If one day, your life organism
Lost most of the mobility
What will you become?
It is the resentment of the heavens that people lament the unfairness of fate
Or at a glance
Making life meaningful in the day?
The girl I'm going to introduce today
Even though she has suffered from rare diseases for more than 20 years
Even if she couldn't walk like a normal person
She can still be in the seeming
There is a taste to live in the gray life
This girl is a UP master of Station B
She is always dressed beautifully in the shot
But if you look closely, you'll see that she's on a ventilator
In the video, her first words are to introduce herself:
"Hello, I am the fairy morning sun who loves handmade love life."
"At the same time, he is also a gradually paralyzed, respiratory failure,
Patients with rare diseases who rely on ventilators to maintain their lives 24 hours a day. ”
Survive with only the fingers that can be moved
For years, she relied on the only flexible fingers in her body
More than 300 hand-made projects were pinched out, and nearly 500 students were taught
She said: "I hope that through my own efforts,
Bear your own living and medical expenses,
Live with dignity and value. ”
The girl with the ventilator in the picture is called Xiang Chenxi, who is 29 years old. When she was 8 years old, she often fell for no reason, and her family was not at ease, so they took her to the hospital for examination and were told that she was diagnosed with "progressive muscular dystrophy".
As a child, she didn't have much concept of "progressive muscular dystrophy," but she would often wrestle for no reason and occasionally squat for a long time and not be able to stand up. In her third year of junior high school, she found that she had to rely on the help of her friends to go up and down the stairs.
Until the age of 19, he could not stand up at all, and could only drop out of school and go home to recuperate. "I began to realize that this disease is very life-threatening and will become more and more serious in the future."
On the days of leaving school, Morning Dawn did not sink at home. She tried her best to work to make money, to do something for the family, who was already poor but had borrowed money for her treatment, to ease the burden on the family.
She tried a lot of work. Writing novels, embroidering cross stitches, doing many online part-time jobs, but the income has been unstable, and even cheated money. And she was paralyzed in her chair day by day, feeling that she was a useless person.
Until later, she found a job in online customer service, and finally had a meager but stable income. So she saved up more than a year's salary to buy herself an electric wheelchair. But soon after, he was fired because he couldn't sit still for a long time to do customer service work.
After that, she was inspired by a deaf-mute girl and began to do live broadcasts, popularizing the disease of sexual muscular dystrophy, hoping that more people can pay attention to this rare disease.
I started making clay handicrafts because of a fortuitous experience. She pinched a bear out of her niece's clay, and she began to take a fancy to the craft, finding this way of creating very interesting, and began to delve into the art of hand-made.
"Once the little niece bought back the clay, I watched them play, I thought it was very interesting, tried to make the first bear." 」
At first, there were not so many tutorials on making clay on the Internet, and she had to gain experience in practice. The works that lead to the production are also ugly
Without guidance, she still insisted on slowly groping. For example, the body proportions of these hands, arm connections, facial features and other rough outlines.
Slowly, she could only do half-body from the beginning, and later learned to be a full-body figure. I also started adding details to them.
With continuous practice, from the beginning did not know how to dry, can not draw eyes, can only do half of the body of the character, and then gradually explored a set of suitable for their own effort-saving methods.
And to pinch out a vivid, vivid handmade almost drained all her vitality.
She was 80% paralyzed, unable to move her waist, legs, arms and other parts, and her neck and waist were greatly affected, so she could not sit in the chair for a long time, and when making the handmade, she could only use her fingers that could only move flexibly to move back and forth on the specially designed table board.
"Now you can only do one hand-made one a month."
As her craft got better and better, clay craftsmanship, which was originally just a hobby, became her "career".
"I want to spread this lovely art, pass on the experience and skills I have learned from self-study, and let people who want to learn to do handmade take fewer detours."
Therefore, she began to do live broadcasts, teaching students to pinch their hands, and the "Morning Dawn Clay Academy" also came into being. Today, the number of trainees has reached 500. The stars have become her students.
The handmade ones she made were also loved by more and more people, so she opened a Taobao shop to take orders. There are more orders, and the fame in the handmade circle has also increased.
While the online shop and clay academy are getting better and better, Chenxi's condition is deteriorating. In 2020, she suffered from pulmonary hypertension, and the symptoms of chest tightness and dizziness made her miserable.
In June last year, when Chenxi participated in a public welfare hand-organized teaching activity, she developed symptoms of respiratory failure at the scene, and her trachea was cut open to maintain breathing, and she was completely unable to leave the ventilator to live.
"I actually complained after I got sick, but to be honest, a lot of times it's a feeling of powerlessness. I had a lot of things I wanted to do, but I couldn't. But I don't let myself be too depressed, let myself think about things, I still have a lot to do, and A lot of things to do. Dawn said that she was an unfortunate person, but at the same time she was lucky.
Today, even though she needs to wear a ventilator and suffers all the time, she still puts all her body and mind on the online handmade clay academy.
"I hope someone can take over my shop and college, even if I am gone, everyone can see the video of the college, so that more patients can learn this money-making technology."
Regardless of the road ahead, she will choose to continue the treatment, continue to be active in the clay world, and continue to do her best to help those in need.
There are many unfortunate people in this world who are as unfortunate as the morning sun, who experience pain but still live a tasteful life.
I believe that heaven will not fail anyone who strives to be strong and kind, and hopes that Chenxi can live every day well and let his life leave no regrets.