On the morning of January 17, Nanjing Children's Hospital, a 7-year-old boy egg who was queuing up to change the film for the PICC tube took a cotton swab to wipe and disinfect himself. After his mother saw it, she posted this scene on the Internet and touched many netizens, and everyone left a message: "This baby is so well-behaved that it hurts!" On the morning of January 18, Ms. Yang, the mother of the egg, told the Yangtze Evening News Purple Cow News reporter that the egg suffered from a rare severe combined immunodeficiency disease at the age of 2. In December last year, her 9-year-old sister Chun Chun donated bone marrow to her younger brother, who is currently in the anti-rejection and anti-infection stages. Ms. Yang said: "Egg Egg is now particularly eager to go to school and wants to play with children. Every time he saw that other children did not want to learn, he would always say: "What is tiring about learning, I want to learn, I want to go to school!" ”
The 7-year-old boy disinfects himself with a cotton swab
Netizen: This baby is very well-behaved!
Purple Cow News reporter learned that after the egg bone marrow transplant, the PICC tube has to change the membrane every week. On the morning of January 17, Ms. Yang took the egg to change the film as usual, and when she was queuing, the egg suddenly said: "Mom, I can wipe it myself first, wipe the side clean first, and wait until the nurse sister disinfects it faster." ”
The eggs themselves are sterilized with a cotton swab
After listening to the words of the egg, Ms. Yang was particularly relieved and felt very distressed. She didn't think that the egg would pick up a cotton swab to wipe and disinfect herself, "Before in the queue, I helped him wipe it, but he took the initiative to wipe himself this time!" ”
After Ms. Yang saw the egg's move, she took a video and posted it to the Internet, and said: "It's time for weekly PICC tube maintenance, and when waiting in line, I snatched the nurse's sister's work and disinfected it myself." Less than a day after this video was sent, it attracted the support and encouragement of tens of thousands of netizens, and everyone left messages: "Heartache, baby come on!" "My tears didn't stop!" "This baby is very well-behaved!"
For the message of netizens, Ms. Yang was very touched and thanked the netizens. Ms. Yang told the Purple Cow News reporter that the egg is very positive and optimistic, although it has undergone major surgery, but every day is happy. Every time the injection takes medicine, the egg never cries or makes trouble, especially cooperative.
According to Ms. Yang, before the bone marrow transplant, the egg often sang in the ward to decompress. When she heard The Egg sing "Baby, Baby, You Will Always Be My Baby", she was relieved and distressed.
Egg lying on a hospital bed
Rare disease at the age of 2
The twin brother also died of an infection
In 2014, Ms. Yang laid the egg and the brothers. The twins are very cute and the whole family is immersed in joy, but the egg begins to have diarrhea two or three days after it was born. Ms. Yang initially thought that the child was cold and did not care.
Egg egg brothers and sisters
At 5 months old, the egg's lungs began to infect, and he and his brother were often hospitalized together. At the age of 2, the egg was diagnosed with severe combined immunodeficiency disease. Two months before the diagnosis, his brother died of an infection. According to Fang Yongjun, director and chief physician of the Department of Hematology and Oncology of Nanjing Children's Hospital, this disease is very rare, and only one case in hundreds of thousands of cases will occur, and the incidence rate is extremely low.
Fang Yongjun told the Purple Cow News reporter that this is a congenital single gene deficiency caused by the disease, resulting in T lymphocytes can not be synthesized, "T lymphocytes are an important immune cell for people to resist various bacterial infections, people without this cell will be prone to infection or malignant tumors, the final result is death, children can not survive." ”
Ms. Yang never thought that her 2-year-old son would get this disease, "They are very cute, our family was living a happy and happy life, and it felt like they had suddenly fallen from heaven to hell." ”
Later, Ms. Yang and her husband ran to a number of children's hospitals in Shanghai, Chongqing and Zhengzhou with eggs for treatment, but they were not cured. Ms. Yang told the Purple Cow News reporter that because the disease is relatively rare, the probability of successful bone marrow transplantation is not very large, and many hospitals dare not do it, "We also look for a match in the national bone marrow bank, but we can't find a suitable full-phase bone marrow match." ”
My 9-year-old sister donated bone marrow to her younger brother
I only have this one younger brother, casually smoking
The 9-year-old sister Chun Chun and the egg are semi-compatible bone marrow matches, and the family wants her to do a bone marrow transplant. When she learned that she was going to give her brother a bone marrow transplant, Chun Chun was afraid at first, but after a while, she plucked up the courage to say to her mother: "Although I am afraid of pain, I am fine." I only have this one younger brother, as long as I can save him, I am not afraid of anything! ”
Chun Chun and Egg Egg have a good relationship
Ms. Yang told the Purple Cow News reporter that although her daughter was afraid of pain and needles, she still chose to face it bravely for the sake of her brother. On November 23 last year, doctors extracted peripheral hematopoietic stem cells from Chun Chun.
