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On November 5, 2020, Xuanxuan, a 7-year-old boy with spinal muscular atrophy, realized his dream of seeing the ocean.
On November 5, 2019, a 11-year-old boy with spinal muscular atrophy realized his dream of becoming a physicist.
On January 15, 2021, a 5-year-old boy with neuroblastoma realized his dream of seeing Ultraman.
On August 18, 2019, Xiao Rui, a 6-year-old boy with extraosseous Ewing sarcoma, realized his dream of becoming a firefighter.
On August 30, 2019, Achen, an 11-year-old boy with non-Hodgkin lymphoma, realized his dream of becoming a train captain.
Beijing, February 28 (Xinhua) -- On February 28, Xinhua Daily Telegraph's WeChat account published a publication entitled "Meet Ultraman, Make Martial Arts Movies, Become a Car Designer... They use "private customization" to protect the dreams of children with rare diseases" report.
It's a "private customization" about dreams.
In September 2017, traffic police officer Zhang Lingmin stood at a busy intersection in Fuyang, Hangzhou, with crowded traffic in the morning rush hour. His partner standing next to him was an 8-year-old boy, Zhe Zhe. He wore a traffic police uniform and commanded vehicles and pedestrians with great care.
Vehicles lined up in turn to pass through the intersection, and the crowd crossed the road in an orderly manner, during which a small accident occurred between the battery car and the car. However, it was all carefully planned in advance. The road was temporarily closed, and more than a dozen private cars and nearly 100 people participated in the "performance", the purpose of which was to help the little boy realize the "traffic police dream".
Zhezhe suffers from a rare disease commonly known as "Little Fat Willie", a genetic disorder that begins to eat uncontrolled diets from the age of 12,000 to 15,000 people.
The "imperfect" body has sparkling dreams. With the help of a public welfare foundation called "Dream Guardian", Zhe Zhe completed a dream come true experience. Zhe Zhe's parents are very touched, it turns out that there are so many people in the world who are willing to help their children achieve a naïve wish.
Awaken the joy of a sick child and convince them that anything is possible. This is the purpose of the creation of "Dream Guardian".
(Subtitle) A well-planned "Dream Fulfillment"
In 2016, Xu Wenjun, a logistics engineer at a company in Hangzhou, was deeply impressed by a documentary called "Little Batman Strikes Out".
A 5-year-old leukemia boy in the United States dreams of becoming Batman, and with the help of a nonprofit organization, thousands of volunteers make his superhero dream come true, turning San Francisco into Gotham City, and the little boy wears a Batman suit to arrest penguins and riddlers.
This fairy tale has touched countless people. Xu Wenjun had tears in his eyes after reading it, and what touched him was not only the simple dream of the child, but everyone was trying to protect this dream.
Xu Wenjun looked up relevant information on the Internet and found that there was no similar public welfare organization in China at that time. He decided to resign and devote himself to public welfare. He said that there are many such seriously ill children in China, and their dreams also need someone to help them realize.
Xu Wenjun and his friends pooled 200,000 yuan as a start-up fund to launch a public welfare activity called "Dream Guardian", "Our purpose is to help children and adolescents who are unfortunate to suffer from major diseases and make their dreams come true." Xu Wenjun said.
But it didn't go well at first. Parents with children treat Xu Wenjun as a liar. He contacted the hospital, called from house to house, and refused, only one hospital in Shanghai agreed to talk in person. He ran to Shanghai, where the doctor thought it "sounded beautiful, but the project was immature," and was still rejected. Three months have passed, and not a single child has come to make a wish.
He searched on various help forums on the Internet, and finally at the end of 2016, the first child who made a wish was found through Douban. Ying, a 17-year-old girl with leukemia whose hometown is in Nanchang, Jiangxi, has always dreamed of one day being admitted to the Academy of Fine Arts and becoming a designer.
