Hey friend, you're not the same as anyone else.
Maybe you were also a strong person and lived a normal life; maybe you had all kinds of problems very early on, often accompanied by a doctor.
This damn fate somehow found you.
Why, why me?
The moment I first learned of the illness, it must have been a thunderbolt on a sunny day.
I wanted to make money to support my family and be self-reliant, but in the end, I became that burden.
Taking medicine is the norm, crying is the norm, and loneliness is the norm.
In confusion, in pain, in paleness, look for the brightest star in the night sky.
Angels in white, pharmacy prescriptions, for the rest of your life, please give more advice.
- If only there were the rest of his life.
"When will life get better?"
You said you got sick and had to be hospitalized.
You don't understand how you can get this rare chronic disease, and the doctor can't give you a reason.
So, all you can do is control it and coexist with it.
To this end, you gave up the long-term follow-up project, temporarily left work, abandoned the colleagues who struggled together, and came to the ward alone.
When you are discharged from the hospital, you pay more attention to your body.
You know, you're not like anyone else.
Other people's mountain treasures and seafood are your list of fasting; other people's small wine is your absolute taboo; other people's sunshine and rain dew are your potential causes.
You have to live so carefully.
After four months, unexpectedly, it woke up again.
It roars inside you and shocks you.
Back here, familiar hospitals, familiar nurses, familiar white, familiar black.
Suddenly, you feel that these months of hard work have been wasted.
It's all nothingness.
You don't know where the future lies or what to do now.
The stress of life, the recurrence of the disease, the confusion of the future.
When will life get better, and when will you be able to look like a normal person?
You try to accept and accept all this: if this is fate, if I am just different from others, then it is, it should be treated, it should be hospitalized.
Open your eyes, a new day, close your eyes, good night and good night.
Soon, you receive a notice from your doctor and your condition begins to stabilize.
You breathe a sigh of relief and are ready to start a new life.
"Crying without laughing"
What disease did Hawking get?
That's right, the famous physicist Stephen William Hawking.
Probably a kind of muscle atrophy and paralysis, you simply think before getting sick.
You wouldn't have imagined that you would have the opportunity to see the disease up close—to be precise, to experience it first-hand.
A completely different life experience from others.
"Frostbite", one of the world's five major terminal diseases that is difficult to cure in the modern medical community, is basically insoluble.
You think that illness is constant torture, but you don't know that it is so cruel: illness is death, but death is not terrible at all.
The terrible thing is that the disease weakens the control of the body day by day. You know, it's a step-by-step process toward death.
But your sanity is so clear that you know that you are being "frozen" day by day.
Unfortunately, your brother suffers from the same disease as you do.
You can't work, you don't know what you can do, the family's financial resources are all dependent on the mother except for the minimum guarantee, and at the same time, she also has to shoulder the responsibility of taking care of the brothers.
"Crying without smiling." Your mother said so, and you are also infected by your mother's optimism, but you also know that it is only a matter of time before you leave, and you hope that your mother can have a stable old age.
You and your brother look at the increasingly popular videos and think of ways. You have come up with a way to make a food video, the account is called "having a mother is a blessing", the brother is the director, you are the editor, and the old mother is the photographer and protagonist.
It's not easy to make videos: old mothers are illiterate and less likely to use equipment. You and your brother know how to do it, but they can't help it for physical reasons, so they have to direct from the side. And if a video is read enough, it can also make a little money and subsidize the family.
My mother is optimistic, and she always gives people a smile when facing the camera, but you all know how much bitterness is hidden under this smile.
Life always has to go on.
"Whether to save or not is my business"
It's always money that can't be avoided.
To put it bluntly, there is also a difference between people who are sick.
How much is a person's life worth?
You don't know, but you know that it costs a lot of money to save someone.
Can human life really not be measured in money? You ask yourself.
You and your wife have a daughter, or rather, a daughter.
Now that you are all old, your daughter's life is forever frozen thirty years ago.
A leukemia, a sky-high medical expense, you and your wife are authentic farmers, simply can't afford to pay.
The first time you learned about leukemia, it was because of your daughter.
You know, leukemia is not an unsavable disease, if you don't count the money.
Hundreds of thousands, this is the offer.
Hundreds of thousands thirty years ago.
For the first time, you feel a deep sense of powerlessness.
Whether I can save it or not is a matter for the hospital, and whether I can save it or not is my business.
You can only pull your daughter back home and leave her lying on the bed.
Watching her face grow paler and watching her cough up blood, your heart aches.
Why did Heaven choose her? Why can't she live like a normal person?
Finally one day, she was gone, and your little angel was gone.
You don't know, it's not a relief. The heart of a parent is always connected to the child, who can say that you do not feel pain?
In the twilight years, your eyes gradually become cloudy, and only by looking at your daughter's photos can you flash a glimmer of clarity in your eyes.
You will always remember that she had come.
No matter how different the child is, it is also your child.
Dear Fellow Patients,
I believe that your story may be more twisted and tragic than theirs.
I may not be able to empathize with everyone, nor do I want to casually persuade you to be optimistic.
I know that you are different from others.
The same thing is, you are all alive.
So please, live well.
Live.
It's not just you who are affected, but also your loved ones and friends around you.
They are your strongest backing when you charge against the sick.
You may have glimpsed the face of death, and you may have rubbed shoulders with death.
Now, born to die.
That's all.
May all the people of the world be free from illness or disaster and have a peaceful life.
(*01 adapted from netizen stories, 02 adapted from news reports, 03 adapted from folk tales)