This autistic orphan Xiaoming, now 34 years old, has been living in the nursing home for 11 years, and will be more.
This film is dedicated to the 15th World Autism Awareness Day dedicated to 10 million Chinese autistic families
In 1982, when China's first case of autism was publicly reported, Qi Qiansheng, a 45-year-old teacher at the Beijing Railway Electrification School, was worried about blind dates and love.
In 1988, he married a 24-year-old woman from rural Shandong, the same year, his son Xiaoming was born.
Bob's baby photo
More than half a hundred years old, it was a fortunate thing to be old and have children, but Xiaoming's various problems in language, cognition and behavior made Qi Qiansheng discover that this was a special child. The blows followed, and in 1994, Qi Qiansheng's wife died of lupus erythematosus.
At the same time, he slowly suspected that his son was likely suffering from autism (autism).
Until 1997, Qi Qiansheng had been basically determined. To this end, he also asked Professor Tao Guotai, who reported the first confirmed case of autism in China, for help. At this time, there were only a few hospitals in the country that could diagnose autism. Qi Qiansheng's continuous refresh of autism knowledge is exactly the portrayal of Chinese cognitive autism - as he wrote in his home letter at that time, autism is not a temperament and personality problem, let alone depression, it is a lifelong obstacle to face.
A Chinese father from single to marriage and childbearing, from having children to widowhood, to his son diagnosed with autism, and finally father and son have been dependent on each other for decades, all the tribulations, struggles and warmth have been recorded by Qi Qiansheng in 63 family letters to his brother Qi Qiansheng. Spanning 1981 to 2007, these family letters are a small millet floating in the vicissitudes of the times and a unique slice of China's autistic families. In 2011, Qi Qiansheng died. In May 2021, Qi Qisheng also passed away. The relics collator found the 63 family letters. Those yellowed letterheads, pens and pens are engraved with love and reluctance, pain and helplessness. No one can fight against the years, only love and pain can break through the time.
On the eve of World Autism Day in 2022, we revisited Qi Qiansheng's family letter and followed the clues to find Xiaoming in Beijing.
11 years, Bob, are you okay now?
Remember your dad Qi Qiansheng?
I heard you write well, what would you write if you could write a letter to dad?
Xiaoming is writing a letter to his father that yin and yang can be separated, but life and death cannot be forgotten. I hope that the young will grow, the strong will be useful, and the old will be finished. No one knows more about Qi Qiansheng than the 10 million autistic families in China.
He is the dead us, and we are the living Him. The good news is that times have changed dramatically. "Xiaoming's situation is a limitation of an era, not to mention China, the world is a pessimistic concept of the prognosis of autism," said Zou Xiaobing, director of the Child Development and Behavior Center of Zhongshan Third Hospital. His team of doctors at Zhongshan Third Hospital also launched an online free clinic on April 2 this year. 40 years ago, Professor Tao Guotai, who was the first to diagnose autism, said helplessly, "I want to help them very much, but I can't prescribe it." ”
Today, many medical experts have reached a consensus: timely discovery, acceptance and inclusion, and scientific intervention can help many children improve their symptoms and integrate into society. 20 years ago, Lu Ying, vice president of guangzhou Yangai Special Children Parents Club, was also a new parent, and now her son, Sensen, who has moderate autism and an IQ of 62, is about to graduate from college, and she has also become a parent leader who promotes the integration of education from small to old in Guangzhou. Now, she is promoting supportive employment projects, "Since 2015, we have continued to move forward with the power of the people on the one hand, and on the other hand, we have continued to promote the attention of the Guangzhou Disabled Persons' Federation." Tian Huiping, the founder of Xingxingyu, China's first autism service agency, has always been very firm, "As parents, we have to appeal to the society, we and our children have the right to a dignified and colorful life!" "The whole society is united to pay attention to the education and employment of autistic people." "I have autism and I'm working." "Working together to provide them with a more inclusive environment", "Our country is in action, health workers, educators are in action", "creating high-quality services from young age to older age"... Look! Listen! We already have so many fellow travelers!