If one day,
Your life body has lost most of its mobility,
Even to maintain basic survival, you have to borrow the hands of others,
What will you become?
It is the resentment of the heavens that people lament the injustice of fate,
Or make life meaningful in the days when you see it at first sight?
The 29-year-old "hand lady" Chenxi proved to people with her actions that even if she suffers from a rare disease such as immune-mediated necrotizing myositis, even if she can't run and walk like a normal person, she can still live a seemingly gray life.
At eight o'clock in the evening, the live broadcast began, and the girl wearing a ventilator introduced her handmade works to everyone in the camera. The smile of Morning Dawn in the live broadcast is sweet, except for the ventilator that looks out of place, Morning Dawn is no different from other anchors.
A girl with a hard life who has suffered many disasters since childhood
"Handmade Lady" Chenxi, whose real name is Xiang Chenxi, this 92-year-old girl from Enshi, Hubei Province, now runs her own Taobao handmade shop in Wuxi, and will broadcast her own handmade process live on the Internet to teach more interested people how to make handmade.
When She was young, she would always wrestle inexplicably, and her family took her to the hospital for examination and was diagnosed with "progressive muscular dystrophy". This is a disease that gradually atrophises muscles with age, gradually loses the body's mobility, until the whole body is paralyzed, and even affects the heart and lung function and leads to failure.
When he was young, Chen xi knew very little about the disease on his body, and he only felt that he would often wrestle, and occasionally he would not be able to stand up after squatting for a long time.
In her second year of junior high school, the number of times she couldn't stand up became more and more frequent.
In her third year of junior high school, she found that she had to rely on the help of her friends to go up and down the stairs.
By the age of 19, she couldn't stand up at all, so she had to drop out of school and go home to recuperate. When separated from her classmates, Chenxi said: "When my illness is cured, I will come back to continue the college entrance examination, and I will go to college with you, to talk about a sweet love, and to become the person I want to be." ”
After failing to stand up and only collapsing in a chair and gasping for breath, Chenxi finally confessed her life and finally realized what the disease "progressive muscular dystrophy" meant. It means many limitations of life, which means a short life that sees the end at a glance compared with normal people. "It's just a pity that the good wishes that were made once could not be fulfilled," said Chenxi.
There is no shame in making money on your own
On the days of leaving school, Morning Dawn did not sink at home. She tried her best to work to make money, to do something for the family, who was already poor but had borrowed money for her treatment, to ease the burden on the family.
Dawn tried a lot of work. She wrote novels, embroidered cross stitches, persuaded her parents to buy her a computer in an era when computers were not so popular, and Chenxi worked many part-time jobs on the Internet, but her income has been unstable.
Until later, Chenxi found a job in the website's customer service, so that she finally had a small but stable income. She saved up more than a year's salary to buy herself an electric wheelchair, and she had her own "feet". In 2016, Chenxi was inspired by a deaf-mute girl and began to do live broadcasts, popularizing the disease of muscular dystrophy, hoping that more people can pay attention to this rare disease.
I started making clay handicrafts because of a fortuitous experience. Once Morning Dawn's little niece bought back clay, and Morning Dawn found this way of creating very interesting, so she started to make her first handmade work, which was a little bear. Later, she began to take the art into the art and began to study the art of handmade craftsmanship. From the beginning, when he didn't even use tools, to becoming more and more refined, Chenxi used his tenacious will to overcome the limitations of his body.
Maybe I could turn this craft into a way to make a living, Morning Dawn thought. As a result, Chenxi opened a shop on Taobao, and more and more people knew about this special "handmade lady".
"There should be a lot of people like me who can't work properly, and since I can do it, then they can do it too." In March 2019, Chenxi began to do live broadcasts, teaching more people to do works with clay kneading hands, and created the handmade clay making academy online.
Chenxi recorded each production process into a detailed decomposition video, so that every interested or even novice Xiaobai could understand it.
From the beginning of going it alone, to now many excellent teachers have joined the team to guide the students together. Up to now, the "Clay Academy of Morning Dawn" has recruited more than 260 hand-made enthusiasts, and she has pulled successful graduates into the group, so that these students can earn income by taking orders. Now her shop has 23 part-time hand-made women, including rare patients, disabled people, and unemployed mothers at home.
By making clay by hand, Chenxi was finally able to bear the cost of daily treatment herself and the cost of renting a house for the family. "There's no shame in making money on your craft." Morning Dawn said that life seems to have become hopeful.
The love of her parents is the capital of her dreams
Online shop business is getting better and better, and the Clay Academy is getting better and better, but Chenxi's condition is deteriorating.
