Recently, there is a father and son in Wenjiang, Chengdu, Sichuan, who frequently appear on hot searches, and stage a Chengdu version of "Ocean Paradise" on them. What brought the father and son into view was a video of "selling toys". The father in the video encourages his son to "peddle" the toys in his arms to strangers, and every time the son communicates with the people around him, the joyous laughter of the father will be heard in the video.
Xuan Xuan selling toys The image in this article was provided by the interviewee
The teenager who "sells toys", named Xuanxuan, is 13 years old and is an autistic person. The father, who only hears his voice and does not see him, is named Gan Qiang, who is 45 years old and is a full-time father.
On December 15, Gan Qiang was interviewed by a reporter from the New Yellow River, telling the story between him and his son from the perspective of a father.
On a sunny day, his son was diagnosed with autism and cerebral palsy at the age of 1 and thalassemia at the age of 7
"When Xuan Xuan was 3 months old, we were aware of his abnormality, his eyes were still very blurry, his hands did not have the grip, he did not laugh much, he did not cry, and his neck was always tilted to one side..." Because Xuan Xuan was still young, Gan Qiang and his wife did not care too much, they felt that the child was abnormal but felt that there would be no problem.
It wasn't until Xuan Xuan was 8 months old that he had a seizure, when he and his wife really realized that the child's body might be sick. According to Gan Qiang's recollection, the 8-month-old Xuanxuan epileptic seizure was half an hour, and he had to smoke every few minutes. They sent Xuan Xuan to the hospital for treatment, and the condition was controlled but the treatment effect was not optimistic. Until Xuan Xuan was more than one year old, he was diagnosed with autism and was accompanied by mild cerebral palsy. "We looked at a lot of relevant information and felt that it was indeed consistent with his autism symptoms. But we still don't want to believe that our children have autism. "This unfortunate news is a thunderbolt on a sunny day for the strong couple.
After Xuan Xuan was diagnosed with autism, Gan Qiang decided to start intervening with Xuan Xuan, and they sent Xuan Xuan to a professional institution for rehabilitation, and the whole treatment lasted for 5 years. Due to the high cost, The husband and wife had to go to work, so they let Xuan Xuan's grandmother take care of Xuan Xuan. The whole family revolved around this child, and at the age of 6 and a half, Xuan Xuan left the rehabilitation institution and transferred to the local public special education school to start schooling. But when Xuan Xuan was 7 years old, he was diagnosed with 'thalassemia'. ”
Throughout his childhood, Xuan Xuan struggled with the pain of the disease, "He was very irritable, and he would also have self-harm behavior, hitting the wall with his head, grabbing himself with his hands, and grabbing himself with one hand." He doesn't speak and is completely immersed in his own world. For Xuan Xuan's behavior, Gan Qiang was both painful and helpless.
Full-time companionship, helping children go to the toilet independently for ten years
"Before 2019, Xuanxuan was basically taken care of by my grandmother, my job was in Chongqing, and every weekend I would come to Chengdu to accompany him, so I would go back and forth between Sichuan and Chongqing." In order to give Xuan Xuan better companionship, in 2019, Gan Qiang quit his job and took care of Xuan Xuan at home full-time.
"It took ten years to help Xuan Xuan go to the toilet independently, and it took eight years to help him brush his teeth independently." Every small change in the child comes from ten years of perseverance. Gan Qiang shared his daily life with Xuan Xuan on Douyin. The 45-year-old father patiently accompanied the child from the stars.
Xuan Xuan and his father are undergoing physical training
Gan Qiang attaches great importance to the cultivation of Xuan Xuan's living habits and behavior habits, getting up at 6:30 every morning, conducting physical training, going to school on time during the week, and arranging a series of activities for Xuan Xuan on weekends. Under the guidance of Gan Qiang, Xuan Xuan has mastered simple life skills such as sweeping the floor, taking express delivery, buying things, cooking rice, washing dishes, folding quilts, etc. Addition and subtraction within two digits can be calculated verbally, and the language expression is not fluent, but the text Xuan Xuan within the third grade can read through. Not only that, Xuan Xuan also learned to swim, climb rocks, roller skate, play the piano... At the age of 10, Xuan Xuan passed the Piano Amateur Grade 10 exam.
In The strong Douyin video, there is a piano song played by Xuan Xuan for the fan sister who is about to get married, reveling in the beautiful music, and it is difficult to imagine how much hardship has been paid behind this.
Xuan Xuan played the piano thanks to his grandmother, Xuan Xuan's hands could not move normally, grandma helped Xuan Xuan practice the piano with one finger at a time, at first with one finger to play, skilled and then two fingers to cooperate, just like this, little by little, slowly, Xuan Xuan's hands became flexible. Since the age of 5, he will be given two hours of practice time every day. Gan Qiang believes that the piano is the best rehabilitation training, not only to exercise Xuan Xuan's hands, but also to exercise his brain response and the coordination of his feet and body. At the same time, it can also improve his hearing and concentration. While playing the piano, Xuan Xuan's mood was also very stable. The piano should be able to read the score, and this is also a window to exercise his comprehension ability. In Gan Qiang's view, it doesn't matter whether Xuan Xuan plays well or not, what matters is that he insists on playing, and the good news is that Xuan Xuan's piano plays very well.
Xuan Xuan and his family
Share your life and guide your son to rely on himself to take care of himself
Gan Qiang and Xuan Xuan's daily life are posted on Douyin, they have 710,000 fans, received 12.4 million likes, and the life records of those Gan Qiang and Xuan Xuan have inspired many people. Gan Qiang will also share with fans how to help autistic children do rehabilitation training, and his optimism and persistence are the keys to Xuanxuan's better growth.
"I will set up some 'topics' on a regular basis to help Xuan Xuan improve his self-care ability in life, taking him to sell things is one of the lessons, he does not know the meaning of buying and selling, so I will help him understand through some practical methods." Gan Qiang will also take Xuan Xuan on a trip, "The real meaning of traveling is to get more information by making him accept new things." Looking at the outside world, it's good for him."
Xuan Xuan learned photography
With the joint efforts of the whole family, Xuan Xuan's autism has improved greatly. He is no longer just immersed in his own world, he will bravely communicate with strangers, and he will no longer panic after crossing the street alone to find his father. Xuan Xuan in the ganqiang shot loves to laugh, and among his few languages, thank you is the word he says the most. This cute teenager who knows how to be polite is growing up day by day, and the family is deeply pleased with Xuanxuan's every progress, and they are also getting older day by day in the process of growing up with Xuanxuan.
"It is never possible for Xuan Xuan to live independently. Therefore, I hope that Xuan Xuan will be able to take care of himself basically before the age of 20, learn to communicate with strangers, and know how to control and express his emotions. If we are not around him in the future, he has mastered these skills, at least it can help him to live. ”
Xuan Xuan was very dependent on his father, probably in his world, and his father was the brightest star on his planet. (All pictures in this article have been approved by the parties)
New Yellow River client reporter: Sun Min Editor: Sun Feifei