8-year-old Lele
Have a rare disease spinal muscular atrophy (SMA)
Due to family financial difficulties
Only intermittent treatment for 12 days, in Ningbo Women's and Children's Hospital in Zhejiang Province
Lele was treated with Nocinasin sodium injection
He became the drug after a sharp price cut was included in Medicare
The first patient in Ningbo to benefit
"Sky-high drugs" are included in medical insurance
Nearly 700,000 yuan per needle fell to more than 30,000 yuan
By estimate
China's neonatal SMA patients add about 30,000 new patients per year by 1,200 people
Northinalsan sodium injection
It is the first imported drug approved for treatment in China
When entering the Chinese market
The price per needle is nearly 700,000 yuan
This is undoubtedly a sky-high price for patients
Drug negotiation site in the 2021 Health Insurance Catalogue
Zhang Jinni, negotiator of the National Medical Insurance Bureau
Repeatedly discuss prices with corporate negotiators
Be a negotiator for businesses
The first round of quotation is 53680 yuan per bottle
Zhang Jinni said bluntly
"We want companies to offer in the first round
We must show the greatest sincerity
Every small group should not be abandoned."
Every round of quotes since then
Zhang Jinni will use the word "effort" throughout
"You have to do more
Really don't want to have a lot of routines"
"In the thousandth, you still want it
Not a particularly small effort to do "...
After a long negotiation of one and a half hours, the representatives of the company left the table eight times to negotiate the final transaction price of each bottle of medicine
More than 20,000 yuan less than the initial offer
"Today is the day when Lele regains its new life!"
Lele born in 2014
Since the beginning of the toddler
It has an abnormal gait and falls easily
In 2018, Lele's illness worsened
The legs can't be opened, the feet can't be lifted
It was diagnosed with the rare disease SMA
Actually, back a few years ago
The Lele family knew about this special medicine
But the sky-high price of 700,000 yuan a needle
Let them "hope for medicine"
Until the "sky-high price drug" was included in medical insurance
The family has ushered in hope
On January 12, Lele said before receiving injection treatment
"I'm not afraid of needles
Be a brave man."
"Needles, thoughts, thoughts, thoughts, ten thousand thoughts."
As long as the injection is given, I agree to anything."
The day of receiving treatment
Lele's uncle said
"Today is the day when Lele regains its life"
"Every small group should not be abandoned"
Come on! May Lele recover soon
Source: CCTV News WeChat public account (ID: cctvnewscenter) comprehensive Ningbo Evening News