Text | Rice grain mom
Most people know about frostbite, probably because of the famous Hawking. After his diagnosis at the age of 21, his body deteriorated day by day, and in the last period, he could only use his eyeballs to dominate computer equipment, and he had to use a speech synthesizer to speak.
As one of the greatest physicists of modern times, this great man is in a wheelchair, but his mind is swimming throughout the universe.
Remember the rice grain mother before in "Look at the Beihang Frostbite Boy, Dr. Tsinghua in a wheelchair: Child, why don't you work hard? In this article, is the boy with frostbite who was admitted to Beihang written?
Illness did not rob them of their belief in excellence, but on the contrary, this sense of urgency to live to death further condensed the essence of their lives and made them challenge themselves against the clock.
The disease of frostbite is not only paralyzed, life can not take care of themselves, but also the muscles of the whole body (including the trunk, limbs, chest and abdominal muscles, etc.) become weak and atrophied little by little, but the human brain is awake, so the sick person will perceive that they are more and more unable to control their own body.
It's really what it feels like to watch your life pass little by little and be powerless.
The post-90s girl that the rice grain mother wants to tell you today is also suffering from frostbite. She also found the light of her life in the torment of illness: she pinched more than 200 hands in 6 years!
The girl's name is Xiang Chenxi, and she earns herself medical expenses by pinching her hands, creating a loving, colorful world for herself and the people around her.
The world kissed me with pain
Xiang Chenxi was born in Enshi, Hubei Province, and before the age of eight, she lived with her family like every carefree girl.
In the first grade of elementary school, she found that her muscles began to paralyze a little, as if they were frozen.
Her family took her to the hospital and was diagnosed with "progressive muscular dystrophy."
This was nothing less than a thunderbolt on a sunny day for Xiang Chenxi and her family, and from then on, she had to face her body a little stiff, and by junior high school, she could hardly stand.
In her sophomore year of high school, she was forced to drop out of school and go home, watching herself spread a little bit, and the most urgent problem in front of her was her own medical expenses.
In order to take care of her, her mother quit her job. My father was no longer young, but he was still working on the construction site. It was difficult to support the family's expenses with a meager income, not to mention paying for her medical expenses.
Xiao Chenxi's mentality can be imagined, she watched her condition deteriorate little by little, knowing that her illness was like a bottomless pit, and the treatment fee invested by her parents only maintained her life, and it was impossible to heal.
From the legs to the arms, to the lungs, and finally from the inability to walk to the inability to breathe, until the end of life.
Desperate to share the burden for her family and herself, she decided to use her limited vitality to try to make money.
She tried to do Taobao customer service, game training, writing novels, embroidery cross stitch... But none of these methods worked.
By chance, she found the ultra-light clay pinched handmade. That time, the little niece bought clay and came back to see that they were having a good time, and Xiang Chenxi also wanted to try it, so he made a small bear.
It was her first exposure to ultra-light clay, and she fell in love with it, who had always loved to do crafts.
By then she was 80% paralyzed, and sitting for more than an hour was difficult.
But in order to find a way to make money and afford her own medical expenses, and to be able to continue to do it for a long time, she decided to grit her teeth and insist on doing it.
She said she must live with dignity and value.
But I sang in return
Although most of his body was paralyzed, his fingers and wrists were still flexible for the time being.
At first, she had no experience, no professional tools, and the handmade ones she made looked ugly, such as this Olympic champion Fu Yuanhui:
Later, through continuous study and research, she found that there are many doorways in the clay handicraft office. Professional tools are needed, and there are many tricks to make.
She kept trying, and little by little she was able to make the clothes of the characters more three-dimensional, and her hair was clearly rooted. This is where her interest lies, and in a little bit of exploration and experimentation, she has discovered her potential.
Because most of the handmade shapes come from anime characters, to do a good job, it is necessary to watch a lot of anime and understand the characters and plots in order to better construct the details of the handmade.
