On a suburban road 4 kilometers from a hospital in Hebei, a white sedan was parked, and Wang Feng, 31, wore a white vest and sat next to the car, chewing steamed buns with green onions, and the steamed buns in his hands were the amount of food he had for the day. The picture shows the street in Yanjiao, Hebei Province, Where Wang Feng nibbles on steamed buns.
The entire back seat of the carriage on Wang Feng's side was completely flattened, crowded with all kinds of cooking and living instruments and equipment, and the spare space was covered with cardboard and a thin layer of bedding, and he spent more than half a month in this small space. Light mosquito coils, sleep in the car, open the back cover of the car door, dry clothes, plug in the car to cook, and send the meal to the hospital for the seriously ill son and wife, day by day. The picture shows Wang Feng looking for a broken road on the outskirts of the city to park.
The height of 1 meter 73 curled up in the closed space could not stretch, the lush weeds fed by the fly insects entangled him, but the most difficult for Wang Feng to sleep was his son Luo Chen, who was unconscious on the hospital bed. The son was diagnosed with aplastic anemia at the age of two, sought medical treatment for five years, and did not enter the school door at the age of seven. The picture shows Wang Feng silently crying in the car.
Wang Feng comes from the countryside of Bazhou, Hebei Province, and his son Wang Luochen's fate has been ups and downs since birth, and his thin body is like floating on the sail of survival, swaying and wandering. Blood transfusion, medicine, matching, transplantation, rejection, infection, this boy who has not yet experienced the beauty of the world has fought for five years, but at this moment he fell before the last level, and his life is in danger. The picture shows that at night, Wang Feng, who was tired for a day, lit a mosquito coil and fell asleep, and at this moment he could forget all his troubles.
The picture shows his son Wang Luochen and his wife Li Xuewei.
Two years after a blood transfusion and medication, a transplant donor is difficult to find
When he was two years old, Luo Chen was still at the age of learning to speak, and bad luck quietly crawled all over Luo Chen's body along the red bleeding points, from the neck to the front chest. Wang Feng and his wife Li Xuewei rushed to Tianjin Children's Hospital for examination and were diagnosed with aplastic anemia. The couple couldn't believe it, and the wife cried so hard at the side: "My son is still so young, how can he get this disease?" ”
Discharged from the children's hospital, then they rushed to the major hospitals, Chinese medicine, Western medicine all tried over and over again, follow-up to take medicine, platelet transfusion, just like this for two years. In 2018, Luo Chen's condition worsened, taking medicine has no effect, and doctors suggested that they transplant.
Wang Feng contacted the doctor to come to a hospital in Hebei to do matching, the day is not what people wish, he has a bad recessive gene, can not be a donor; the child's mother Li Xuewei belongs to the opposite sex, only half of the matching matching, the risk is large, and the Chinese library did not find a suitable donor, the doctor advised them to wait for a few more months. I didn't expect that this wait was a year, and in the process of waiting for the donor, the child had an accident. The picture shows Wang Luochen on the hospital bed.
In March 2019, Luo Chen had a fungal infection in both lungs at home, which was particularly serious, with hydrops in his lungs and unconsciousness. Wang Feng contacted the major hospitals in Beijing and Tianjin, and told the couple to prepare for the worst. But the couple said that they would not give up anything, they held the attitude of trying to treat the infection in a hospital in Hebei, after more than two months of hard work, Luo Chen had a hard time passing the barrier of life and death.
The picture shows Wang Luochen receiving treatment on a hospital bed.
The mother donates bone marrow and the child is transplanted into the warehouse
Luo Chen's body was controlled under two months of treatment without fever, and the vital signs gradually stabilized, at this time the doctor suggested that the child be transplanted as soon as possible, and the donor could not wait, so he could only use the half-compatible bone marrow of his mother Li Xuewei. In May 2019, the couple cobbled together more than 200,000 yuan and sent Luo Chen to the transplant warehouse.
Wang Feng waited outside the warehouse for more than ten days, and Luo Chen smoothly left the warehouse. But before his hanging heart had fallen, it was lifted up again. Luo Chen suffered from transplant complications TMA more than ten days after the transplant. The child's blood pressure is high, he can't take the medicine three times a day, the kidney function is high, the platelet transfusion is transfused, the blood clotting is not good, and the blood in the urine is also urinary. "At that time, doctors said they were ready, and the survival rate was only 10%. But fortunately, after the efforts of the child's doctor, he once again survived. The picture shows that at the time of transplantation, Wang Feng was accompanying his son.
The doctor explained that the complication was largely due to Li Xuewei's bone marrow semi-conjugation and belonging to the opposite sex, which was also the source of the strong rejection reaction for a long time later. Luo Chen's complications just went down, followed by lung row, skin row, mouth row, eye row, so that Luo Chen did not have a chance to breathe, the child was tortured by multiple rejection, and stayed up in the hospital for 5 months before finally recovering from the hospital. The picture shows his wife Li Xuewei taking care of her son in the hospital room.
