Shu Haifeng, an autistic teenager, is only 16 years old and has already achieved very dazzling results - he has shared the stage with Lang Lang many times, attended the Spring Festival Gala, won many international piano performance awards, and is also one of the top ten "Nanshan Good Youth" selected by Nanshan District of Shenzhen.
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Talent, interest gives Haifeng the threshold to enter the recital hall, but for an autistic person to really complete a performance, and even rely on this self-reliance, it is not enough to have craftsmanship.
This point has always been clear to the Haifeng family.
People who have watched Haifeng's performance will find that this child not only has superb piano skills, but also behaves generously on the stage, can express clearly, behave appropriately, and will reveal a variety of emotions and demeanors when playing, which will resonate with everyone...
These explicit social interaction and language communication skills are not innate to Haifeng. On the contrary, when Haifeng was diagnosed at the age of 3, he was a child who could only speak three or four words, move more, and walk badly.
Every word and every action he learned stemmed from the persistence and efforts of his family and himself for more than ten years.
Lost
Autistic children who do not know how to respond
"Beanie, beanie, where are you?" Ge Fangfang was sweating profusely and shouted Haifeng's nickname in the crowded park.
Young Haifeng had three absurd experiences of losing his life. Once in the supermarket, he could not find his parents, hiding behind the shelves and crying. The second time was shopping, taking advantage of his parents noticing, he slipped to the shop next door, after losing him, he was very panicked, his face was red, let his parents shout anxiously, he still would not squeak.
"The third time was in Lixiang Park in Shenzhen, and there were many people on weekends. Haifeng was just 20 meters away from us, blocked by a sculpture, and his father and I desperately searched, shouting, no response at all, and I was crying. Ge Fangfang recalled.
The three-year-old child in the community talks like a little adult, and Haifeng of the same age can only speak three or four words, has no subject, and will neither bark nor respond when he is lost.
Grandma took Haifeng to Shenzhen Children's Hospital for evaluation, and everyone's doubts were answered - he suffered from autism, so his name should not be called, and there were obstacles to verbal communication and interaction with people.
Since then, Ge Fangfang has secretly decided that she must let this child learn to express. "The heart-wrenching feeling when the child is lost, I really don't want to experience it anymore."
"Mom blew it so nice"
When Haifeng was diagnosed, the assessment showed that his IQ was only more than 70, and the limitations of his thinking made his cognitive level lag far behind his peers.
The child is behind, but the mother cannot. Anxious, Ge Fangfang resolutely quit her job at Huawei, became a full-time mother, and took Haifeng to and from the intervention institution and kindergarten every day, turning over books and reading materials as soon as she had time, and then attending parent training classes whenever she was busy.
While learning and pondering, while personally practicing, Ge Fangfang explored some doorways for teaching children from a small white parent.
Hai Feng did not look at people, Ge Fangfang put on a face of fancy stickers, made an exaggerated expression, "Beanie you see, mother has a small apple on her face Wow!" ”
HaiFeng did not have common attention, Ge Fangfang picked up the child, let him say the words fast, slow, walk, jump, run, and make corresponding movements. After Hai Feng became familiar with the rules, the roles were reversed, allowing him to learn to follow the instructions.
After insisting on intervening for 5 months, Hai Feng's eyes and attention have improved, and he can speak more words, but there is still a gap from complete expression.
Once, Haifeng, who was sensitive to music, was attracted by Ge Fangfang's flute sound. He suddenly said, "Mom blew it so well." This was the first time the child had uttered a complete sentence, and Ge Fangfang's heart was about to jump out, and at the same time, she was also keenly aware that the child was excited and the expression would be better.
In this regard, Ge Fangfang combined the game and cultural intervention mode, and played various floor games with Haifeng.
Skateboarding, playing big dragon balls... Through her imagination and design, even the lazy chair became a prop to simulate a wild situation.
"The shark is coming, let's jump on the island!" Ge Fangfang said as she guided the timid Haifeng to climb up and down at home.
Hai Feng had a lot of fun, during which Ge Fangfang kept outputting language, guiding him to answer, ask questions and describe.
Learning of each small skill
All slow to the point of year
At the beginning of Haifeng's diagnosis, language expression was the focus of Professor Ge Fangfang.
Can't say sentences?
When Haifeng drank the drink, Ge Fangfang broadcast in real time: "Doudou, what are you doing?" ”
"Apples and many."
"Beanie is drinking a lot of apples." Ge Fangfang added the phrase into a sentence and gave the child a complete demonstration.
Can't get your vocabulary up?
Ge Fangfang bought a lot of famous picture books and asked Haifeng to read out the contents. Haifeng does not like to read boringly, Ge Fangfang will turn reading into a game, mother and son take turns to read, increase fun.
You and I him, three pronouns, confused?
Ge Fangfang grabbed Hai Feng's small hand, pointed at himself, the interlocutor, and the others, and repeatedly said you and me. Haifeng was 10 years old when he finally learned to use these three words correctly.
But as Haifeng grew up, the contact with people gradually increased, and it was only functional language and play at home, which was far from enough.
He must understand the situation in which the sentence is used, learn the norms of words and deeds, and go out like a normal person. Ge Fangfang's method is to take Haifeng to contact the crowd, teach on the spot, and strengthen his sense of role model.
At the family dinner, Ge Fangfang will take Haifeng to observe the other children and learn etiquette. "You see, that brother is very polite, and if he leaves the table early after eating, he will have an explanation." Can Haifeng do this good habit? "
On the one hand, he gave Haifeng intensive intervention, and on the other hand, Ge Fangfang slowed down her expectations for the effect of intervention.