After she walked out of the operating room, she ran to the outside of the transplant barn of the egg for the first time to watch, she lay on the window, looked at her brother inside, kept waving, and used her hands to compare her heart, and said in her mouth: "Brother, come on!" Don't be afraid, sister will always be with you! ”
The sister looked at her brother through the glass outside the transplant barn
Ms. Yang told Purple Cow News that her daughter loves her brother very much. In July last year, Nanjing Children's Hospital informed them that they could come to the hospital for surgery, and she was ready to take the egg to Nanjing for treatment, but the egg fell downstairs once, fractured her femur, and went home to recuperate after a month of hospitalization in the orthopedic department.
Ms. Yang said that during this time, her daughter Chun Chun often took care of the eggs and encouraged him to obey and play together after he was well. Once, Ms. Yang wrapped shrimp dumplings and gave her daughter a bowl. But she saw her daughter pick out the shrimp in her dumplings one by one, bring the shrimp to the egg's bedroom, and feed him bite by bite.
Ms. Yang then asked her daughter, "Don't you like to eat shrimp?" Why don't you eat it? The daughter replied: "My brother is too thin, give it to my brother to eat!" I want my brother to gain weight and get better. The egg also often said, "Sister, I'm sorry for you, let you suffer with me!" ”
Currently on anti-rejection therapy
Mom said: He most wanted to go to school after he was discharged from the hospital
Purple Cow News reporter learned that after the egg has undergone bone marrow transplantation, it is currently in the anti-rejection and anti-infection stage, can not leave the ward, and needs a one-year recovery period. Ms. Yang said: "His immunity has not fully recovered, he can only stay in bed, and he still has a fever in the transplant warehouse, when the whole mouth is festering and bleeding every day." When he was out of the warehouse for ten days, he was also listed as critically ill due to lung infection, and it took half a month of treatment to get better, but he was very strong and did not cry during the entire treatment stage. ”
Dr. Fang Yongjun told the Purple Cow News reporter, "The egg is now in a fairly good condition in the hospital, and it has been well controlled in doing some anti-rejection treatment, and then every once in a while you can be discharged first, and when the immune function is restored, it will be the same as normal people!" "At present, Nanjing Children's Hospital has successfully completed 2 transplants of this disease.
After the egg operation, Ms. Yang will also talk to him about things after being discharged from the hospital. Egg egg often said: "Mom, I want to be discharged from the hospital, you will make me a good meal, do you think it is good?" Ms. Yang looked at the egg lying on the hospital bed and said, "Whatever you want to eat, I will make it for you!" ”
Ms. Yang told the Purple Cow News reporter that the egg has reached the age of the first grade, and also loves to learn, and has been in kindergarten for two semesters intermittently, but now because of hospitalization, I can't go to school, "I found first-grade books in my hometown, searched for various online classes on the Internet, usually let him read, and then teach him to recognize words." ”
Egg egg wants to go to school and often practices in a hospital bed
Egg Egg is now particularly eager to go to school and wants to play with children. Every time he saw that other children did not want to learn, he would always say: "What is tiring about learning, I want to learn, I want to go to school!" Ms. Yang also hopes that egg eggs can live and study like normal children, be happy and healthy every day, and no longer need to take medicine and injections and suffer from pain.
Eggs also often say to their mothers, "Mom, when my illness is better, you will go out shopping." I've been here for so long, I haven't gone out to breathe, my mother has worked hard! ”
Purple Cow News trainee reporter | Yan Chunxu Lu Yanlin
Edit | ice crystals
Edited | Wan Huijuan
Editor-in-chief| Chen Dichen
Image and video source: Provided by the interviewee
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