at the age of 2, then he has a 90% chance of being able to walk in the future." Li Xiusong repeatedly stressed, "The stability of the upper torso is quite important, people can walk, in fact, it has a lot to do with the stability of the trunk, but the vibration situation is very special, he is exactly the trunk problem is very serious, this is the biggest problem encountered in the whole rehabilitation process." ”
"When people are nervous, their chest and limbs are forced, and he uses his chest for a long time, and he has a very serious chest problem." Learning to use abdominal abilities may only take six months to a year for other children, while Zhenzhen takes six or seven years.
"Rehabilitation training is actually about enhancing children's functions and correcting abnormal patterns, including a series of movements and movements, so that they look as similar as possible to ordinary people."
But how easy is that? As a rehabilitator, Li Xiusong is the leader of the entire rehabilitation process, and it is Cao Fenghong who has led him to persevere all the way.
"The eldest sister is really the woman I have ever seen with the most perseverance, 'cruel' to herself, but also to the child's 'fierce'", he said of this "old friend" who has known her for more than ten years.
Every morning at 5:30, it is Cao Fenghong's time to get up without moving. After getting up, she first massages the child, relaxes the limb muscles, takes the child to review the previous day's movements, sits on the edge of the bed and kicks her legs hundreds of times, and kicks her legs hundreds of times. It's like this every day, and the cycle repeats itself.
"Zhenzhen is also very competitive, as strong as his mother."
(Cao Fenghong and Zhenzhen)
Over the years, mother and son have never dared to sleep a lazy night, even if it is a rest day, they wake up early. But the child is a child after all, the training is tired, the eyes began to fall "golden beans", Cao Fenghong looked in the eyes, but did not show it.
She yelled at him, "Then let's go home!" It's gone! Don't walk, just go home and stay inside the house! I should go to work myself, what to do! Zhen Zhen saw this and sobbed and coaxed his mother, "I don't want to stay at home by myself." Mom, I change, I practice well, you don't get angry, okay? ”
"There are no shortcuts to the rehabilitation process, it's very boring, it's tedious." Li Xiusong has handled tens of thousands of cases of cerebral palsy and developmental delays, and he knows too well how much these children and the families behind them have to pay.
marvel
The 3rd and 4th years of recovery are a hurdle, and many families will stop in the air of endless suffering and expectation again and again.
(Do a physical examination before rehabilitation exercise, Zhen Zhen is collecting blood)
Cao Fenghong saw that many parents around her were like this, but she didn't want to. "Once you give up, the child is not saved, and all the efforts, all the sufferings you have suffered, are all in vain."
She didn't give up on her children, but she gave up other important things in life, such as work, such as family. Because she could not take care of the factory, she was forced to close the factory and sell it, and all the money from the sale was used for the treatment of the child. Her relationship with her husband also went wrong. For many years, cao Fenghong basically lived alone with her children.
"What kind of strength do you think has supported you for so many years?"
"It's just a little progress of the child, seeing the child's progress, I don't want to give up anyway."
"Never thought about it?"
"Yes, even in the hardest of times."
Those difficult moments Li Xiusong all looked in his eyes. Sometimes when he saw the child's situation repeated, he also felt that the road ahead was too bumpy, so he advised her, "Or go home?" ”
"Why do others say that, even you?" Cao Fenghong was not happy, "Wait a minute, just wait until the child can get up on his knees." Then it becomes "Wait, wait until the child can stand up", and then it becomes "Wait, wait until the child can walk".
Just like this, day by day, finally let the three people see hope.
"Three or four years ago, Zhenzhen walked for the first time, walked 7 parking spaces, and made his mother very happy, which was particularly exciting that day." Li Xiusong remembered that at that time, they were training in the community with Zhenzhen in their arms, and they did not walk long, but every step was stepped on everyone's heart, and one foot and one foot stepped on the happy flower.
(Zhen Zhen practicing walking)
After the excitement, it is an exercise that increases the intensity. Cao Fenghong and her son walk from the 1st floor to the 18th floor every day, go up one step at a time, and then take the elevator down. After repeated practice, Zhenzhen can now walk on her own by relying on the walker, although it is not long, but it is like the dawn before the dawn, illuminating the future life path of her and her son.
"It's a miracle in the rehabilitation world." Cao Fenghong's mother and son were the only patients Li Xiusong had taken for more than 10 years.
She is both an ordinary mother and a hero. "A lot of people say you're the one who makes miracles. I said no, the child's mother is, she is the one who creates miracles. ”
In the last few years of rehabilitation, Cao Fenghong's family foundation was gradually hollowed out, and over the years, she put all her time, money, and energy on her son, spending nearly two million. After the source of income was cut off, the books were only in and out, and her life with her son became more and more difficult.