"Haifeng learned 'you and me' at the age of 10, and only at the age of 16 did he find out the immediate family relationship." In the process of teaching Haifeng, she has been learning and summarizing, and found that the core social communication of autistic children is a large category, and practicing well will improve the ability of other aspects, but the process is very long, slow to take the unit of years.
"Mom, I'll cheer up"
In August this year, Haifeng and his mother were walking when he suddenly turned around and said, "Mom, let's practice speaking now, I want to improve my social skills." ”
In recent years, Hai Feng, who has some understanding of social and communication shortcomings, has also secretly worked hard, often taking the initiative to pull his mother to practice talking with him.
When he meets familiar people, he will take the initiative to say hello, will communicate briefly with his classmates, and awkward chats are often there, but Ge Fangfang can feel his strong willingness to communicate.
Ge Fangfang once told Haifeng that he had no sense of humor. Unconvinced, HaiFeng began to secretly hold his mobile phone to watch various funny videos, although he did not know when he could tell jokes, but now he can properly jump out many idioms in communication.
Since HaiFeng's piano studies have been successful, he often has to perform on stage. At the performance scene, there are countless audiences and multiple shooting camera positions, in addition to playing, Haifeng also has to use non-verbal communication such as eye eyes and body movements with the posture of an actor to accurately convey emotions to the audience.
At home, the person who helps Haifeng understand and interpret the sound of the strings is grandma. She led Haifeng to understand the background of the creation of the repertoire, figured out the mood of the song to express, and took Haifeng to observe the performance videos of others.
As small as intoxication, dreaminess, excitement and other emotions, how to beat the fingers, what expression should be presented on the face, how much the amplitude of limb swing... Grandma needs to take Haifeng to buckle these details.
The family did not give up, and now Haifeng has a deeper understanding of emotions. In September this year, he accompanied his mother to the cinema to watch "Fantastic Boy". In the film, the mother and son are not easy to make Ge Fangfang feel empathy, and she can't help but cry, and Haifeng on the side comforts her mother, "I will refuel." ”
Haifeng learned to be grateful, and Ge Fangfang was very pleased
Autistic children will quarrel...
Recently, Ge Fangfang has more happy troubles.
16-year-old Haifeng actually started talking to his family.
Haifeng, who often has large-scale performances, has a heavy burden of idols. Every day before practicing, he would ask his family to blow his hairstyle to a photogenic state at any time.
This can spoil the grandmother who takes care of him, and every morning she has to help him sort it out carefully.
On this day, Haifeng's words did not reach his expectations, and the repetitive stereotypical problem was committed again, and he kept repeating the question of "Okay", and asked Grandma really couldn't stand it, and complained, "It's already very good!" ”
Ge Fangfang knew that Haifeng actually wanted to express "how I look", but the vocabulary was not rich, and when he reached his mouth, he asked over and over again, "Okay?"
Grandma couldn't stand this chatter, and she felt that outside, who could stand him asking vigorously.
Sandwiched in the middle, Ge Fangfang became a peacemaker, The child is emotional, he can't listen to anything, and it is useless to touch the bones. ”
The object of quarrels is sometimes Ge Fangfang.
Once, fans named haifeng wanted to let Haifeng play "Liang Zhu", Haifeng had not learned before, learning new songs by himself was a challenge, Haifeng was on the bar with himself, the rest time was coming, and he was still learning quickly.
Ge Fangfang was afraid that he was too tired, and proposed to rest and adjust his state first. In the face of his mother's concern, Haifeng, who insisted on practicing the piano, had a big fight with his mother.
Hai Feng's angry look, Ge Fangfang did not look angry at all, but was happy: "At that time, his language expression was very correct!" ”
In her opinion, this is the child's progress, is a sign of the improvement of the social skills of autistic children!
However, after Haifeng's mood eased, she would drag Haifeng to a leisurely walk, review the incident, and tell him the right approach.
A group photo of Haifeng and his family going on a tour
Eye contact, attention, you and me, social etiquette, behavior... For more than ten years, Haifeng's learning and growth has been the only main business of Ge Fangfang and Haifeng's grandmother.
In her mother's vision, Haifeng's ideal way out is to be a musician, followed by a piano teacher, and if he can't do it, he will go to a relative's restaurant to perform.
To get these roads through, so as not to have to take the diploma, Haifeng culture class is difficult, his family let him give up the exam education, a mind to learn music theory, practice piano skills.
Talented and hardworking, Haifeng has been able to share the stage with world-class master Lang Lang in piano performance, and is now preparing to obtain a piano certificate from the Royal Conservatory of Music.
Second, they must also have the ability to enter the society, including language communication, communication with people, self-care of life, and so on.
In this area, Haifeng can maintain proper behavior in front of and behind the stage, no emotional and behavioral problems, under many practices, he can "recite" the speech in public, and can complete the daily basic communication...
But making friends, higher-order expressions, understanding, and achieving complete self-care for life is still something that Haifeng needs to continue to work on.
At this time, Haifeng was preparing for the Royal Conservatory of Music Piano Level 8 examination, and his grandmother had already nagged him several times, "You should have participated earlier."
Because haifeng's preparation for this exam, what was repeatedly rehearsed was not the repertoire of the highlight examination, but the scraps of introducing himself and the track information...
END
Writing | Bread Editing | Dangdang Chuntao editor-in-chief | Qin Yu