"The moment I first saw the child, it felt like the sky was about to fall, and I felt as if I saw a strange 'monster'. But I couldn't bear to think of her as a monster, she was a part of my body after all. After 12 years, Chen Lin's mother still clearly remembers the complicated psychological feelings when she first saw Chen Lin.
In January 2010, an ordinary family in Shantou, Guangdong Province, welcomed their first child, Chen Lin, whose name was taken from the last names of both parents. The joy of the new birth has not yet had time to immerse people in it, Chen Lin's distinctive appearance gave her mother a blow, and the doctor who delivered the baby solemnly told her that the baby was different.
There is no time to grieve and seize every opportunity to heal
Chen Lin suffered from a rare disease - congenital hidden eye, unlike the general blind, her eyeball and eyelid part of the congenital deformity, the eyeball is covered by continuous skin without eyelid fissure, the incidence is about 0.2/100,000, and the obstetric examination at the time of pregnancy was not found. For such rare diseases, from Shantou to nearby Xiamen, hospitals are helpless. From the seventh day of birth, Chen Lin began to be taken to various hospitals. On 45 days, he came to Shanghai on the advice of a doctor.
Chen Lin, who suffers from congenital ophthalmia
In the big hospital in Shanghai, chromosome tests did not find any problems, and geneticists said they had not seen such conditions at the time. The information retrieved on the Internet is only one or two sporadic cases, there is no complete case information for reference, and ophthalmologists have little way to deal with this difficult disease.
At her mother's request, the doctor performed surgery on Chen Lin to cut her eyelids, and she wanted to know what the eyeballs under the intact skin looked like, and whether it was possible to see the light of day again because of this cut of the eyes. In fact, it is not so lucky, Chen Lin's eyes are underdeveloped, lack of tear glands, and corneal iris are also missing, which means that even if Chen Lin "opens", she cannot really see anything. However, because there is no tear gland and can not secrete tears, once the eyeball is exposed to the air, it will be dry and damaged due to lack of tear wetness, and the eyes that have just been opened can only be stitched up again, leaving a shallow slit mark on chen Lin's complete eyelid skin.
Face the reality, life from now on is all for the sake of children
Chen Lin's mother gave up her job and has been with Chen Lin all the time since then, becoming a full-time wife. In order to facilitate Chen Lin's attendance at a school for the blind, the family moved to Guangzhou. Near the balance shelf, Chen Lin's mother could not remember how many times she had moved, but each time she was close to the blind school next to her. At the end of last year, they moved again, and in order for the children to live in a more relaxed and spacious environment, this time they moved into the elevator building across the road, which also meant greater economic costs.
Since her mother became a housewife, Chen Lin's father shouldered the family's financial burden, and the rental housing, daily living expenses and tuition fees for several children in Guangzhou were not a small amount combined. Chen Lin's father, who works in Shenzhen, will come to Guangzhou every weekend to reunite with the family, help with the baby, help with homework, which is also an opportunity for her mother to breathe a little.
"Dad's hard work has provided a relatively good living environment for our family, although we have also quarreled violently because of our children's problems and said very hurtful things, but we are still grateful to the responsible father, and time has slowly reconciled us." Chen Lin's mother admitted that although there have been many disputes because of the different concepts of educating children, her father is after all shouldering the burden of the whole family, and always has to travel back and forth between Shenzhen and Guangzhou every weekend, for which she expressed her gratitude to the other half.
Every morning, Chen Lin's mother was busy with the breakfast of the three children, and the old third was still not independent, so the task of sending Chen Lin to school was handed over to her 10-year-old brother. The younger brother knew the special nature of his sister very early, but he would also play and play together naturally in life, completely forgetting his sister's blindness.
"Chen Xiaofat (younger brother's nickname) He is too naughty, but every time I make trouble, I can grab him and put him down, my kung fu has not regressed at all," Chen Lin said proudly, whenever she encounters her brother's provocation, she can always have the upper hand. As long as it is not too intense, the mother does not interfere with the fight between the children, and the sister will not receive special care.
Chen Lin and her brother play in the snow in the mall
Cultivate comprehensively, just so that she can see the light in her heart
It rained on the first weekend after school started, and the temperature in Guangzhou was only a few degrees. Chen Lin still begged her mother to take her to a world of ice and snow that she missed and played with ice and snow. "It's her only easy weekend," Mom said with a smile. In addition to the normal school for the blind, Chen Lin's weekends are also filled with various interest classes like ordinary children.
Chen Lin and her mother play in the ice and snow world
Relying on her keen sense of hearing and more prominent concentration, Chen Lin gradually performed better than the average child after overcoming difficulties such as blindly playing keys and reading scores when she first touched the piano. Practicing also takes up most of her spare time, with a few hours of practice every day when she comes home from school and piano lessons on weekend afternoons. The piano has won her the affirmation of her teachers and her family, and has also allowed her to slowly find her own meaning, "my first dream in the future is to be a pianist," Chen Lin said proudly. At the just-concluded 10th Steinway National Youth Competition, Chen Lin won the second place in the South China Finals Four-Hand Combined Bullet.
After returning home from school, Chen Lin practiced in her room
Piano teacher Lu Yunming taught Chen Lin to play the piano by hand
In addition to the cultivation of art, my mother did not forget to help Chen Lin exercise physically. Although Chen Lin moves freely at home, even if there is no problem going up and down the stairs, learning to run, swim and roller skating is not a small breakthrough. The square downstairs of the community provides a roller skating field, and before hearing that there are blind people running with volunteers in Tianhe Gymnasium, my mother specially took Chen Lin to rush over to experience the feeling of "facing the wind".
Chen Lin practiced roller skating outdoors
The blind running volunteer took Chen Lin for a run at the Tianhe Sports Center
The mother in life is always a happy look, whether it is in the face of the busyness of raising three children, the quarrel between children or the rebellious temper of Chen Lin's adolescence, a smile has become the mother's habitual expression. For Chen Lin's all-round cultivation, it means that the mother has to bear a lot of extra hard work and sometimes the children do not understand the complaints, but she has never hesitated, "It is not the glorious and great appearance of maternal love, it is just a responsibility, I brought her to this world." I hope she feels the world like a normal child. ”
Chen Lin and her mother