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The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

author:Circle entertainment

A few strokes into poems

Edited by a few poems

sequence

Just imagine, if your lover is suddenly attacked by a "terminal illness";

Will you be able to stay by his/her side until the very end?

Recently, the wife of Cai Lei, former vice president of JD.com, faced the camera;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

He confided in his heart: "Every day can be the last.

As the partner of a former JD.com executive, she could have lived a carefree and affluent life;

However, fate played a cruel joke on them.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Since Cai Lei was diagnosed with ALS in 2019, the disease has accompanied him through six years of hardship.

During this time, his physical functions deteriorated day by day, and his muscles atrophied.

Even simple head movements become extremely difficult.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

At the end of March this year, his condition deteriorated sharply, and he was on the verge of life and death.

On April 23, in an interview with CCTV, Cai Lei admitted that he was in a critical state of "hanging by a thread".

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

On April 25, Cai Lei was interviewed by CCTV again, looking back on his life in the first 40 years;

He used to be a senior manager of Vanke and JD.com, and was an active promoter of electronic invoicing;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

A happy family, with an excellent wife and a smart son;

He was once regarded as an absolute winner in life.

But all this beauty came to an end in 2018 with the diagnosis of ALS.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

This disease, which is more cruel than cancer, has ruthlessly dragged this former industry elite into the abyss, and his speech is restricted;

It takes all your strength to barely make a sound, and you have to rely on a ventilator to fall asleep at night;

The slightest carelessness can lead to suffocation.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Although Cai Lei is in the whirlpool of despair and darkness at the moment;

But from his vague but firm words;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

We still hear his thirst for life and his struggle: "I will do my best to make a final fight against death."

CCTV reporter Zhuang Shengchun visited Cai Lei

On March 20, CCTV reporter Zhuang Shengchun contacted Cai Lei privately and asked with concern whether it was convenient to meet;

Find out about their recent physical condition.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Cai Lei responded truthfully, bluntly saying that his health was getting worse;

He has entered the advanced stage of his illness and is in the final battle with death, hoping to defeat the disease.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

The two agreed on a time to meet.

When Zhuang Shengchun really met Cai Lei, the sharp-tongued reporter in the debate arena in the past was gone;

Instead, there is more silence, listening, and deep empathy.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

In the interview, Cai Lei candidly revealed his current physical situation;

It has entered an advanced stage, and various physiological functions are rapidly depleted, especially strained speech, and speech is affected by the atrophy of the tongue and lips;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

I can't even take care of myself in the most basic ways.

Movingly, due to severe muscle atrophy throughout the body;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Cai Lei's ability to stand and balance was almost lost;

When bathing, it had to be done with the help of a life assistant to fix it to the wall with a rope.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Although such hardships and hardships made the reporter's face sad, Cai Lei still smiled and optimistically shared his recent situation;

even revealed his weakness to Zhuang Shengchun.

Cai Lei mentioned that at the end of 2023, when he faced the painful choice of intubation and tracheontomy due to the deterioration of his condition;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

I have had thoughts of giving up;

This has left many patients grieving.

However, Cai Lei has always firmly believed in the power of the word "believe", which is the spiritual pillar for him and his team to persevere.

Even though he is completely unable to take care of himself, he still writes public speeches by himself from his sickbed;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

With the desire to promote a breakthrough in ALS research before the end of life.

He regretted that if he had more time, he would have the confidence to completely overcome ALS.

But the time left for him was too short.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Workaholic

Cai Lei once said that he was downbeat about death and did not feel afraid.

However, whenever he saw the patients around him pass away one by one, the grief in his heart was indescribable.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

This kind of affectionate care and helplessness has moved countless netizens and brought tears to their eyes.

A man who is fearless of life and death, and who does his best to fight against illness;

He did not hesitate to go bankrupt and contribute his own strength to the research of ALS for mankind and the motherland;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

How can such a spirit and action not make people deeply admired and moved?

Cai Lei before he found out that he was suffering from "ALS";

His enthusiasm for his work can be described as earth-shattering, and he deserves to be called a "workaholic".

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

He regards time as his life, and does not want to waste anything except the necessary food and drink and short rests;

For the remaining 13 hours, he threw himself into his work.

It is precisely because of his leadership that his team is like an elite division, and the efficiency is staggering;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

In just one and a half months, it completed the work of the competitor for ten months, creating a miracle in the industry.

It can be said that without Cai Lei's hard work and excellent leadership, JD.com's road to listing may have been delayed for several years.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

He is even more discerning, inventing JD.com's first electronic invoice, saving JD.com tens of millions of costs every year;

It has laid a solid foundation for the long-term development of the company.