The picture shows Wang Luochen.
Two years of rejection will dawn, and severe infections will strike again
Luo Chen was more than five years old when he returned home, and everyone in the family was very happy. Luo Chen has been thinking about going to school, so Li Xuewei bought a school bag and pencil for her child, and was ready to sign up for school when the child's rejection was over. She carefully cared for the child to step through the step by step, lung row, eye row, along the way, Li Xuewei's heart light up little by little, when she seemed to see the dawn of victory, the child's sudden heavy infection like a pouring rain instantly extinguished all of Li Xuewei's hopes.
Two years later, Luo Chen still did not wait for the day when he started school, and was once again admitted to the hospital. Luo Chen's lungs were infected with germs, pneumonia appeared, the bacteria spread through the blood, multiple organs were affected and failed, and now there are effusions in the chest and lungs. The child's blood picture is low, sleeping in the hospital bed, the bone marrow also stops hematopoiesis, and the blood transfusion, platelet transfusion, oxygen inhalation, and coughing up blood are always transfused.
Li Xuewei's heart was really desperate, and Luo Chen's serious illness once again made Li Xuewei exhausted. "I want to give up, I don't think there's a head on this road." From 2016 to 2021, Luo Chen treated for five years, and in five years they tried everything to borrow money to raise money, and the total cost of treatment cost was 3.8 million, and she owed 1.8 million foreign debts, this time she did not know how to continue to treat the child. The picture shows Li Xuewei's mother and son.
But seeing the child looking at her with good-looking eyes and calling her mother, thinking of the child's expectations for the future of the school, she closed her eyes and filled the child's smiling face, and could not help but burst into tears. "Seven years... Seven years of companionship, after all, is a life! So Li Xuewei and Wang Feng made up their minds to save the child. In the group of patients, everyone tens of yuan and twenty yuan, relatives and friends also continue to encourage and support, the couple cheered up, seven pieces of eight twenty thousand, borrowed a friend's car to come to a hospital in Hebei again. The picture shows Wang Luochen, who is weak on a hospital bed.
The picture shows Wang Feng sitting on the outskirts of the city by the car, which was borrowed from a friend.
To save money on medical expenses, the husband slept in the car
In order to save some medical expenses for his children, Wang Feng slept in a car borrowed from a friend. Find a parking lot in the suburbs that does not charge a parking fee, buy a plug-in pot, cook in the car during the day and deliver food to the hospital, and sleep with dew and insects at night. In the darkness, the lights of the tall buildings flickered in the distance, and he hunched over the carriage, holding a white bun in one hand, and swallowed dryly mixed with green onions. "Let's save this half for tomorrow," he said, putting away the half-cut bun in a plastic bag and placing it next to the futon.
For half a month, Wang Feng's eyes were haggard, and his beard crawled all over his cheeks, but he had no time to take care of it. He was running outside the hospital, hungry to nibble on steamed buns and eat green onions, tired and lying on the sweat-soaked bedding that was wet with hot air, curled up and squinted for a while, hoping that his son would get out of danger as soon as possible. "We don't give up on our children at all." Wang Feng's black frame reflected the child's photo on the mobile phone, and the tears had already wet his eyes. The picture shows that thinking of his son, Wang Feng's eyes were full of tears.
On August 3, Luo Chen was hospitalized, and on the 5th, the bacteria spread too quickly, the child's various organs failed, the blood oxygen supply was not available, and the breathing was severe. The equipment of the general ward could not keep up, and the doctor was afraid of the danger of the child and the rescue was not timely, so he suggested that Luo Chen be admitted to the intensive care unit. But Wang Feng really couldn't afford to enter the icu, so he could only let Luo Chen risk treatment in the outer laminar flow bed. The doctor said that Luo Chen needs to carry out anti-infection treatment next, and after the organ function is restored, the blood picture will be raised, and whether it can persist depends on whether the infection can be controlled. The picture shows Wang Feng looking through his son's photos, and what worries him is whether these photos will become his last memory of his son.
Until now, the child's illness treatment has been carried out by the Wang Feng family. Five years of treatment have left them with a high foreign debt, and Wang Feng's savings from working on the construction site have been used for the child's medicine and blood transfusion. Now Luo Chen's infection is serious, and his life in laminar flow bed treatment is in jeopardy, and the high cost of treatment makes it difficult for wang feng's family to continue. I hope that well-wishers in society will help Luo Chen's family survive the final difficulties. The picture shows Wang Feng dotting mosquito coils. (Text | Banxia Picture | Provided by Wang Liang and some family members) Original works are strictly prohibited from being reproduced in any form, and infringement will be investigated! #Photography Headlines ##感光计划 #
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