laitimes

Just now, an American professor and 928 Chinese autistic families completed a trial

vol.2714

Just now, an American professor and 928 Chinese autistic families completed a trial

Find a way to effectively pass on the scientific method to parents, regardless of region.

Lucky families are all similar, but genealogical families have their own troubles.

The little mao mother in Kunshan, Jiangsu Province, suffered from the lack of words and eye contact with her son, and even a night of whiteheads;

1300 kilometers to the south, Lu Feng's mother in Guangdong Province, worried that her daughter could not sit still (even for a minute);

1,000 kilometers to the west, The mother of Chenxi in Liuyang, Hunan Province, had no way to ask for help for the lack of language and imitation ability of the twin sons who were all autistic, and emotionally slapped her son, and immediately regretted herself...

In More than 2,000 counties and more than 40,000 townships in China, how many such helpless mothers or fathers are there? 200,000, 500,000 or 1 million?

Professor Zou Xiaobing most admires the natural situation development behavior intervention (NDBI), the real life is colorful, get up, eat, go shopping, go to the toilet... Each scene is an opportunity for your baby to improve. But most of these families live in small towns, small towns or rural areas, can't find intervention agencies, don't know how to intervene at home, and mothers don't know how to take advantage of these opportunities.

They are like a flat boat in the sea, without a lighthouse, they don't know how to dock.

In order to solve this problem, many research and service institutions at home and abroad are exploring.

In November 2021, Hua Youjia, a tenured professor at the University of Virginia in the United States, cooperated with Rice and Xiaomi to launch the "Little Grain Growth Plan", which provided 30 families with free 30 families, including Xiaomao's mother, En'en's mother, and Chenxi's mother, with free 3 months of 1-on-1 home intervention guidance, and supervisors and senior rehabilitation teachers as home coaches for them.

In January this year, it expanded its scale and launched the "Jiaohu Plan", providing parents with 4 1-to-1 guidance at a price of 99 yuan that was destined to lose money, and 898 families across the country joined, they came from Karamay in Xinjiang, Yanchi in Ningxia, Xianghe in Hebei, Minhou in Fujian, and even Kowloon City in Hong Kong... In a total of 30 provinces and municipalities, the average age of children is 4.5 years, the maximum is 8 years and 9 months, and the minimum is 1 year and 4 months.

There are many more families who need help, but the first answer is whether this approach has a tangible effect.

Light life on the road

The baby is unusually called her mom

Morning Dawn's mother wrote down a slap 3 months ago in her diary, which may be the last time she hit the child.

"My mindset has changed a lot in the last 3 months."

Chenxi's mother is an accountant and her husband is a chef, and she is at home full-time after giving birth to twins Chenchen and Xixi in 2018. Under the epidemic, her husband's restaurant is one of the most damaged industries.

When I was almost two years old, two babies were diagnosed with autism at the same time, and the doctor said: "You need to recover early, but after a year and a half of the hospital queue for rehabilitation, you go back to find your own institution." ”

The family lives in the township, it is not easy to go to the provincial city, coupled with the cost problem, Chenxi's mother dismissed the idea of going to the institution and tried to follow the books to intervene at home. But she is not patient enough, there is no method, a simple thing, teaching more than a dozen or twenty times will not, the emotions come up, either hit or scold, "to the child caused a lot of psychological shadows, morning and morning away from me more and more."

One day she left a letter for her husband and took the baby to the river, strangely, Xi Xi, who usually does not open her mouth, has been muttering to her mother and mother on the road, and she giggled in her heart, "Is this telepathy?" "I can't bear it anymore."

"I have no right to take their lives, and if we wait, maybe there is hope."

The intervention had little effect

What's the problem

Seeing the news of the little grain plan, Chenxi's mother immediately signed up.

At the beginning of the observation period, the rehabilitator and the parents interacted remotely, recorded the video, and the supervising teacher Professor Hua Youjia and the parents interviewed remotely, analyzing where their practices were good, bad and where they were, and what should be done next.

At the beginning of the contact, the 15-minute video of Chenxi's mother, in Hua Youjia's view, was just a task, and she did not know how to interact with the child, and the results of the intervention had little effect.

Hua Youjia pointed out many problems, such as the goal is not clear, think of a play is a play; the frequency of intervention is too low, two or three times a day to try; the child does not do the right praise, reward; the interaction process of the child does not feel interested; and so on.

Around these problems, Hua Youjia gave a lot of specific suggestions, the most said is to observe more children's interests, and then integrate into the teaching goals.

"I know this," says Morning Dawn's mother. In the past, she would like to teach as soon as she came up, and when the baby was still playing with the toy, she began to give instructions. "Morning morning, you pick up the garbage", in fact, at that time, the baby was playing happily, did not pay attention to her at all, naturally will not listen.

Different families receive different kinds of advice. Xiao Mao's mother is worried that the child is not interested in communicating with her, even if they are not happy to play with toys together, Hua Youjia suggests that we should think more about the play around the toys and not make it very boring. Mother Grace was worried about sitting down and received suggestions to use more suitable bonus items and look for more of her baby's points of interest.

Just now, an American professor and 928 Chinese autistic families completed a trial

fig

Different children and parents have different characteristics, and the advice given by the supervising teachers is targeted

Just now, an American professor and 928 Chinese autistic families completed a trial
Just now, an American professor and 928 Chinese autistic families completed a trial

Mom adjusts the method

Babies are making rapid progress

According to the advice of the supervising teacher, the mothers each found their own way.

Xiao Mao's mother opened her mind with the help of Hua Youjia, saw the toy and began to think about how to play, not as dull as before, the child began to be willing to take the initiative to play with her, "I and the child are finally no longer people on two planets."