In Cai Lei's dictionary of life, the term "rest day" seems to have never existed.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

How busy is he?

It is an exaggeration to say that even after living in Beijing for more than ten years;

He had never set foot in the Forbidden City and the Great Wall.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Even during a reunion festival like the Spring Festival, he chose to stay at work, not to take a holiday, and not to return to his hometown;

I worked until the wee hours of the morning every night.

Cai Lei's story and spirit are undoubtedly touching, but I am afraid that many people did not know him before this.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

From "the first person in China's electronic invoice" to "ALS patient", Cai Lei's life experience is full of legends.

Cai Lei, a person who is indifferent to life and death but grieves the death of a patient, fights against "ALS" with a fearless spirit;

Devoted all his efforts to promoting related research, this feat deeply touched the heartstrings of the majority of netizens.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Before his illness, Cai Lei could be called a "desperate San Lang", and his work frenzy was unparalleled.

He values his time as gold and devotes himself to work almost around the clock, except for the basic necessities of life;

At least 13 hours a day.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Driven by him, the team has super execution;

In just one and a half months, the opponent's work task took ten months was completed, creating an industry myth.

Cai Lei's efforts and talents have greatly promoted the development process of JD.com;

In particular, he initiated the electronic invoicing system;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

It not only greatly reduces the annual cost of tens of millions of JD.com, but also provides strategic support for the long-term development of the enterprise.

In Cai Lei's world, there seems to be no concept of "rest day".

After living in Beijing for more than ten years, he has never been to iconic attractions such as the Forbidden City and the Great Wall;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Even during the Spring Festival, he chose to stick to his post;

Working day and night until late at night.

Cai Lei's story and spiritual connotation may be known by more people;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

He is just an unknown "first person in China's electronic invoice".

But when he showed extraordinary perseverance and determination as a "ALS patient", his legendary life was even more emotional.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Xueba Cai Lei

Cai Lei, born in Shangqiu, Henan Province in 1978, is a representative of the top students in this province with fierce competition for the college entrance examination.

Despite his modest family background, his father was a strict soldier;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Strict education for him, Cai Lei relied on his outstanding learning ability and perseverance;

In high school, he has already shown proud strength and was easily admitted to the Central University of Finance and Economics;

It is known as an "alien"-like existence.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Although he was unable to study physics, he continued to study hard at university and achieved great results.

However, in his junior year, fate played a cruel joke on him, and his father was diagnosed with advanced cirrhosis;

Cai Lei had to travel between Beijing and the school, despite this;

The father eventually passed away, leaving behind the deep grief that his son wanted to support but his relatives were absent.

After graduating from university, Cai Lei chose to return to his hometown to accompany his mother;

and found a stable job in the local tax system;

At the same time, he also continued his studies and pursued a postgraduate degree in the School of Finance and Taxation of the University of Finance and Economics.

After completing his studies, Cai Lei began a wonderful journey in his professional career;

He has successively held important positions in well-known companies such as Samsung, Amway (China), and Vanke.

In 2011, he foresaw the huge potential of the Internet industry;

resolutely left Vanke and joined Jingdong Group, which was in a period of rapid development;

That is, the e-commerce giant founded by Liu Qiangdong.

With his outstanding performance, Cai Lei was quickly promoted to the position of vice president of taxation.

In the face of the huge consumption of manpower and material resources for the internal invoice processing of JD Group;

Cai Lei came up with the idea of promoting electronic invoicing.

He led the team for two years and worked in various government departments;

In-depth study of invoice management, scheme design, risk control and other issues.

In May 2013, Cai Lei set up a special project team to overcome many technical problems such as electronic signature, QR code query, big data storage, encryption and anti-counterfeiting of electronic invoices.

A month later, under the joint witness of the Beijing Municipal Taxation Bureau and industry colleagues;

JD.com successfully issued China's first electronic invoice.

This initiative not only greatly improves the operational efficiency of the enterprise and reduces costs;

It has also set a milestone for the reform of tax informatization in mainland China.

Cai Lei for his outstanding contribution to the promotion of electronic invoicing;

Won the honor of "2014 Top Ten Outstanding People in Taxation".

At the peak of his career, he suddenly suffered from ALS

When Cai Lei's career was thriving, he was fortunate to meet Duan Rui, an equally excellent Beijing girl.

The two fell in love, determined each other in just one or two months, quickly entered the marriage hall and soon had a crystallization of love.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

In 2018, Cai Lei enjoyed family happiness and career peaks at the same time;

I suffered a bolt from the blue - physical problems began to appear.

