Fan Zeping's family of six lives in a dilapidated and cramped cave in a mountain village in Caijiaya Township, Xing County, Lüliang City, Shanxi Province. He was a worker in a local coal mine convoy, shuttling through mines with gas and coal dust and mine dust explosions all day long, and before his daughter fell ill, Fan Zeping had no intention of leaving the land, which was even coal ash in the air, at least it brought him more than 4,000 yuan a month.
In July 2017, Fan Zeping's daughter Fan Xinyuan was diagnosed with T lymphoblastic lymphoma, and when he received the news, he was still pulling goods at the mine, hanging up the phone, and he cried behind closed doors in the car.
After that, Fan Zeping took his wife and daughter from his hometown to the big city for treatment, and they first went to the provincial capital taiyuan, but as soon as the diagnosis came out, the doctor shook his head and signaled Fan Zeping and his wife to transfer their children to the hospital for treatment.
Rushing to multiple hospitals, repeatedly eating "closed door soup". Such twists and turns are a common experience of many families with childhood malignancies when seeking medical treatment. Hospitals in the provincial city were unable to provide better treatment for Fan Zeping's children, so they had to move to Beijing.
After treatment in Beijing, Yuanyuan's illness was effectively controlled, and Fan Zeping could finally leave Beijing and return to his hometown coal mine to continue working. At that time, Fan Zeping did not expect that before long, the child's review report turned positive again, which meant that everything in the previous treatment was zero, and he had to return to the big city that did not belong to him.
Many children with malignant tumors have a very tortuous path to seek medical treatment. Before the diagnosis, Yuanyuan told her parents that she always had nightmares at night, and in the dream she felt that it was difficult to breathe, and she wanted to wake up but could not wake up. Fan Zeping later thought that it was probably the tumor that had pressed the child's trachea, and he hated himself for dragging the child's illness for so long.
During the treatment, Yuanyuan received chemotherapy, tumor resection, and postoperative chemotherapy. After chemotherapy, Yuanyuan walked fluttery and soft like noodles. Due to drug stimulation, children who have ended chemotherapy generally have no appetite, are weak, and will become fat due to excessive hormone injections into the body. The most intuitive effect of chemotherapy on them is hair loss.
In February 2020, Yuanyuan received a transplant, a long black hair slowly faded, teenage children have been much more sensitive to these terrible changes in themselves, she will take advantage of her parents not to pay attention to secretly check on the mobile phone, knowing that she has a very serious illness after often holding her knees and crying at night.
"She's 13 years old and knows everything. I saw her searching the Internet for cure rates, survival rates, and so on. At first, she comforted me and said dad was fine. But she was still scared. Yuanyuan's father said.
Unfortunately, in July 2020, Yuanyuan's recurrence after transplantation, after several months of treatment, Yuanyuan was seriously infected with the lungs and had many other complications, anxious Fan Zeping and his wife rented a house near the hospital, taking turns to guard Yuanyuan for 24 hours. The 8-square-meter room, between the two walls facing the door, is tightly squeezed with a double bed, which is all the decorations in the rental house. Living here, Fan Zeping has to pay a rent of 2800 yuan per month, and this cost is already able to rent a luxurious and beautiful apartment in his hometown.
In this luxurious but not luxurious rental house, there are four tenants living in total, including parents like Fan Zeping who brought their children to Beijing for medical treatment. After getting acquainted, they occasionally sit together and communicate about the child's condition, and such conversation is often accompanied by sighs and tears.
In this cold city, the mutual help between patients has injected warm currents into the hearts of Fan Zeping and his wife, and some people here have been blocked by their brothers, and some people have been hidden when they return to their hometowns. But the bitterness of each other, those of them who have a common experience, understand it in their hearts.
Patients may have accidents at any time, the requirements for accompanying care are high, people cannot be separated from each other, and part-time work is basically impossible to achieve. Before the transplant costs were raised, the medical arrears had almost crushed the family, Fan Zeping was afraid of losing credit, often borrowed money from the online loan platform to repay, and the family's savings had long been used up during the child's first treatment. A few days ago, her daughter underwent a treatment, and Fan Zeping was once again penniless and faced with a fee cut at any time.
"We have no concept of the New Year, many people here have not returned home in several years, many friends in the family have not been in touch, there is a young daughter and elderly parents in the family, and our family has not had a reunion dinner for a long time."
The year is approaching, Yuanyuan's illness has not yet waited for the second transplant, and there has been an infection, and the doctor told Fan Zeping that if the situation cannot get better, this pass is afraid that it will be very sad.
Yuanyuan saw that her parents' faces were full of sorrow, knowing that her illness was beginning to be serious again, she whispered in her father's ear: "Dad I want to live, I want to go home for the New Year with my sister and grandparents." ”
Fan Zeping remembered the last time when his family was complete and he sat together for a reunion dinner, it was when he and his wife got married, and after marriage, in order to make a living, even if he was a big Chinese New Year's Eve, he was often on duty in the mine, and his wife would complain to him: "When there is enough money." ”
Nowadays, it seems that the money has not been earned enough, but having a reunion dinner together has become a luxury that is difficult to achieve.......
If you are willing to help the family, you can long press the identification QR code to view the project details and make a donation. If it cannot be recognized, you can save the two-dimensional code to the mobile phone album, open and scan, and select the two-dimensional code from the album to scan and identify. The project was initiated by the 9958 Children's Emergency Rescue Center of the China Children's Charity Aid Foundation, and launched the fundraising on the Internet fundraising information platform "Waterdrop Public Welfare" designated by the Ministry of Civil Affairs, and was responsible for the review, implementation and information feedback of the project. The final interpretation of the project belongs to the China Children's Charity Aid Foundation. Supervision phone: 400-006-9958
The "Photosensitive Project" bridges public welfare photographers, charitable organizations, and fundraising platforms, publishes pictures and stories of families in distress, and helps raise donations. The plan is a photo public welfare project jointly initiated by Today's Toutiao, the China Photographers Association, the China Children's Charity Relief Foundation, the Chinese Welfare Foundation, the China Social Welfare Foundation and other charitable organizations with public fundraising qualifications. If you have difficulties, you can send a private message to the official headline number of the "Photosensitive Plan".