On June 20, 2019, in the ward of a hospital in Beijing, 3-year-old Xiao Yixuan and her grandmother cried after seeing themselves like a "little black child" on video: "This ugly monster is not me!" "My son is blackened by the rejection of his skin after a bone marrow transplant, and the skin of his whole body will degenerate over and over again." We thought that our son xiao would not care too much about appearance, did not expect him to care so much, now the child not only does not like to video with grandma and look in the mirror, even our two sons will be unhappy when they see him for a long time. Mother Zeng Qinghong said sadly. (Photo/Text Northern Frontier Recorder)
"My son was a standard little handsome guy before he got sick, not only handsome, but also very sensible, smart, and popular wherever he went. I never dreamed that a serious illness would completely change the trajectory of my son's life and the fate of our family. Father Wu Jialong said helplessly. It is reported that Xiao Yixuan was born on February 25, 2016, is a native of Cangqian Street, Yuhang District, Hangzhou City, Zhejiang Province, and has now been hospitalized for more than a year. The picture shows Xiao Yixuan, who was two and a half years old before the illness, handsome and cute.
At the beginning of February 2018, Zeng Qinghong found that Xiao Yixuan's left eye was red and swollen, and considering that his son's physical examination results were normal not long ago, he simply gave him some hot compresses. A week later, Xiao Yixuan's condition not only did not alleviate but worsened, and his parents immediately took him to a hospital in Yuhang District for treatment, and the diagnosis result was "eye cyst". At the end of April, Grandma Xu Fangfang found that Xiao Yixuan's eyes were still red and swollen after taking the medicine for nearly two months according to the doctor's advice, so she asked her son and daughter-in-law to take her grandson to a larger hospital in Hangzhou for another examination. The picture shows the appearance of Xiao Yixuan in July last year two months after being diagnosed with leukemia.
After the test results came out, the doctor said that Xiao Yixuan had two white things in his eye cysts and would recover after a small operation. Because of the need to check the blood routine before the operation, when Wu Jialong saw that the word "childish" on the diagnosis sheet was confused, a nurse rushed to urge him to give Xiao Yixuan another blood test. After 4 hours, Wu Jialong was told: "The child may have a blood disease, it is recommended to go to a professional blood disease hospital to confirm the diagnosis." The next day, Xiao Yixuan was diagnosed with "myeloid leukemia M2, a genetic mutation" in a hospital in Zhejiang Province. The picture shows that after his son was diagnosed, Zeng Qinghong's tears fell like rain, which was difficult to accept.
In the month of subsequent hospitalization and chemotherapy, Xiao Yixuan's condition not only did not alleviate, but the cancer white blood cells in the body continued to grow. In early June, after Wu Jialong learned from his patients that a hospital in Beijing was more authoritative in treating blood diseases, the family immediately embarked on the train to seek medical treatment in the north. After being admitted to the hospital, the hospital formulated 8 courses of chemotherapy treatment for Xiao Yixuan. In the subsequent chemotherapy, to the surprise of Wu Jialong's family, Xiao Yixuan was not only found to have two genetic mutations, which further aggravated the condition, but also caused lung damage due to blood transfusion allergies, at this time, everyone thought that Xiao Yixuan was difficult to survive this pass.
To everyone's surprise, after more than 20 days, a miracle happened, and Xiao Yixuan temporarily turned the danger into a disaster, but the residual cancer cells in the body did not go down but rose. In response, the doctor adjusted the treatment plan and increased the dosage. A month later, Wu Jialong was told by the hospital that Xiao Yixuan was immune to chemotherapy, and the residue could not be beaten, and the only way was to force the transplant. Zeng Qinghong believes that the risk of forced transplantation is too great and does not agree to let her son take the risk. In early September, after they inquired about the good car-T treatment effect of a hospital in Beijing, they again handled the transfer procedures for Xiao Yixuan. The picture shows Xiao Yixuan's illness in May this year.
CAR-T therapy is effective, but the cost is high and self-funded. Due to the daily treatment cost of up to 10,000 yuan, Wu Jialong soon had no money to continue treatment for his son. Just when he was at a loss, a distant relative called him 200,000 yuan, and when he learned that the money was borrowed by his mother from door to door from relative to relative, Wu Jialong "poofed" and knelt in front of his mother and said with tears and gratitude: "Mom, I'm sorry!" In order to treat your children, we not only spent all your pension money, but also let you suffer with us! ”
Just when Wu Jialong's family was expecting a miracle for Xiao Yixuan, unfortunate news came one after another. First, Wu Jialong was fired by the company for a long-term leave, followed by his stepfather's divorce, "If he wants to leave, leave!" Now I want to keep my grandson's life! Xu Fangfang said helplessly and sadly. Fortunately, after a month of CAR-T treatment, Xiao Yixuan's genes finally turned negative, "Now the child does not need to do bone marrow transplantation, as long as the gene residue is well controlled." After listening to the doctor's words, Wu Jialong's family cried with joy.
