The content and pictures of this article have been agreed by the protagonist,
This article is reprinted with permission from Sunflower Children (ID:curekids)
Every day she loved to let me tell her about when she was sick and hospitalized.
"When the diagnosis was not yet diagnosed, the doctor asked us to go for bone piercing, thinking that my daughter was going to suffer, I was so sad, I held you alone and cried all the time."
"I don't think I'm suffering, and it's fun to be hospitalized!"
This experience was like a long nightmare for me. But I am also very fortunate that in the memory of every day, only joy is maintained.
As soon as the blood picture was reported
The doctor's face turned serious
On January 12, 2015, Every Day came to my world. Lively and active, she never skimped on her smile, adding a lot of laughter to our little family.
2017 was an extraordinary year for our family. This year is the tenth anniversary of my relationship with my husband, but God has given us a particularly cruel test.
Every day before getting sick
In July of that year, the two-and-a-half-year-old day spent almost the entire month with a fever. High fever and low fever alternate, and injections and medicines do not seem to work.
Fast forward to August, and we felt the need to go to a big hospital. I took Tiantian to the West China Second Hospital of Sichuan University, combined with the symptoms of Tiantian, the doctor's initial diagnosis was pneumonia, and opened a list for us to go to the emergency department for infusion first, and then draw blood to observe the blood picture.
After a few days of infusion, every day when I was getting needles was still full of energy. When my heart was gradually lowered, the blood picture report came out, showing "naïve cells".
I couldn't understand these four words, and after handing them over to the doctor in a daze, I saw that his face was obviously serious for a few minutes: "There is a possibility of blood disease, do a bone marrow puncture immediately." ”
The way to the bone piercing room has to pass through the hematology ward, there are many children sleeping in the aisle, I see the bare-headed, dim-looking children, I hear crying, noisy, I hold my daughter, only to feel that this corridor seems to grow endlessly, it is all the way to the door crying.
Tian Tian didn't know what was happening until he was put on the table and began to cry. Because of his young age, the bone marrow fluid that had been taken twice in a row did not meet the standards, and it was not successful until the third time. Every time I did bone piercing, the doctor told her not to move. I clung to Tiantian, and she cried and said, "Mommy I love you, Mommy I love you..."
On August 18, the results of bone puncture came out, and I was diagnosed with acute lymphoblastic leukemia (L2 type) every day.
Daily bone marrow examination report sheet
Little Science
Childhood acute lymphoblastic leukemia, referred to as childhood rapid lymphogenesis, is a malignant tumor disease of the hematopoietic system, the main symptoms are unexplained fever, anemia, bleeding, as well as limb pain, liver, spleen, lymphadenopathy, etc., but there may be great differences between individuals.
Common treatment modalities include chemotherapy and hematopoietic stem cell transplantation. Due to the rapid progression of the disease, induction chemotherapy should be performed immediately upon confirmation. According to the risk level classification, the corresponding intensity and dose of treatment are carried out, and hematopoietic stem cell transplantation needs to be considered for some children with high risk of recurrence.
The overall survival rate in China is slightly lower than that in developed countries, but the overall five-year survival rate has now reached 70%, and the low-risk group can reach more than 85%.
Shave your head every day
Touching his head, "It's so comfortable."
After doing bone piercing three times in a row, I actually guessed a few points in my heart, but I actually got the diagnosis report and sat in the doctor's office and cried for a long time.
"80% of our children here are of this type, and the doctors are very experienced, as long as they listen to the doctors, they will definitely be able to pass this hurdle." The doctor's gentle words of comfort made me feel better.
When I walked downstairs, I finally stopped my tears, cleaned up my mood, called the unit to ask for leave, and also told my parents about it. At first, they didn't want to believe it, thinking that it was just that the infusion and medication some time ago affected the results. But the diagnosis report was in front of them, and the two elderly people still had no choice but to accept it, but they immediately said: "We will sell the house and get medical treatment!" ”
On August 24, I was admitted to the hematology department every day. At this moment, I just feel that the big stone in my heart has fallen, and I will not get worse when I start treatment. I also began to record for her daily how she fought the first big hurdle in her life.
August 24, 2017
Every day mom's Weibo record
In the first two days of hospitalization, every day may realize that she is a patient and will drive away all the people who come to see her, as long as her parents are with her. Although I knew that she was so rude, I only felt heartache.
On the 4th day of admission, the first phase of induction chemotherapy was started every day.
That night, we took her to shave her hair for the first time, and she didn't want to do it at first, and our family of three was crying while shaving. Unexpectedly, after shaving, I touched my head every day and smiled, saying: "So comfortable", I think my bare head is particularly fun, I have been touching my head all night, and I am happy until I fall asleep in the middle of the night.
Just shaved your head every day
Fight blood clots, build wards, sanya travel
Daily 911 days of treatment daily
Like all two- and three-year-old children, the most feared thing every day is to take injections and medicines. In the beginning, this was also my biggest headache, and I could only comfort her over and over again or prepare a little reward for her.
Fortunately, after more than 20 days, I accepted it every day. I no longer cry when I take medicine, I no longer often nag to go home, and I still have to cry when I get injections, but I receive it quickly.
Sometimes I really feel that the world of children is simple and beautiful, even if they are plagued by diseases, they cry when they are in pain, and laugh when they are in pain, which is really good!
At the end of September, the first treatment was about to end, but this morning I got up and put her hand in front of me every day: "Mom, do you see how chubby I have this hand?" "As soon as I saw it, the hand that wore the PICC tube was swollen and high, and my heart tightened, so I quickly called a doctor, and after the doctor saw it, let us go to the headquarters of West China Hospital to shoot the film immediately."