Grace's mother used the reinforcement, and after a week the baby could sit for a minute or two, and then found his brothers to play with him, and the baby could sit for ten minutes. Mother En said: "My children and I have grown a lot, and the biggest progress of children is from running around at the beginning to being able to sit on the desktop and interact for ten minutes, and my biggest gain is to be confident in home intervention."

And Chenxi's mother found targeted interest points in the two babies, "Chenchen likes wheels to circle, then I will seize this point to interact with him, and Xixi will laugh when she hears me singing, so I teach him while singing nursery rhymes."

During the New Year, Xixi's language has developed rapidly, before it would only call the mother and read the number string "123456", now there are a large number of new words, "mom and dad, grandparents, grandparents, grandparents, brothers and sisters, brothers and sisters" a big string, the mother called him Xi baby, he will also say Xi baby; also learned several children's songs, "Only the world is good mother", "Little white rabbit", "plucked radish" and so on, "We interact more is "Little White Rabbit", I sing: Little White Rabbit, he immediately sings: white and white, I pick up: two ears, He smiled at Mimi and said, "Stand up."

Although ChenChen's language is not much, but the operation imitation is getting better and better, Dad taught the magnetic piece puzzle once, he imitated it.

Just now, an American professor and 928 Chinese autistic families completed a trial

Source/Morning Dawn Mom

Your baby's conditioned reflexes to being beaten

But Mom was different anymore

Unconsciously, Chenxi's mother's mentality has changed a lot, and she used to feel that she was alone and helpless; she felt that the children were too stupid to teach a small thing a dozen or twenty times. And now, I feel that I have found a "teammate", like the teachers in the little grain project, as well as the parents in the group, no longer fighting alone; she has also begun to see the child's shining point, will praise the child, not so anxious for them to learn what, "a day of teaching will not be two days, two days will not be ten days, and happy interaction with children, establishing a good emotional relationship is the most important."

Just now, an American professor and 928 Chinese autistic families completed a trial

Photo/Interaction and encouragement between "teammate" moms

"My progress is relatively slow, and the methods taught by the teachers may not be mastered, but they are finally on the road", Morning Dawn's mother was impressed by a sentence in "The Shawshank Redemption": Having hope is a good thing, perhaps the best thing.

The other day, Chenchen broke a bowl, got down from his chair uneasily, looked at the ground, looked at his mother again, and hummed and cried. Mom got up to clean up, and he quickly covered his face with his hands. Seeing this reaction, Chenxi's mother was shocked! It turned out that in his heart, he was already a grumpy mother, and as long as he did something wrong, he would be beaten. But this time was different, and his mother hugged him and comforted him, "Don't be afraid, your mother will not hit you, just break a bowl." Chen Chen seemed to understand and stopped crying.

After two more days, the morning morning that has been uncoordinated jumped, and deliberately ran to her mother and jumped, and she was surprised to boast, "Wow, we will jump in the morning, it's great!" Chenxi's mother also wrote this paragraph into the diary: "I kissed the left side of his face, and he actually stretched out his right face to let me kiss, this is one of the few moments when ChenChen interacts with me, too open ^_^!" ”

data analysis

How to quantify evolution visible to the naked eye

"I am very pleased to see that both children and parents are making progress," said Hua Youjia, morning xi's mother's supervising teacher.

Hua Youjia is a certified doctoral behavioral analyst (BCBA-D) of the International Society for Applied Behavioral Analysis and the first Chinese behavioral analyst certification course, which has trained a large number of internationally certified behavior analysis professionals in China.

Early intervention in autistic children is one of the research focuses of his research in recent years, and during the 2020 epidemic, he led a study of remote home intervention for children with autism in China, which was accepted by The Top Journal of Special Education in the United States, Experience Children.

His research found that parents of autistic children Chinese mainland urban or rural areas have a commonality, the local intervention resources are limited, parents know the importance and urgency of early intervention, but they have no way to start, do not know how to communicate with their children.

The Little Grain Project, of which he serves as general counsel, is an experiment to try to solve this problem, "my task is to find a way to effectively pass on the methods of science education to parents."

In September 2021, scientists at the University of Manchester and the University of Western Australia in the United Kingdom released a report, 104 children around the age of 1 who found abnormalities were divided into two groups, 1 group of routine parenting, and the other group received a 5-month remote tutoring from a therapist, the parents uploaded the video, the therapist analyzed and helped the parents adjust, and by the age of 3, the first group still had 44 children, 9 people diagnosed with autism, 45 children in the treatment group, and 3 people diagnosed. The report validates the effectiveness of home intervention guidance.

What about the Small Grain Plan and the Petite Tiger Plan, designed according to similar principles?

"One of the visible changes is that parents generally change from not knowing how to communicate with their children to being able to create a learning environment and choose activities that their children like to enjoy." Hua Youjia concluded.

Such changes have very intuitive data tracking comparisons.

For example, in the first 15 minutes of interactive video, there are only 3 compliments or rewards for the child, and in the later video, there are as many as 36; when the child does not know how to do it and needs to be demonstrated by the parents personally, in the initial video, 53% of the xi mother is demonstrated, and in the later video, it reaches 100%; in the first 15 minutes, the child responds to the mother 15 times, and the later video reaches 48 times.

These changes are remarkable, and Hua Youjia is confident to help more families.

"I hope that more parents will see that home intervention is not so much a process of changing children as it is a process of changing the interaction between parents and children, so as to drive children to improve learning skills and improve their quality of life."

Just now, an American professor and 928 Chinese autistic families completed a trial

Read on