Text/Figure Yangcheng Evening News all-media reporter Zhang Hua
On January 15th, China's first inflammatory bowel disease (IBD) offline pop-up event "I want to gain 10 pounds" weight gain experience hall initiated by Beijing Bethune Charity Foundation and supported by Janssen China was unveiled in Guangzhou. The two-day pop-up event includes script decryption, creative kitchens, cultural and creative markets, music talk shows and other fun forms that are popular among young people today, and spreads the knowledge of the disease to IBD patients and the public with the innovative design of immersive experiences. At the scene, experts encourageD patients to respond to the disease with a positive attitude, hoping that they can standardize treatment and return to normal life.
"I want to be 10 pounds fat" weight gain experience hall debuted in Guangzhou
Gaining weight is the desire of patients with IBD
At the event site, the reporter saw Li Mingsong, chief physician of the Department of Gastroenterology of the Third Affiliated Hospital of Guangzhou Medical University, and IBD patients participate in the production of handmade fragrances, providing patients with the opportunity to face face-to-face "talk therapy" with big coffee experts, and jointly discuss IBD diagnosis and treatment and self-health management in a relaxed production atmosphere.
Li Mingsong, chief physician of the Department of Gastroenterology of the Third Affiliated Hospital of Guangzhou Medical University
Director Li Mingsong introduced that inflammatory bowel disease is a chronic, recurrent non-specific intestinal inflammatory disease, with two peak ages of onset, one is about 20 years old, and the other is about 50 years old. Due to the complex etiology of IBD, it is easy to misdiagnose, and it can be disabled, which seriously affects the normal life and work of patients.
At the scene of the event, the reporter met a 31-year-old IBD patient. "I developed Crohn's disease in 2019 and had symptoms such as abdominal pain, diarrhea and weight loss. I was 183 centimeters tall at the time, and after two months of illness, my weight dropped to 98 pounds. As thin as a whipping post. Mr. Fu took out a picture of him when he was just sick. Later, after surgery and drug treatment, Mr. Fu's condition was stabilized. "I've now increased my weight to 150 pounds and the symptoms of discomfort are gone."
Director Li Mingsong said: "Inflammatory bowel disease includes Crohn's disease and ulcerative colitis, these two diseases themselves involve the digestive tract, so it affects the body's digestion and absorption, while the disease leads to strong metabolism in the human body, nutrition is in an unbalanced state, so such patients basically have different degrees of malnutrition. It can be said that the degree of malnutrition or wasting is positively correlated with the condition of the disease, and the more serious the disease, the more emaciated the human body. Therefore, our doctors attach great importance to the nutritional status of IBD patients. And the patient's weight gain also means that the disease is effectively controlled. ”
Handmade fragrance making site
Stick to medication and return to normal life
"At present, IBD is still a lifelong disease, in addition to professional and standardized diagnosis and treatment, good patient compliance is the guarantee of effective treatment." Therefore, IBD patients and their families should adhere to treatment and follow the doctor's instructions for long-term medication to achieve better treatment goals. Professor Li Mingsong stressed.
At the event site, Professor Li Mingsong shared with the patients on the progress of drug research and development in the field of IBD diagnosis and treatment, especially the development of biologics to provide better and safer innovative solutions for effective control of inflammation and maintenance of clinical remission.
With the development of innovative drugs for IBD treatment and the inclusion of medical insurance, the economic burden on IBD patients will be eased and medication compliance will be greatly improved. Mr. Fu told reporters that although he underwent surgery, drug treatment was the foundation, so he still insisted on medication. At present, after his drug expenses are reimbursed through medical insurance, his self-payment is 10,000-20,000 yuan a year. "Compared with before, it has greatly reduced the economic burden." I am currently working in finance, and I can afford my own medicine. ”
In response to the topic of self-health management of IBD patients, Professor Li Mingsong reminded, "While receiving IBD standardized treatment, patients should also be responsible for their own health, whether it is diet or lifestyle, they must do a good job of self-management." ”
In addition, since IBD is a lifelong onset disease, the psychological and psychological interventions and assistance for patients must not be neglected when discussing the treatment of IBD. Professor Li Mingsong said, "On the one hand, we must strengthen the confidence of patients in active treatment, and on the other hand, guide patients to cultivate hobbies and interests, and maintain a relaxed mood is also a beneficial measure to help patients better coexist with the disease and achieve healthy weight gain." (For more news, please pay attention to Yangcheng Pie pai.ycwb.com)
Source | Yangcheng Evening News Yangcheng Pie
Editor-in-charge | Chen Hui