At first, Cai Lei found that he occasionally had muscle twitches in his left arm;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

I thought it was due to fatigue, but I didn't pay much attention to it.

But the symptoms gradually worsened, and he rushed to the hospital for examination.

After more than a year, six physical examinations were carried out before and after;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Cai Lei was eventually diagnosed with ALS, a disease that is currently almost incurable.

Hearing this news, Cai Lei felt like he had suffered a heavy blow, and he had just been married for a year;

is a first-time father, but fate played a cruel joke on him.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Faced with such a predicament, Cai Lei filed for divorce in order to avoid dragging down his wife Duan Rui.

However, Duan Rui tearfully refused, firmly encouraging him to face the illness bravely.

Since then, this elite in the field of taxation has turned to self-study of medicine, focusing on the study of "ALS".

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Cai Lei devoted almost all his time and money to it;

Even though his condition was getting worse, he still got up at four or five o'clock in the morning every day;

Carry out scientific research work with the team.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

In order to raise research funds, Duan Rui also resolutely gave up his job in an accounting firm;

Devoted himself to assisting her husband in live streaming.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

With her support, the "Icebreaker Station" project has successfully turned a profit.

Despite their best efforts, little was achieved.

Cai Lei's condition has progressed rapidly, and now he needs to rely on a ventilator to sleep every night;

He couldn't even raise his hands to hug his son.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Despite this, Cai Lei is still optimistic and strong in front of the camera;

He once said with a smile: "If I were given ten years, I would definitely be able to overcome it."

Cai Lei's forbearant and firm smile touched many people.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

He made an agreement with reporter Zhuang Shengchun that when they met again in a few months;

He hoped that his health would improve, and took the initiative to contact reporter Zhuang to share the exciting good news.

The power of family

Cai Lei once revealed that now that his son has grown up, he knows how to care about him in life and will help in some small things;

Always encourage and comfort him.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

However, his wife made a much heavier effort.

His wife is a highly talented student who graduated from Peking University, and after graduation, she bravely started a business and opened an accounting firm with her team;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

And the business has developed rapidly, with an annual income of one million yuan.

But since Cai Lei was diagnosed with ALS, his wife did not hesitate to slow down her career and shifted her focus to taking care of her husband.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

In order to raise the medical expenses needed by Cai Lei, she finally chose to leave the firm she had worked hard to run for many years;

Devote yourself to the live broadcast industry and start the work of live broadcasting.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

At the same time, Cai Lei's mother-in-law also stood firmly by their side;

not only took the initiative to take over part of the housework to reduce the burden on his daughter;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

When the weather is fine, he will personally accompany his son-in-law Cai Lei out to bask in the sun and give intimate care.

Fight ALS stubbornly

Today, Cai Lei's physical condition is getting weaker and weaker, and from his hands and feet to his tongue, the symptoms of neuromuscular atrophy are becoming more and more serious.

His daily life became extremely difficult, and he even relied on a ventilator to sleep at night.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

When bathing, since the body cannot be controlled, it can only be gently fixed with a rope with the help of an assistant to avoid danger;

Such a life is undoubtedly a great challenge and tribulation for him.

What's even more worrying is that he has encountered four life and death crises on the verge of suffocation at night many times, and each time he almost came face to face with death.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

These near-death experiences not only caused Cai Lei to suffer severe physical pain, but also caused him to be mentally devastated.

Cai Lei knows that overcoming ALS is a task that requires long-term efforts, and he has little time left.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

He and his wife solemnly promised that even if they died in the future, they would not let the pharmaceutical company and laboratory stop operating;

It is necessary to continue to develop drugs to bring hope to many ALS patients.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

He made a will in advance and decided to donate his body to medical research, using the afterglow of his life to illuminate the path of scientific research.

In Cai Lei's eyes, the beginning and end of life are equally sacred, like the dawn of dawn and the glow of evening;

It can convey the power of warmth and light to the world.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

Cai Lei's actions were like boulders thrown into the lake, causing ripples.

Under his leadership, thousands of ALS patients have responded and expressed their willingness to donate their bodies for research after their deaths.

Together, we will contribute to solving this medical problem.

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

As Yu Minhong and Dong Yuhui commented, life is like a battle to fight back in a difficult situation, and Cai Lei is like the last bullet in the chamber, although the energy is about to run out;

The current situation of "ALS" Cai Lei is not optimistic: his tongue and lips have shrunk, and he has to be hung with a rope in the bath

But it is still being launched with all its might, becoming a symbol of the salvation of life;

Countless patients have hope for the future.

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