She had never received professional training, and the high cost of treatment could not support her dream. After making a wish, Xu Wenjun began to help her contact a professional studio and arranged for her to come to Hangzhou to learn painting for free during the time allowed by her body.
"Maybe with the spiritual pillar, her physical condition was already very bad, but she survived strongly, and after completing the bone marrow transplant, she was officially transferred to the studio to study, and now she is also admitted to the academy of fine arts of her choice." Xu Wenjun said.
Ziying told him: "I am not afraid of death, I am afraid of failing to live up to the hope you have brought me." ”
The first dream realization action made Xu Wenjun feel the joy of helping others, he sent a Weibo, wrote a public account article, but there are still few followers, almost no one came to the door to make a wish, all rely on his initiative to find.
At the beginning of 2018, the progress of the project was still slow, and the 200,000 yuan of start-up funds were almost spent. They had to decide that it would be over at the end of the year.
Fortunately, the turnaround appeared. They were invited to participate in a variety show on Hunan Satellite TV, which not only received high attention, but also received help from the writer Nanpai San Uncle and others, and more and more volunteers also participated in it, and their strength gradually grew.
In 2019, the "Dream Guardian" public welfare foundation was officially registered and established. They have also begun to cooperate with some non-profit organizations and hospitals to collect children's dreams, and their public account backstage will often have children's parents to make wishes.
"Every sick child has his own little dreams and needs to be guarded." Xu Wenjun said.
(Subtitle) Children with sickness
A dream that shines with light
The change in the script of life may simply be due to a genetic misalignment.
Wenzhou boy Bun has spinal muscular atrophy, referred to as SMA for short. This is a rare disease that gradually loses mobility as we age and the respiratory system also fails.
In 2019, he made a wish to "Dream Guardian" to become a physicist.
Xu Wenjun contacted Thermo Fisher Scientific (China) Co., Ltd. to arrange a transmission electron microscope experience class for Xiao Baozi at the Wenzhou Research Institute of the University of Chinese Academy of Sciences.
"Through transmission electron microscopy, you can observe the morphology of the virus and identify the disease." A small bun in a wheelchair listened carefully to the researcher's explanation.
Xiao Baozi usually likes to visit the B station and collects a lot of videos of the main technology UP. The world of physics fascinated him.
Under the guidance of the teacher, he learned the principles and use methods of transmission electron microscopy, and observed a sample of a nano-gold rod.
For Xiao Baozi, although it is only a simple experience, far from becoming a physicist, such an experience is like lighting a light on the gray life.
Xu Wenjun said that there are about 20 million rare disease patients in China, and more than 200,000 new patients are added every year. 50% of people with rare diseases are children, and 30% of them cannot live past the age of 5.
These "imperfect" children are also the objects that the "Dream Guardian" has been guarding.
The 69th dream realized by "Dream Guardian" is to let changfang, a 4-year-old boy with SMA, meet his superhero Ultraman.
Every child's childhood has its own hero, growing up with himself and accompanying himself to sleep. Chang Fang once told his mother that his wish was to meet Ultraman, who was a messenger to protect world peace and would grow up to be as powerful as he was.
Growing up, for these rare disease children, is a distressing word. Growing up means going backwards and means the beginning of difficulties.
"We believe that in the deepest despair, children with dreams will eventually encounter the most beautiful scenery." Xu Wenjun said.
Chang Square sat on Dad's shoulder and made ultraman's killer posture. Shanghai Xinchuanghua Cultural Development Co., Ltd., which owns the domestic copyright of the "Ultraman Series", also specially arranged a separate meeting with Ultraman for the children. When Digimon Ultraman appeared in front of him, Chang Fang excitedly clapped and hugged him.
"The world of children is very simple, they just want to meet Ultraman and hug him, because in their eyes, Ultraman is the hero who saves the earth, and the spiritual pillar of their victory over the disease." 」 Zhang Leilei, a staff member of "Dream Guardian", said.
