A little girl who has regained her life in the hospital
"It's hard to imagine that a young girl is about to face death." In the eyes of Wu's mother, the daughter is a sunny child, but after seeing a popular science video about her illness that may kill one night, the 11-year-old secretly hid in the bed, and the faint sobbing made her mother sleepless all night. This August, the mother and daughter waited in Shanghai for a miracle.
I joined the patient base again and again, but I never got an answer
The nightmare began in February, when Wu's mother felt a large lump under her stomach while bathing her daughter. Looking at her daughter, who did not feel any pain, the single mother did not realize the seriousness of the condition. However, the local hospital diagnosed that the girl had a huge tumor in her body, and in view of the fact that the tumor had compressed the bile ducts, if it was not treated in time, it would lead to serious liver function damage in the future and the child could not live normally.
Even more regrettably, the hospital was powerless against the girl's illness.
The mother and daughter began a difficult journey to seek medical treatment. The mother never returned to work in the factory, and took her daughter to many hospitals in Guangzhou and Shanghai, and she joined the patient group again and again to look for famous doctors, but she never got an answer.
In Guangzhou, the child received two consecutive embolic interventions in less than two months, but the tumor did not subside at all, and she had to endure accompanying symptoms such as vomiting, fever, and hair loss.
In order to get more effective treatment, the mother and daughter came to Shanghai, in order to seek medical treatment nearby, they lived in just 20 days, saw pediatrics from hepatobiliary surgery in different hospitals, and then looked back at hepatobiliary surgery from pediatrics, and the conclusion was the same: only partial liver resection surgery can cure the disease, but because of the removal of too much liver tissue, the tumor is too closely related to the bile ducts and blood vessels, the difficulty and risk of surgery are too great.
The refusal of several hospitals made the mother and daughter almost desperate. With the last glimmer of hope, they came to Shanghai Jiahui International Hospital and met Professor Li Jun, director of the Department of Major Surgery and General Surgery. Holding a thick stack of medical records, the mother and daughter were in a nervous mood.
Considering the anxious mood of the two, Dr. Li Jun suggested that they "go out for a walk and come back later." When the two returned to Li Jun's office, the latter had read all the medical records and had already judged the treatment.
Often, surgery is not necessary if the tumor is benign. However, according to Li Jun's analysis of the girl's medical records and years of experience in practicing medicine, now is the best time for surgery, "if you do not undergo surgery immediately, it may cause jaundice hepatitis, which in turn will lead to the remaining part of the liver cirrhosis and infection." By then, not only will the surgery be more complicated, but the girl will have to endure the pain of various invasive examinations. ”
Multidisciplinary escort, avoiding dense blood vessels to remove tumors
Wu's mother still remembers dr. Li's excitement when she promised to operate on her daughter. And Li Jun also remembers the first meeting with mother and daughter. "The little girl looked about the same age as my daughter, very shy, and didn't dare to talk." Li Jun made a wish in his heart, "I hope to let the girl return to normal life through treatment." ”
However, this is destined not to be an ordinary operation.
The tumor is located between multiple blood vessels and bile ducts, if removed according to the conventional method, the remaining liver volume must be too small, resulting in postoperative liver failure, the most feasible way to avoid liver failure is to be close to the tumor resection, but the surgical path needs to shuttle between countless blood vessels and bile ducts... This operation requires not only guts, but also the doctor's skillful technology, Dr. Li Jun laughed and said that the whole operation is like the movie "Stealing the Sky Trap", in order to avoid the Dao Dao laser line, the protagonist of the film needs to quickly move left and right, like a shock. On the operating table, what is needed is Li Jun's scalpel to deftly avoid the crossed blood vessels and bile ducts to remove the tumor.
For Li Jun, behind each step is the result of careful thinking, "the child weighs 31 kilograms, according to industry standards, the remaining liver volume must reach 0.5% of the patient's body weight, according to this method, only half of the liver is cut off, postoperative recovery is not a problem." ”
In his office, there are many hand-drawn surgical notebooks, each page records the various types of surgeries he has experienced, preoperative planning and postoperative review are the habits of Director Li for many years of practicing medicine, before the operation, he has passed all the possible extreme situations in his mind several times.
Of course, surgery is never a one-man operation. The day before the operation, the departments of general surgery, pediatric surgery, imaging, anesthesiology, ICU, operating room, ward, blood bank and other departments of Shanghai Jiahui International Hospital launched a multi-disciplinary meeting to prepare for the upcoming challenges.
Optimistic girls write down small goals before surgery
On the day of the operation on August 10, Wu's mother tied her braids for her daughter, and her daughter hugged the fluffy baby elephant sent by the medical staff, entered the operating room accompanied by her mother, and fell asleep under the anesthetic effect, and Wu's mother, who had not closed her eyes for many nights, returned to the ward to wait, "From doctors to nurses, every medical staff here makes me believe that this is the best arrangement in heaven." ”
I am about to return to school and continue my studies
The mother and daughter had a happy ending. On the fifth day after the operation, the girl was able to move around the ward accompanied by a nurse and began to eat a normal diet. Behind this, it is inseparable from the careful care of pediatric medical care. From breathing and rehydration support to liver function assessment and heat card needs management, the doctors and nurses of Jiahui Internal Medicine provide girls with comprehensive and professional postoperative monitoring. Pediatric surgery devotes more energy to post-operative care.
Zhu Yan, deputy chief physician of the Department of Pediatrics at Shanghai Jiahui International Hospital, said that in addition to the management of deep veins and other pipelines, the monitoring and maintenance of vital signs and other physiological care, the nurses of pediatric surgery also alleviated their once tense psychology through daily communication with the mother and daughter.
"When she first came out of the operating room, the girl's consciousness was already clear, but she was particularly nervous, and now she was much more cheerful and no longer afraid to talk to people." In the words of Dr. Li Jun, what she saw after the operation was no longer the shy girl she was, "there was light in her eyes."
After several days of recovery, the little girl who completely removed the tumor was no different from the ordinary girl. The only difference was that she had an extra Disney badge on her gown — a small gift from her nurse sister that featured Winnie the Pooh's smiling face as she spent her time in the ward. This shy girl may have made a wish in her heart that the next time she comes to Shanghai, what awaits her will no longer be the hospital, but the amusement park that truly belongs to the children.
If all goes well, the girls will soon return to school and continue their studies.
Author: Tang Wenjia
Editor: Gu Jun
Source: Provided by the interviewee, the privacy face of the patient has been blurred