Every weekday morning, 36-year-old Jin Jin will come to the office early, mop the floor, clean the window... Start the day.
Meanwhile, 19-year-old Yang Yang is riding the bus alone to school; 4-year-old Chubby is walking on the way to kindergarten accompanied by his mother.
Without special instructions, you may think that this is a normal morning for ordinary families. But today's protagonists are neither ordinary nor ordinary, because they are all "children from the stars".
"Children of the Stars" is a nickname for children with autism. Autism, also known as autism, has a proper noun in medicine called autism spectrum disorder, which mainly manifests social disorders, language barriers, and stereotyped behaviors. According to the 2019 data of the "Report on the Development of China's Autism Education and Rehabilitation Industry 3", there are more than 10 million autistic patients in China, of which about 2 million are autistic children. In recent years, the incidence of autism has been on the rise.
Every year on April 2nd is World Autism Awareness Day, let's walk into the children of this group of stars.
Jin Jin, once sat for a day, eating a meal, taking a bath took more than 3 hours...
Yang Yang, when he was two years old, he could not grasp the steamed buns and apples, and when he was three years old, he could not take a spoon to eat by himself...
Fat and fat, about two years old there is language regression, when other bao mothers are in the "chicken baby", dry children to learn Tang poems, children's songs, fat mother but with fat fat walking on the road to find medical treatment ...
The 36-year-old autistic has become the best employee in the hearts of his colleagues
Ding dong......
After the doorbell rings, it is Jin Jin who opens the door. A clean and neat short hair, a pair of smiling eyes, only to see her walk quickly to Xu's mother's office, happily reported to Xu's mother that "the volunteers are coming." At the first meeting, Jin Jin thought in a habitual way and regarded the reporters who came to interview him as volunteers.
The "Mother Xu" in Jinjin's mouth is called Xu Bing, and she is the founder of the Parent Mutual Aid Center for Special Children, a public welfare organization dedicated to serving the families of children with special needs for 14 years. Xu Bing, a master of applied linguistics from the University of Sheffield in the United Kingdom, once taught at a university in Zhengzhou, accompanied a Dutch special education expert to visit an orphanage, and was touched by the pure smile of children with cerebral palsy, and the idea of devoting himself to special education services was germinated.
At the Special Children's Summer Camp organized by the Parents' Mutual Aid Center for Special Children, the children actively raised their hands to speak.
"The smiles of these children with special needs are very pure and sunny, but behind the sunshine is the long-term hard work, suffering, inferiority and even despair of parents." My original intention in doing this is to empower parents, help parents grow, support and connect parents, establish a parent mutual aid network, hug and warm, inspire each other, and let more people understand and accept these children with special needs. ”
Xu Bing said that The blessing is taken from the English "gift", which means a gift, and she hopes to send a gift to children and families with special needs.
Jin Jin was brought to Jifu by his mother in the third year of the establishment of Jifu, and since then he has formed an indissoluble fate with Xu Bing. Later, Jin Jin's mother died of cancer, and before dying, he entrusted Xu Bing, hoping that Jin Jin could have a job within his ability, and since then Jin Jin has become an employee of Gu Fu.
Mopping the floor, wiping the windows, washing fruit, tidying up the room... This is the work that Jin Jin has to do every day, unlike other colleagues, every time Jin Jin finishes a job, she will have a special education teacher come to check it, and will reward her with a sun or a small flower in the daily work log.
Kim Kim's work log
"Please check the work, I want a chrysanthemum." After receiving the reward he wanted, Kim kim was happy like a child.
Jin Jin's seriousness and persistence at work is famous in the center, "I remember that one day it rained, according to the work plan, Jin Jin should wipe the window that day, because the weather was very cold, the teacher of the center did not let her wipe, Jin Jin did not agree, insisting on completing the day's work." In Xu Bing's view, Jin Jin is the best employee in their center.
"Kim, are you happy today?" "Happy!"
"Kim Kim, are you awesome today?" "Great!"
During the conversation, Jin Jin helped the reporter to pinch away the hair that fell on the collar, with a smile and a satisfied face...