"More than ten years ago, I remember that the eldest sister's economic situation is very good, you can also pick up the car to send children, and then see that it is getting worse and worse, the mother and son have been living in a rental house of seven or eight square meters."
I forgot that since then, Cao Fenghong and Li Xiusong tacitly never mentioned the rehabilitation fee again. Later in the course, Li Xiusong began to volunteer to teach Zhenzhen.
"When I first met my eldest sister and Zhenzhen, I was still a hairy guy, and now I am the father of an 8-year-old child. Zhenzhen was the one I grew up watching, and as soon as the summer vacation came, he came to play with my children, just like my own son. ”
(Li Xiusong is treating other children)
How can you charge your loved ones? Li Xiusong couldn't do it.
In this way, a mother who never bows to fate, a rehabilitator who "generates electricity for love", together hold up the future of a child with moderate to severe cerebral palsy with a vision of only 0.1.
Born like a reverse brigade
With zhenzhen's body getting better, everything seemed to be moving in the best direction, but Li Xiusong knew that it was not so smooth.
"I think he's reached an extreme now."
Li Xiusong said frankly, "We have always said that the ultimate purpose of rehabilitation training is to hope that these children can integrate into society in the future, have a certain degree of self-care ability, and can live in this world with dignity, but now it seems that he still has a long way to go from this goal." ”
(Zhenzhen participated in the activities of non-profit organizations)
Because of visual impairment, vibration is extremely sensitive to sound. Before, he could not hear the sound of the emergency brakes of the bicycle, as long as he heard it, he would reflexively fall backwards, and then Li Xiusong deliberately rode the bicycle next to him to ring the bell and brake sharply, Zhenzhen knew to "scold" him "bad uncle", but finally got used to it, even if he fell, he could control his own forward fall, "two arms can still support."
Life's problems ensued.
Even if Cao Fenghong trained himself to dress himself, wear socks, eat with chopsticks, go to the toilet by himself, and cook some simple meals, every little thing that ordinary people think has become a skill that needs to be mastered by repeated training. For example, he still has a hard time crossing the street on his own.
(ZhenZhen eats with other children)
But Zhenzhen has a lot of energy in his heart, and the optimism in his personality is both brought by his bones and the elements of his mother's words and deeds.
Li Xiusong remembers that Zhenzhen was also a host at the party held by the rehabilitation center when he was a child, and he also said cross-talk, had a cheerful and generous personality, and liked to talk to people.
In order to exercise Zhenzhen's courage and self-confidence, Cao Fenghong will take him to the mall and park every Sunday. When she was young, she carried him in a homemade car, and when she was older, she pushed the wheelchair out, and when she moved, she was often sweaty, which was harder than exercising at home, but the effect was remarkable.
(On weekends, Cao Fenghong took the children to play in the Temple of Heaven Park)
Before some parents deliberately joked about Zhenzhen, "Look at you, walking so ugly, the eyes are not good." He wasn't angry, and he smiled and said, "I'm the most beautiful man in the world." ”
"I said you have to have self-confidence, it doesn't matter if you can't walk, what we should do, we can do what others will do, we can go where others can go." 」
Born like a reverse journey, how much suffering fell on this child and Cao Fenghong, how much energy burst out.
Not long ago, Li Xiusong brushed a circle of friends in Zhenzhen: "God has not let me die so far, how can I not try to live." Between the words, it was like his mother who did not accept defeat.
When the epidemic came in 2020, Cao Fenghong finally returned to her hometown with her son. She sent her son to a regular school. Although he had also asked for a tutor for Zhenzhen before, his cultural classes were still much behind his peers.
However, she found that her son especially liked to listen to the news. Because of his eyesight, Zhenzhen has formed the habit of listening to the news with the radio since he was a child, and now that he is older, he is particularly willing to talk about national events and social insights with people, and even secretly has an ideal target college in his heart - China University of Political Science and Law.
Cao Fenghong felt that the goal of her son was too ambitious and too difficult to achieve, but she was not good at discouraging his enthusiasm, and only let him pay more attention to his body in school and not sit for a long time.
In this story, What Li Xiusong admires most is the gap in Cao Dajie's life and the ten years of continuous efforts. "A person once had such a beautiful life, but in the end he fell into the dirt for the sake of his children. How big the gap is, it is difficult for anyone to really understand. ”
But the indomitable mother said that the biggest regret in her life was that "I shouldn't have sold the factory so that the child still has money for follow-up treatment, after all, this is another big expense."
Now, Cao Fenghong is no longer able to support Zhenzhen to continue rehabilitation. She hoped that her son would learn knowledge as soon as possible, make up for cultural classes, and learn a technique she liked, but Zhenzhen was still too far from this goal. After gritting her teeth and walking through a long and difficult road, Cao Fenghong was even more reluctant to give up, she knew that now this was the common expectation of her and her son.