"Ultraman was born from light, and his original intention was to bring people unlimited positive energy." Xu Wenjun said that when Ultraman stepped out of the TV screen and approached the children, he brought the faith of overcoming the disease to their young minds.
In more than 4 years, Dream Guardian has helped 157 seriously ill children realize their dreams.
The 15-year-old boy with secondary epilepsy put on the dream racing suit, put on the helmet, and sat in the passenger seat of the race car driven by Han Han; the 13-year-old boy with Du's muscular dystrophy dreamed of becoming a hero, wearing a red cape, walking on the wall, punishing evil and promoting good, and finally filmed a "martial arts movie" of his own in Hengdian Film and Television City; the car design sketch drawn by a 15-year-old child with blood disease was made into an electronic rendering by the automobile manufacturing company, and the dream car designer ...
I want to see the sea, I want to be Princess Ye Luoli, I want to be a high-speed rail driver, I want to be a pastry chef... On the wish list, children's various dreams are also telling us that living in this world is not only food and clothing, not only life and death, but also things that are as warm as dreams, and those are the light of life.
Those unfulfilled dreams
As a newly established public welfare foundation, not every child's dream can be fulfilled.
Xu Wenjun also had times of helplessness and regret. Some children leave before their dreams are realized; some children's dreams are slow to be realized.
Zhang Leilei's desk has been posted with a sticky note writing about the dream of Bao Jenny, a Wenzhou girl with SMA, to write a song for her idol.
Because of the disease, her normal lung function has long been lost, and her breathing relies on a ventilator that runs 24 hours a day. With the only right thumb that can still be moved to slide the phone screen, she wrote more than a hundred poems and published a collection of poems.
"I was born destined to die, but I want to live now." Jeanne Bao wrote in her poem. She hopes to work with her idol and hear him sing songs she writes.
"In my darkest days, listening to his songs, I grew stronger in his songs." Jeanne Bao said.
Xu Wenjun has been trying to contact the singer, but for various reasons, Bao Jenny's dream has not yet come true.
"Practical reasons make it more difficult to realize some dreams." Xu Wenjun wanted to plan a "dream journey" for a seriously ill child, not simply changing into Qi Tian Dasheng's costume and taking a few photos.
This is a "big plan". He wanted to design a scene in the center of Hangzhou: a monster invasion, Qi Tian Dasheng came to the rescue, the wheelchair he was sitting in "transformed" into a douyun, and he wanted to protect the city. "I hope that everyone can see and participate voluntarily, but this requires cooperation from all sides, which is very difficult."
A study by the Wishing Charity Foundation in the United States has shown that the realization of dreams will bring about an increase in children's confidence in treating diseases, which can alleviate negative emotions such as anxiety and anxiety during treatment, and also alleviate the pressure of parents and bring spiritual support.
"Dream fulfillment cannot be compared with ordinary drug treatment, it is more like a kind of spiritual treatment, which can unshackle the inner shackles of seriously ill children and dispel the haze in their hearts." Xu Wenjun said.
Many of these children are hospitalized for a long time, living in a monotonous and boring ward, and the embellishment of dreams seems to paint a colorful stroke on their blank life. "A dream is a belief for a child, and it is not something that can be replaced by simply buying a gift." Zhang Leilei said.
The sense of accomplishment of helping children realize their dreams has made Xu Wenjun persist. "Nowadays, in China, 'Dream Guardian' is still a relatively niche public welfare project." Xu Wenjun said that he hopes that in the future, in every hospital, a wish mailbox can be placed, so that every child who is hospitalized because of severe illness has a chance to make a wish.
This is also Xu Wenjun's unfulfilled dream.
"I want every parent to know that although your child may be unfortunate enough to have a serious illness, they can still make their dreams come true." He said. (Reporters Wei Donghua, Wang Siyuan, Huang Xiao, Zheng Mengyu) (End)