In the following days, Xiao Yixuan was infected with sepsis with a very high mortality rate, and his body temperature was high and feverish at 40 degrees, which lasted for half a month. In early January 2019, Xiao Yixuan was told that he could go home and recuperate. What Wu Jialong did not expect was that on the third day of his son's return home, he began to have a high fever, and in desperation, they had to send Xiao Yixuan to the local hospital for treatment, and finally under the telephone guidance of the attending doctor in Beijing, Xiao Yixuan was not out of danger after more than half a month. After the End of the Year, Mr. and Mrs. Wu Jialong took their son back to Beijing for a review. On the way, Zeng Qinghong made a wish expectantly: "After the review, we will go home and rent a stall to sell vegetables, and pay back all the money we borrowed." ”
Unfortunately, the results of the review disappointed them greatly, and the cancer cells in Xiao Yixuan's body recurred again. After getting the results of the review, Zeng Qinghong's legs fainted softly, and Wu Jialong hugged his wife and cried. After consultation, the doctor told Wu Jialong that the child must be transplanted, otherwise he will not live for 5 months. "Then transplant, we will never give up!" Wu Jialong and his wife said in unison. But at this time, they could no longer come up with the transplant cost of 250,000 yuan, and the whole family had no choice but to borrow all the relatives and friends to make up for this fee. The picture shows that after seeing her parents cry, Xiao Yixuan also cried with wow.
Two days later, after the results of the bone marrow transplant matching test of Wu Jialong and his wife came out, they were told: "The donor is preferably the father, but the only choice Xiao Yixuan can choose now is the mother, and it is still a semi-conjugal bone marrow transplant." "The doctor's words made Wu Jialong confused." You have too many genetic cancer cells in your body. In addition, you should not have children in the future, otherwise the chance of another child will be very sick! After hearing the doctor say this, Wu Jialong thought that his biological father died of nasal cancer when he was 8 years old, and at this time he realized that he had inherited his father's bad cells, and his son had inherited his own bad cells, so his son would suffer from blood cancer.
On March 19, 2019, Xiao Yixuan was accompanied by his father and entered the warehouse for transplantation. At two o'clock in the morning of March 29, Xiao Yixuan was killed by the frequent shaking of his hands and feet in his sleep. "At that time, my son's lips were purple, his pupils were dilated, his teeth were biting his tongue, and his whole body was cold, and he couldn't wake up no matter how he screamed." To this day, Wu Jialong still has lingering feelings when talking about the scene at that time. After a night of rescue by the medical staff, at 7 o'clock the next morning, when everyone lost confidence, Xiao Yixuan cried, and Wu Jialong hugged his son and cried: "You scared your father to death, your father has thought about it, if you leave, I will also accompany you!" ”
On April 23, 2019, Xiao Yixuan successfully got out of the warehouse, but various rejections wave after wave. Due to skin rejection, the skin of Xiao Yixuan's whole body has become black; due to nail rejection and intestinal discharge, all of Xiao Yixuan's nails have fallen off in their entirety, and they are constantly diarrhea and blood in the stool; due to serious ulceration of the mouth, Xiao Yixuan cannot eat every day and can only infuse nutrient solution. "Transplantation has a price, rejection is priceless. In order to control skin rejection, a high resistance is 8300 yuan, my son's daily medical expenses are 10,000 or 20,000 yuan, even the best ordinary families can not afford it! Wu Jialong said helplessly.
In order to let her grandson have money to treat diseases, Wu Fangfang, a grandmother who is far away from her hometown, goes to wholesale vegetables at three o'clock in the morning every day, and then carries 100 kilograms of vegetables to the bus twice to rush to the vegetable market to sell vegetables. In order to save money, she uses a lunch box to bring food from home every day, and she is not willing to spend more than a penny. Wu Fangfang suffered from severe varicose veins in her legs, and when she sold vegetables, she couldn't stand the pain and knelt down. "Even if I take my old life, I will earn money for my grandson's treatment!" My son didn't have a father when he was a child, and I can't watch my young grandson die because he didn't have money for treatment, and the white-haired people sent the black-haired people, and we really couldn't afford to send it! Wu Fangfang said tearfully.
In mid-June 2019, Xiao Yixuan was found to be infected with cmV due to lung infection, and needed to use 4,000 yuan of drugs to control the virus every day, and the daily treatment cost was nearly 10,000 yuan, but at this time, Wu Jialong and his wife had no money anymore. To this end, Wu Jialong and his wife washed their faces with tears in worry, worried that Xiao Yixuan would be discharged home and wait for death because he did not have money to continue treatment. "Everyone is dignified, since my son fell ill, we have been working hard to save ourselves and not occupy the resources of social love, but now we really can't hold on, please save my son!" On June 20, Wu Jialong and his wife helplessly asked for help.
Doing good is a virtue that helps others to be blessed. If you want to help Xiao Yixuan, please press the QR code on the left to complete the donation. Or save the QR code to the mobile phone album, open WeChat "sweep", and select the QR code from the album to identify the donation. The project was initiated by the 9958 Children's Emergency Rescue Center of the China Children's Charity Aid Foundation on the Internet fundraising information platform "Waterdrop Public Welfare" designated by the Ministry of Civil Affairs, and was responsible for project review, implementation and information feedback. For details, pay attention to the dynamics of the "Waterdrop Public Welfare" platform. Supervision phone: 400-006-9958.
The "Photosensitive Project" bridges public welfare photographers, charitable organizations, and fundraising platforms, publishes pictures and stories of families in distress, and helps raise donations. If you have difficulties, you can send a private message to the official headline number of the "Photosensitive Plan". The plan is a photo public welfare project jointly initiated by Today's Toutiao, the China Photographers Association, the China Children's Charity Relief Foundation, the Chinese Welfare Foundation, the China Social Welfare Foundation and other charitable organizations with public fundraising qualifications.