"Big Belly Boy Jiafeng Rebirth Road" has continued to attract attention on the Internet since last year. Yang Jiafeng, a little boy with big eyes and long eyelashes, sobbed in the hospital with a round belly, and the story of his father cutting his liver to save his son touched countless netizens. The Beijing Youth Daily reporter learned that Yang Jiafeng, 10 years old this year, fell ill at the age of 1 and was diagnosed with advanced cirrhosis last year. His liver transplant has been completed for more than half a year, but he still has problems with ascites.
Dr. Zhou Tao, attending physician of the Department of Liver Surgery at Renji Hospital affiliated to Shanghai Jiao Tong University School of Medicine, said that the child's condition is relatively rare, and the problem appears in both the liver and the heart. Previously, it has gathered a number of pediatric hospitals in Shanghai and multi-department doctors in this hospital for discussion, and a unified opinion has not yet been formed. Genetic testing reports are currently awaiting to confirm the cause of your child's heart problems so that the next treatment options can be confirmed.
What bothered his father Yang Xuezhong the most was the problem of medical expenses. At present, they have owed about 500,000 yuan to the hospital for treatment, and may need 400,000 yuan for later treatment. Yang Xuezhong said: "The child met me, a father who has no ability. Successful liver matching was the happiest day in my 8 years and I can finally do something for him. ”
Illness at the age of 1 up to 3 consecutive weeks of school
Yang Jiafeng was born in March 2012 in Yalian Township, Shuide County, Lincang City, Yunnan Province. In 2013, when he was only 1 year old, he developed facial swelling, and his father Yang Xuezhong took him to the health center to reduce the swelling after infusion and went home. Since then, such a situation has appeared on Yang Jiafeng from time to time.
In 2014, Yang Jiafeng's belly grew bigger and bigger day by day, holding up like a ball. Yang Xuezhong took the child to the hospital for examination and found that the liver and spleen were enlarged, and the stomach was full of hepatic ascites. The doctor opened a hole in Yang Jiafeng's stomach, intubated, and extracted about 3 pounds of ascites from the child's body every day. After a week of treatment, Yang Jiafeng was out of danger of life, and Yang Xuezhong was discharged from the hospital with his child.
In 2018, Yang Xuezhong and his wife divorced. In order to take care of the children, Yang Xuezhong, who was originally a porter outside, quit his job and went home to raise cattle and farm with the villagers.
Yang Jiafeng was not in good health, and the school time was repeatedly postponed, and in the end, Yang Xuezhong still sent him to school. Because of his repeated illnesses, he attended school for 3 consecutive weeks in one semester. The school teachers considered that they could not put too much pressure on the children, and Yang Jiafeng had been studying in the first grade.
In 2021, Yang Jiafeng's teacher saw on the online platform that Zhou Tao, the attending physician of the Department of Liver Surgery of Renji Hospital affiliated to Shanghai Jiao Tong University School of Medicine, had cured a child with a big belly like Yang Jiafeng, and contacted Zhou Tao in a message on the online platform.
3 consecutive surgeries Wait for genetic test results
In May 2021, Yang Xuezhong brought his son to Shanghai and was diagnosed with advanced cirrhosis at Renji Hospital, and liver transplantation was the only effective treatment. In late May, Yang Xuezhong and Yang Jiafeng's liver matching was successful, and Yang Xuezhong was so happy that he couldn't sleep. "It was the happiest day I've had in 8 years and my tears were tears of joy. I can finally do something for my kids. ”
In July 2021, Zhou Tao performed a liver transplant for Yang Jiafeng. I thought that Yang Jiafeng's body could recover after that, but I didn't expect the problem of ascites to reappear. In December last year and January this year, Zhou Tao performed drainage surgery and pericardial effusion surgery for Yang Jiafeng.
"Both surgeries were to solve the problem of ascites, but neither worked very well. Jia Feng's condition is relatively rare, and the problem occurs in both the liver and the heart. At present, it is only known that Jiafeng has cardiomyopathy, but the specific cause is not clear. Zhou Tao said that doctors from other pediatric hospitals in Shanghai and other doctors in this hospital have been gathered many times to discuss Jia Feng's condition, but no unified opinion has yet been formed.
Zhou Tao used a metaphor to describe Yang Jiafeng's condition, for example, it may have been a faucet leak in the toilet, but because the problem was not obvious, it was not found, and then gradually soaked the room, and after solving the problem in the room, it was found that the root of the problem was originally in the toilet.
Zhou Tao said that the Shanghai International Children's Medical Center had conducted genetic testing for JiaFeng at the end of January and is currently waiting for a genetic test report to confirm the cause of the heart problem before deciding to carry out heart transplantation or drug treatment.
Arrears of 500,000 yuan in treatment fees to the hospital The child looks forward to returning home to see his grandmother as soon as possible
Since being hospitalized in Shanghai in May 2021, Yang Xuezhong and his son have never left the hospital. Yang Xuezhong was worried that he wanted to go back to school, and when the school teacher called to care about his illness, he always avoided the child to answer.
Yang Jiafeng lay in a hospital bed every day, eating, defecating and defecating needed Yang Xuezhong's care. Yang Jiafeng can only sleep about 4 hours a night, he often feels stomach swelling pain, about 2,000 ml of ascites pumped out of his body every day, and then protein supplementation, which costs about 2,000 yuan per day. Zhou Tao said: "We have tried to save him money, but this fee is like a snowball. ”
At the time of initial admission, the hospital needs to submit a deposit of 5,000 yuan. Yang Xuezhong only carried 2,000 yuan, and the remaining 3,000 yuan was borrowed from patients. At present, Yang Xuezhong has owed about 500,000 yuan to the hospital for treatment, and about 400,000 yuan if he needs to do heart transplant surgery in the later stage. Zhou Tao helped contact the foundation inside and outside the hospital, which can fund about 160,000 yuan in total.
How to raise the rest of the funds gave Yang Xuezhong a headache. Earlier, he had sold about 30,000 pieces of land in his hometown, and originally wanted to sell the house, but the house collapsed at the beginning of the first month, and his mother was also injured.
Yang Jiafeng lay on the hospital bed, missing his grandmother who was hospitalized 3,000 kilometers away, and missing the class after the school started. He looked forward to coming home early and returning to school as soon as possible.
(Beijing Youth Daily reporter Chen Jing)
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