Xue Chen, 65, who lives in Hunan Road, Gulou District, Nanjing, suffers from progressive muscular dystrophy and is currently a first-degree disability. He knows how the end of his life will come, but he also lives every day carefully, and the kindergarten he founded has developed into a municipal high-quality kindergarten in 15 years.
Yangzi Evening News/Purple Cow News reporter Xu Jing
The picture shows Xue Chen
Doctors had asserted that he would not live more than two years
When he was sixteen or seventeen years old, Xue Chen was getting thinner and thinner, and the doctor told him that he could just go back and eat more and exercise more, but he did not improve, and he felt powerless.
At the age of 20, he was diagnosed with progressive muscular dystrophy at a hospital in Shanghai, and doctors asserted that he would not live for two years. Doctors in Nanjing said that it is no problem to pay attention to maintenance and live for decades.
"This disease does not hurt or itch, 1 meter 74 height, only 90 pounds." Xue Chen told the Yangtze Evening News/Purple Cow News reporter that the figure belongs to the "skin and bones", the cheek muscles are atrophied, so they don't laugh very much, and they need to take a wheelchair to get in and out.
He consulted a lot of information and found that the disease would make people more and more emaciated on a year-by-year basis. Xue Chen knew that as the swallowing muscle atrophied, it would become more and more difficult to eat, and he would not be able to breathe at the last moment.
Now Xue Chen is in a good state, he can wear strippers by himself, but it takes him about 10 minutes for others to wear them in 2 minutes.
From a high-achieving student at UTokyo to a kindergarten founder
"The happiest thing in my life is that education has fallen." Xue Chen has always been excellent in his studies, and was admitted to Nanwai Primary School in the second grade of Confucius Temple Primary School, and only 4 people were admitted to the whole school. After that, he studied in Nanwai for 9 years and was admitted to Southeast University with high scores in foreign languages. By the time he graduated, his arm could no longer be lifted, he could not write on the blackboard, and he had no choice but to give up the opportunity to stay at school as an English teacher.
With his English expertise, he was assigned to an optical instrument factory as a translator. Due to his leisure time, Xue Chen used his spare time to read a large number of English books and constantly improved his professional skills.
In the late 1990s, he chatted with friends and came across preschool education. In 2006, he left his post and founded the Ascendas Kindergarten in Nanjing Gulou District with friends in the Tengfeiyuan community of Longjiang Community in Nanjing Gulou District.
"I thought about this decision for a month, Nanjing's preschool education is leading in the country, Gulou District is leading in Nanjing, I believe this thing can be done, and it can be done well in a down-to-earth manner." Xue Chen said.
Time has proved that he has seen the direction of entrepreneurship. The kindergarten has been established for more than ten years, from a most ordinary general kindergarten to a municipal high-quality kindergarten, he has integrated picture book reading, scientific diy and so on into preschool education, so that children benefit.
Carry out a combination of medical and educational experiments to help children with special needs
In the course of running kindergartens, Xue Chen came into contact with some children with physical and intellectual disabilities. He felt the same way that what special children desperately needed was a combination of medical rehabilitation and education.
With the help and support of doctors from Zhongshan Rehabilitation Branch of Jiangsu Provincial People's Hospital, Xue Chen carried out experimental research on the combination of medicine and education. For example, various educational methods are introduced and combined in the rehabilitation treatment of hospitals, so that children can receive both medical rehabilitation and education. On the one hand, it makes boring rehabilitation interesting, and on the other hand, it makes preschool education knowledge such as cognition and art run through the whole process.
"At present, our medical and educational integration experiment is just the beginning, and there are still many problems to be explored and solved." Xue Chen said that this is what he most wants to do at this stage, this matter is arduous and long-term, and he hopes to get everyone's support to do this meaningful thing well.
Proofread by Li Haihui
Source: Purple Cow News