The 19-year-old boy became severely autistic at a young age and has performed on stage many times today
"Mom, I'm in school."
"Mom, this is today's lunch..."
The communication with Yangyang's mother began with the WeChat sent by Yangyang to her mother that day. Yangyang went to school in a public ordinary secondary school in Zhengzhou, took the bus to and from school every day, and reported to his mother on time for safety.
Today's Yangyang has a wide range of hobbies, majoring in painting in school, playing the piano, playing drums, and learning to cook stir-fry dishes.
"Diagnosed with severe autism at the age of three, unable to express, unable to grasp, not even conscious of eating... I never dared to think that Yangyang would one day be able to live a basic self-care and develop his own interests and hobbies. Now, when talking about the past, Yangyang's mother's eyes are full of tears, but it is difficult to hide the pride and smile on her face.
"At that time, as long as I knew where there were ways to intervene in the treatment of autism, I tried to take my child with me. Later, when my family's savings were spent to save money, I transformed my home into a rehabilitation training room and rehabilitated my children myself. ”
Yang Yang took a spoon in his hand, and his mother grabbed Yang Yang's hand again, spoon by spoon to teach Yang Yang to eat; Yang Yang couldn't hold things, and his mother helped him train over and over again... "Until he was seven years old, Yang Yang could grab something, but it fell down in an instant. "If you drop it, help the child pick it up, two times or three times... After hundreds of times of training, Yang Yang's state is getting better and better.
Later, according to Yangyang's preferences, the family reported piano and drum kits for Yangyang to learn, at first they just wanted to exercise the child's hand strength and flexibility, did not want Yangyang to learn serious efforts, not only learned to know the staves, drum scores, but also bravely appeared on the stage many times, bringing wonderful performances to everyone.
Yang Yang performs a piano performance
Children's families: Seeing their children's futures through professional experience and practice
"The child regressed in his speech when he was more than two years old, talking less and less, and went to the hospital to diagnose it as suspected autism, but he was not sure. I clearly remember that during the National Day in 2019, we took our children to Chongqing to find experts to see a doctor, and after the diagnosis, I felt that the whole world was gray, and after coming out of the hospital, I collapsed, and I didn't know how to go home. The fat mother said that she had only heard of special children and small rain people before, but that was seen on TV and in news reports, and it really happened to herself, which was difficult to accept for a while.
"When someone else's mother was drying the baby, our family was doing rehabilitation training with the baby, I didn't want to tell anyone, the comfort of others without pain and itch I felt meaningless, sympathy and pity were also an extra burden for me, so I couldn't face it." 」 Fat mom said.
In 2020, the fat mother met Xu Bing and joined the family mutual aid group of Jiefu, and the fat mother recalled that in the first new parent group class, the fat father cried loudly, because he thought that only fat and fat like this, when he heard other parents share the mental journey along the way, his worries, wandering, pressure, and pain for more than a year finally found an exit and gushed out.
Later, they led their children to climb mountains, study, and participate in community activities, and their once anxious hearts were also deepened and repaired. "Once listening to a lecture in Wanxian Mountain, I saw older children providing us with tea break services, and I seemed to see the future at once, and it turned out that fat people can grow up like this."
Fat climbing
According to Xu Bing, these children with mental disabilities rarely have employment opportunities, and now they are cooperating with non-profit organizations to train these children's vocational skills, create a professional experience and practice similar to party and coffee break service for this group, and let the children realize their own value.
"Let love come, let the obstruction go." So far, autism can not be cured, but through scientific intervention, it can effectively change autism symptoms. Xu Bing said that she likes to see the growth and change of others, and when she sees the progress of children and the changes of parents, she and the volunteers will have a sense of accomplishment. (Jin Jin, Yang Yang, and Fat Fat are pseudonyms in the text)
Source Henan Youth Times Dongfeng News
Reporter Cai Lin/Wen Courtesy of the interviewee
EditEd by Xia Saisai
Proofread by Yang Yang
Reviewed by Tian Zhen