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On 14 December, an adult patient with spinal muscular atrophy was treated with intrathecal injection of nocinnassine sodium in Jiangxi Province. This is also the first adult patient in Jiangxi to receive this drug treatment. The once sky-high price of Nosina raw sodium will be more accessible to the people in the future.
Doctor: Valid until February 2023, you can see if there's nothing in it.
Receiving intrathecal injections of Nosinasson sodium was Xiao Chen, an 18-year-old from Yichun, who was diagnosed with spinal muscular atrophy as a child, a condition that doctors call SMA.
Hong Daojun, chief physician of the Department of Neurology of the First Affiliated Hospital of Nanchang University: It is due to a genetic mutation that leads to the growth disorder of nerve cells, then it is onset, and its clinical manifestations are mainly muscle weakness and muscle atrophy, which is the first patient of adult SMA in Jiangxi Province for independent treatment.
Spinal muscular atrophy is a "gradual frostbite" that begins at an early age. The incidence of surviving newborns in Europe and the United States is about 1 in 10,000, ranking first among the fatal genetic diseases in children under 2 years of age. It is estimated that there are 1,200 new patients with neonatal spinal muscular atrophy in China every year, and the number of patients in stock is about 30,000. There was no specific drug treatment for spinal muscular atrophy until the appearance of "northinassine sodium" changed this condition. On April 28, 2019, Northinalsan sodium injection was officially listed in China. But hearing that each needle needed nearly 700,000 yuan, Xiao Chen's father couldn't help but inhale a cool breath.
Patient Xiao Chen's father: ready to sell all the houses, ready to go back to his hometown to live in that rotten house, looking at this price there are medicines can not be cured, to the back of 550,000, but 550,000 can not be cured. To this year there is a "wei huibao", reimbursement down their own, I am out of more than 130,000, I can not come out myself, if you have to be 130,000 a year a year can not afford.
By participating in the supplementary commercial health insurance "Wei Hui Bao" and the drug donation activities of pharmaceutical companies, Xiao Chen finally used the medicine later, and now, he has been given 4 injections. The reporter learned from the Jiangxi Provincial Medical Insurance Bureau that from January 1 next year, 7 rare disease drugs such as sodium northinal will be included in the medical insurance directory. At that time, the burden on Xiao Chen's family will be further reduced.
Hong Daojun, chief physician of the Department of Neurology of the First Affiliated Hospital of Nanchang University: 600,000 to 550,000, this time directly dropped to 33,000, the key to 33,000 is also included in the medical insurance, according to the medical insurance class B reimbursement, should be able to reimburse a considerable part. According to this calculation, he only needs to pay about 40% of the money, and a needle only needs more than 10,000 yuan. Many adult SMA patients who already exist have taken the initiative to contact us.