On December 3, 2021, the National Medical Insurance Bureau released the news that the world's first precision-targeted therapeutic drug for the treatment of rare disease spinal muscular atrophy (SMA), Nocinasin Sodium Injection, was included in medical insurance and officially implemented on January 1, 2022. The drug underwent the "soul bargaining" of the National Medical Insurance Bureau, and the price per needle was reduced from 700,000 yuan to 33,000 yuan.
Spinal muscular atrophy (SMA for short) is a rare disease of the hereditary neuromuscular disorder class. Northinalsan sodium injection is the first imported drug approved for the treatment of spinal muscular atrophy in China, and it was launched in 2019 at a relatively high price.
On January 1, 2022
Mostly, children with spinal muscular atrophy (SMA) are present
Nocinazine sodium is injected
Give them the best New Year's gifts
Zaozhuang, Shandong
(Reporter Huo Xipeng)
A 4-year-old boy in Zaozhuang, Shandong Province, on January 1
After receiving SMA targeted drugs for inclusion in Medicare
The first injection in the country
The person in charge of the Zaozhuang Shizhong District Medical Security Bureau introduced
Cost of treatment for spinal muscular atrophy (SMA).
From a few million yuan per year to tens of thousands of dollars
Give the patient's family hope
Wuhan, Hubei
Image source: Jimu News
At about 10 a.m. on January 1
Kirito with spinal muscular atrophy (SMA).
Neucinachine sodium injection was received at Wuhan Children's Hospital
Become the drug after being included in Medicare
The first child in Hubei to receive an injection
TongTong's mother, Ms. Zheng, said with tears of thanks
Thanks to the good policy of the country
This is the best New Year's gift for our whole family
Hangzhou, Zhejiang
Image source: Hangzhou comprehensive channel WeChat public account
Inpatient Department of Children's Hospital Affiliated to Zhejiang University School of Medicine
Doctor Mao Shanshan is right
Xinxin, a patient with spinal muscular atrophy (SMA), said
Today is the first day of 2022
We'll give you a shot
There is one
Very good gifts come into your body
At 10:30 a.m., Xinxin successfully completed the injection
Xinxin's father, Mr. Wang, said
The state saved us as a small group
Really appreciated the country
Netizens also sent blessings to the children
At the same time, they have praised the motherland
Back to November 11, 2021
National Medical Insurance Catalogue Drug Negotiation Site
A scene of "soul bargaining"
We were deeply moved
"The goals are the same, and we don't want routines"
"It was difficult for the price"
"I hope the company will work harder"
"The price is still a long way from further talking"
······
Lengthy negotiations
Several departures from the company's representatives
ultimately
Northinalsan sodium injection
The transaction price of each bottle of medicine was set at 33,000 yuan
More than 20,000 yuan less than the initial offer
Since 2018, the National Health Commission and other five ministries and commissions jointly issued the "First List of Rare Diseases" (involving a total of 121 rare diseases), in just a few years, more than 60 rare disease drugs have been approved for marketing, of which more than 40 have been included in the national medical insurance drug directory, involving 25 diseases. In 2021, a total of 7 rare disease drugs were successfully negotiated, and the average price reduction was 65%.