The picture shows Huang Siyin and Huang Siyan
Each of us has a childhood, and if we were to recall one of the most memorable things about our childhood, some people would say that when I was 7 years old, I entered elementary school, started my learning career, and met a group of unforgettable friends; some people would say that I went to the summer camp organized by the school during the summer vacation when I was 8 years old, and so on.
Huang Siyin and her sister Huang Siyan, who are now experiencing childhood, have lost these opportunities forever, because both sisters have suffered from a rare disease---- spinal muscular atrophy, which can weaken people's muscles over time and affect lung function. The disease is currently incurable, rehabilitation training runs through the entire treatment process, and the rest of the life can only rely on a wheelchair to live.
The picture shows Chen Chao, Huang Siyin and Huang Siyan
In 2013, Huang Siyin was born in a happy little family in Shanxi, with parents, grandparents and grandmothers who loved her. When Huang Siyin was a little younger, she found that she often wrestled when walking and often broke her feet. Huang Siyin's parents took their children to the doctor, but the cause has not been found. At this time, Huang Siyin's parents did not realize how serious the matter was, so they continued to do so for several years.
In 2016, this relatively happy little family ushered in a small life - Huang Siyan, Siyan has been quite normal, until the past two years also began to wrestle a little, and even the phenomenon of respiratory function declined. The happy days of this happy little family did not last long, and in 2017, something happened that was enough to sensationalize this little family.
In the more than a year since Si Yin and Si Yan have been ill one after another, the couple does not know how many times they have quarreled, and because the sisters' medical expenses are expensive, the family has gradually become unsupportable. Unfortunately, life is not a TV series, and there is no plot in which parents are trying to earn money to see their children for their children, and Huang Siyin's father chose to leave this originally happy family of four in December 2017. Leaving only her mother Chen Chao to bear all this alone, but she was not defeated, Chen Chao worked alone outside the home to maintain the family after the divorce, and the sisters were cared for by their elderly parents, and such a day did not last long.
In 2018, Chen Chao's father was diagnosed with stomach cancer and died of stomach cancer in 2021. At the beginning of his father's illness, there were three patients in the family at once, Chen Chao and Chen Chao's mother did not give up, while treating their father, while doing rehabilitation training for Si Yin, and finally Chen Chao's mother also suffered from lung nodules because of the fatigue of taking care of the family.
These burdens added up to finally crush this strong post-90s mother, and in March 2021, Chen Chao checked out major depression. This is undoubtedly worse, but Chen Chao did not give up, she supported the current small family, she gave all her strength to her daughter and her mother. Because his mother was also ill, Chen Chao did not go to work again, and the family currently relies on the government's minimum guarantee and growing vegetables at home to maintain a basic life.
Chen Chao took Si Yin and Si Yan to seek medical treatment in Shenzhen, Xi'an, Guangzhou and other places without results, until two years ago in Peking Union Medical College Hospital, experts diagnosed and diagnosed as a rare disease of spinal muscular atrophy, the treatment plan given is to go back to do a good job of rehabilitation, take good care. Chen Chao, who heard the news, felt that there was no hope, but as a mother, how could she easily give up her child's life and rely on the only savings and minimum insurance to do the best rehabilitation training for her child after returning home.
Despite Chen Chao's efforts, the disease still destroyed the two children, defeating this strong little family again and again. Gradually Huang Siyin began to be weak, gradually unable to stand up, currently paralyzed in bed, barely able to sit, the whole body is soft, completely dependent on others to live, wash their faces, dress, go to the bathroom, even the simplest body turning over also needs her mother's assistance. Si Yan also limped and often fell, her breathing function decreased, and she was accompanied by long-term pneumonia. Now because of financial difficulties, there is no longer any further treatment, only Chen Chao gives Si Yin massage from time to time every day.
A few days ago, the child's mother Chen Chao took the child to Shenzhen, and experts suggested injecting Nosina sodium special medicine, which cost 550,000 yuan a year, which is undoubtedly a burden for this already fragmented family. Over the years, all the savings have been spent on the sisters, and they are about to drag down a small family, where there are still 550,000 to get a special injection.
Chen Chao sometimes feels that his life in the past few years is like a dream. She remembers imagining her daughter's future shortly after they were born: the two sisters grew up healthy and healthy, studying, going to college, falling in love and getting married. But at the same age, the sisters, one who lost the ability to live independently, was completely in a wheelchair, one who walked stumbled and stumbled and did not know when he would fall, and they should have enjoyed their childhood, relying on rehabilitation training and special drugs to live smoothly.
Here, I hope that you who read this article can lend a helping hand, help this family of four, help these two children who are still in childhood, their lives have just begun, and in the future they may be able to get out of wheelchairs, live a normal life, and maybe make their lives shine. Let us look forward to the wonderful life belonging to sister Huang Siyin!
If you want to help these two children, you can long press the identification QR code to view the project details and make a donation. If it cannot be recognized, you can save the two-dimensional code to the mobile phone album, open and scan, and select the two-dimensional code from the album to scan and identify. Initiated by the China Social Welfare Foundation, the project was initiated by the Internet fundraising information platform "Waterdrop Public Welfare" designated by the Ministry of Civil Affairs, and was responsible for the review, implementation and information feedback of the project. The final interpretation of the project belongs to the China Social Welfare Foundation. Supervision phone: 010-4009-919.
The "Photosensitive Project" bridges public welfare photographers, charitable organizations, and fundraising platforms, publishes pictures and stories of families in distress, and helps raise donations. The plan is a photo public welfare project jointly initiated by Today's Toutiao, the China Photographers Association, the China Children's Charity Relief Foundation, the Chinese Welfare Foundation, the China Social Welfare Foundation and other charitable organizations with public fundraising qualifications. If you have difficulties, you can send a private message to the official headline number of the "Photosensitive Plan".