As early as when Chenxi was still doing website customer service, Chenxi's arm had lost most of its strength, and she could only endure to put her arm on a special table to borrow power. Later, even normal sitting became a big problem, because there was no strength to control the movement of sitting down, and Chenxi would often fall on the chair. By 2019, Morning Dawn had almost lost the ability to stand. Ordinary standing and sitting down for normal people has become a luxury for the morning light.
In February 2020, Chenxi's condition began to deteriorate sharply, she suffered from pulmonary hypertension, and the symptoms of chest tightness and dizziness made Chenxi miserable. In June this year, when Chenxi participated in the public welfare hand-organized teaching activities, symptoms of respiratory failure occurred at the scene, the trachea was cut open to maintain breathing, and then Chenxi was diagnosed with "immune-mediated necrotizing myositis". Now Chenxi is 80% paralyzed, needs to wear a ventilator most of the day to maintain daily life, and only the fingers can move flexibly...
"Those days, I thought I was going to die." Dawn recalls those desperate and powerless days, feeling as if she were passing through a tunnel with no end in sight. "I saw my dad secretly wiping his tears, and my mom was silent all day, but she didn't think about giving up on me. Even if it's for Mom and Dad, I must hold on. "She knows that Mom and Dad have given everything for this family, for her, and she doesn't want to disappoint them.
Fortunately, Chenxi is a "hard-lived" person, she spent 20 years to learn to get along with the gradually degenerating body, never bowed to death.
After paying attention to Chenxi's social account, the first message that Chenxi replied to was: Hello, thank you for your attention, I am a little fairy who loves handicrafts and loves life. The morning sun is a small sun, full of positive energy, thanks to the blessing of love for three lifetimes.
In this girl who was born in 92 years but experienced many pains that are difficult for ordinary people to understand, there seems to be a firm belief in dying: I want to live, I want to live wonderfully.
"You see, my daughter knows that I like gold jewelry, and Chenxi's eldest sister bought me a necklace, and Chenxi saved up money to buy me a gold ring." As Dawn's mother spoke, she found a delicate box from the cupboard and took out a gold ring. "I usually have to wash clothes and cook, afraid of losing it, I am reluctant to wear it, so I take it out from time to time to see." A beautiful little girl, with this disease, there is no way. ”
"I want my daughter to be happy every day." Morning Dawn's mother said.
I'm just afraid I'm a useless person
"I actually complained after I got sick, but to be honest, a lot of times it's a feeling of powerlessness. I had a lot of things I wanted to do, but I couldn't. But I don't let myself be too depressed, let myself think about things, I still have a lot to do, and A lot of things to do. Dawn said that she was an unfortunate person, but at the same time she was lucky.
"In fact, for patients with rare diseases like ours, death is a common thing, and it will come sooner or later."
Chenxi was most impressed by a guest who had customized clay handicrafts for himself, that is, a boy in his twenties, who found Chenxi and wanted to customize a motorcycle handmade. He said, "Morning Dawn, I have leukemia, the doctor said I don't have much time, I just like motorcycles, I plan to go to Sanya to ride a motorcycle, and when you have done it by hand, I will take it with me."
Sanya, the blue sea and blue sky, the salty sea breeze, these are also the morning sun yearning. The boy said: "If I leave, the motorcyclist can still be left for my parents, and I will also give them a memory." ”
Chenxi, who has never touched a motorcycle, bought motorcycle ornaments for this purpose, and copied them one-to-one. Soon after, the motorcycle was ready, and Morning Dawn rushed to send a message to the boy, but the boy's message pop-up window never replied.
"I can't decide the length of life, but I can decide the width of life. Life is hard, but I want to cherish it," said Morning Dawn.
For the matter of death, Chenxi said that she had prepared for it very early, and even when she fell ill before, she had made a will to donate the body. She just felt that she should do more before death really came. Looking at the positive and optimistic morning light, I can't imagine how much pain and suffering I have to endure behind the seemingly light clouds and breeze.
"I'm just afraid I'm a useless person."
For the illness in his body, Chenxi did not have too many illusions, but he would not give up any hope. "I hope someone can take over my shop and college, even if I am gone, everyone can see the video of the college, so that more patients can learn this money-making technology." Regardless of the road ahead, she will choose to continue the treatment, continue to be active in the clay world, and continue to do her best to help those in need.
Life kisses me with pain, but I sing in return.
There are many unfortunate people in this world who are as unfortunate as the morning sun, who experience pain but still live a tasteful life.
You have to believe that as long as you are strong and kind, life will always give you ten thousand reasons to love it.
Transferred from: CCTV
Source: CCTV