It was tossed until the evening, and the result was taken out, and it turned out that the swollen hand every day was due to a blood clot.
"Blood clots, but be careful, if you don't pay attention, you will lose your life." A sentence from the rounds doctor scared me into a handful of snot and tears, and I was relieved after communicating with a parent who also had a blood clot.
"Isn't treatment such a process of constant breakthrough, since it is already like this, listen to the doctor's words, but it is just two more injections a day, and the nursing is more careful." I secretly encouraged myself in my heart, and the result was indeed a thrill, and after more than a month of injections on time, the blood clots every day were completely gone.
Whenever I walk through the wards and corridors, I can always see many children lying on the bed all day, and mobile phones and tablets are all but treatment.
I can understand that there are a lot of discomforts with illness and treatment, but I always feel that they don't look like children like this anymore. So from the first day of hospitalization, I decided to keep Tiantian alive and angry no matter what the circumstances, not to recall it as a nightmare, not to make her feel special.
During the illness every day
Every day moms started learning child psychology
During the hospitalization, we read books, played games, played toys in the ward every day, and I moved her to the hospital with everything we could play, and every day she didn't feel that the hospitalization was very painful, but felt particularly fun.
It is also because of this that every day I actually gradually like to be hospitalized, and then back to the hospital, there is a feeling of returning to the ground full of joy, greeting doctors and nurses everywhere, looking for small patients who know each other, la can't hold back.
Especially when it was time to check the room, I saw Grandpa Gao (the doctor holding high) coming, so I immediately jumped out of bed and followed him behind his ass to knock on the door of the ward, shouting "round the room", sometimes I myself was in a trance, as if I was back to before she was sick.
But in the eyes of adults, hospitals have never been a fun place. Sometimes there are not enough beds, the night of living in the aisle is long and depressed for me, the cries, the footsteps of nurses coming and going, the beeping of the electrocardiogram, and for the first time I know that the cough of a child with a lung infection sounds like a seriously ill elderly person... These sounds still linger in my memory, reminding my daughter that she was once so close to danger.
In January 2018, Tian Tian had just finished her last treatment, and it was her third birthday, and Tian Tian Dad and I planned to take her to Sanya to play. But considering that every day has not yet been treated, we are still hesitant.
Before leaving, every day I ran to tell the doctor about this trip, and after getting the doctor's consent and advice, we called Tian Tian to the front and told her seriously: be sure to protect yourself, don't get hurt, don't get cold, don't eat things that are not clean... We even brought our own pots and pans and spices and the hotel chose the one closest to the local hospital.
This trip to Sanya, every day to have a lot of fun. Playing with sand and water during the day and watching performances at night, in the coldest season in Chengdu, we enjoyed a handful of summer in Sanya.
But in fact, we are still a little worried, fortunately, every day is particularly powerful, no need for us to deliberately worry, she can already protect herself very well. After the return trip, we took her to the hospital for the first time to report, and all the indicators were also very good.
Every day in Sanya
After that, when the blood was good between treatments, we would always take her out to play, brush Sanya second, climb Mount Emei, jungle adventure, tree house hotel also took her to experience.
Although I have a lot of worries every time I go out to play, I think it is still worth it to look at the happy look every day! With full preparation and physical condition permitting, I still want to take her around to see, while treating the disease, try to give her a good childhood, like other children.
When she was resting at home, she was also a child who couldn't be shut down, and often asked where to go to play today as soon as she woke up. As long as her blood and air conditions are good, I will take her to some open outdoors and few bookstores.
Because the treatment delayed the time to go to kindergarten every day, I almost turned my home into a kindergarten, filled with her favorite toys. She wants to sing and dance with her, and she also makes dumplings, bakes cookies, and crafts with her.
On smog days, bake cookies at home
Of course, as a parent, you still have to be vigilant at all times, all kinds of disinfection supplies have long been available at home, and often a blood indicator can make the whole family instantly enter a "highly alert state".
Every day mom records the norm at home
On February 25, 2020, the 911th day of treatment, every day of treatment, we finally "went ashore"!
Daily treatment report sheet
Life is back on track
Transform into a skateboarder
In June 2020, we sent Every Day to kindergarten. It may be more than 2 years of staying with me basically every day, at the beginning, every morning is a life and death, waiting for the teacher or acquaintance of classmates to pick her up before she is willing to enter the kindergarten, almost two months to adapt.
I'm aware of that too, and both the family and she are making adjustments. Now that she is a schoolboy, she is becoming more and more accustomed to group life.
From the very beginning, we told Every Day what her illness was. At that time, she was still young, thinking that leukemia was similar to a cold, and then she slowly learned that it was much more serious than a cold, and it took a long time to treat, but as long as she listened to the doctor's words, she could be fine.
She is also very open to talking to others about her illness now. Someone asked her why she didn't go to kindergarten, and she said that because I had leukemia, she made the person who asked the question gag for a while. When the school physical examination draws blood, she will comfort other children that she used to have needles often, and it only hurts once and it doesn't hurt.
Every day I like to exercise, after stopping the drug she wanted to learn skateboarding, at first I also felt very dangerous and unsuitable, and then consulted a doctor, the doctor felt that as long as she has good energy, it is okay to do a good job of protection.
Now that she has been studying for more than a year, she likes it very much, and says that her dream is to be a professional skater to win glory for the country. I am more "Buddhist", and I only hope that she can always keep this love and enjoy the long years.
Skateboarding competitions every day
Dictation | Mom every day
Interview & Writer | Summer rain
Responsible editor| learned
Typography | Jelly
Proofreading | Xinyue
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