After doing hand-made work with Morning Dawn, he will watch a lot of anime, and then try the correct drying method, study the structure construction, character proportions, etc. In this way, her craftsmanship improved by leaps and bounds, and the handmaster was made like this:
It can be said that it is quite professional!
She tried to open a Taobao store, but she didn't expect her handmade to be super popular. His love has been echoed by everyone, and he has become more and more energetic to the morning light, and gradually found the meaning of life.
However, the disease did not let her go, the symptoms of the whole body are still spreading, when it spreads to the neck, she has to rely on the help of her mother every day to adjust the sitting posture for nearly 1 hour to successfully find a comfortable position, but after a long time, she will still feel unbearable pain and will slide down from the chair.
She almost only has her wrists and fingers able to move normally, so when doing the handwork, she needs to use the strength of her hands to drive her whole body, and the calluses are worn out on the bone joints.
Her progress is getting slower and slower, and she can only complete one hand in a month in the later stage.
But her wish came true, because the sales of the handmade were so ideal that she had fully borne her own medical expenses, and even the money earned by the buyers could subsidize the family.
With the expansion of influence, Xiang Chenxi also became famous in the clay hand circle. She began to make clay handicrafts into a business, live broadcasting, recording tutorials, and wanted to share the experience she had found with more people.
Now, Xiang Chenxi has 175,000 fans in the B station, and her students include disabled people like her, people from all walks of life, and even stars.
In addition, she opened her own "Clay Academy", which teaches people with disabilities for free and organizes communities to help them earn income from clay together.
In this way, she made a lot of like-minded friends, and her daily life became richer and richer, although she was in a wheelchair, her vision and heart had flown farther and farther.
In the process, she saw how much potential she had, and when the students called her teacher, she didn't mention how much she felt accomplished.
The energy of life endurance
One day in 2020, Xiang Chenxi's condition still went to a dangerous node in the deterioration step by step. That day, she suddenly began to be unable to control her breathing.
When she was sent to the ICU by her family for rescue, her trachea was cut open, and the oral intubation made her experience a sharp pain that she had never experienced before, and the whole person could hardly move, and even the most basic breathing had to bear so much pain to complete.
After rescuing her, she looked at the ceiling and felt that the road ahead of her was dim. After huge medical bills and unbearable illness, what awaited her was an irreversible death.
A thought kept flashing in her mind: I wanted to die.
When her confidence in life fell to the bottom, she received a lot of encouragement from fans. Warm words struck her heart.
Sometimes that's the case, maybe a stranger's words can restore a person's confidence to live, on the contrary, a harsh word in the Internet storm can also bury a young life.
Fortunately, Xiang Chenxi loved the darkest moment and harvested the "light of life" from fans. She said:
"I'm grateful to my fans for helping me through this time and time again, and I'm grateful to my fans for recognizing me."
She also made a self with a ventilator and a Hanfu out of clay:
Migrain's mother felt that she could get so much encouragement because she had planted good causes herself before. Because she impressed her supporters with the power of love and hope, she let this force feed back when she was at her weakest.
Because she knows that there are so many people in the world who love her, when she faces the problem of death again, she will say:
"Because there is love, the world is worth it."
Xiang Chenxi had a particularly good sentence, she said: "Every day I live now is the healthiest day for the rest of my life." ”
This should be an attitude towards death, the moment is the healthiest day of the rest of life, that must be to use all the strength of each day to live well!
She said: "Although there is no miracle in life, we will drag the remnants of our bodies and live a miracle." ”
It is said that suffering will hone a person's resilience to survive to the greatest extent, and these realizations to the morning sun are like the tender shoots that struggle to earn their heads in the dark land, revealing the new green of tenacious persistence.
Xiang Chenxi's experience made The rice grain mother cry. The world kissed me with pain, but I sang in return. The more difficult life is, the more you have to live beautifully with a tenacious posture.
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