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Girls suffering from rare diseases are a problem, and the high cost is a problem

author:Xinwen.com

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1st Eye - Chongqing Radio and Television

Mr. He's daughter, who is only 15 years old this year, was diagnosed with a rare blood disease in February this year. In order to treat their daughter, the family has spent more than 600,000 yuan.

Girls suffering from rare diseases are a problem, and the high cost is a problem
Girls suffering from rare diseases are a problem, and the high cost is a problem

Mr. He's hometown is in Wuxi County, and his daughter He Shengyan is 15 years old this year, and in February this year, He Shengyan was sent to the hospital because of repeated high fevers. The doctor clearly told Mr. He that He Shengyan was suffering from a rare blood disease called hemophagocytic syndrome, and the mortality rate was quite high.

Girls suffering from rare diseases are a problem, and the high cost is a problem
Girls suffering from rare diseases are a problem, and the high cost is a problem

In the intensive care unit of the Three Gorges Hospital, He Shengyan went through several rescues before surviving from the line of death. Subsequently, the doctor told the family that a hematopoietic stem cell transplant was also a treatment option. On March 16, He Shengyan was transferred to the First Affiliated Hospital of Intensive Medicine, and then she was successfully matched with her brother He Tao. On April 25, my brother's hematopoietic stem cells were transfused into my sister's body. After the transplant, He Shengyan has been living in a laminar flow ward, during which she also underwent two stages of chemotherapy.

Girls suffering from rare diseases are a problem, and the high cost is a problem
Girls suffering from rare diseases are a problem, and the high cost is a problem

During the interview, the reporter contacted He Shengyan's head teacher. She said that He Shengyan's grades were good and her performance in school was also very good, and her teachers and classmates were shocked to learn that she had this disease.

Girls suffering from rare diseases are a problem, and the high cost is a problem
Girls suffering from rare diseases are a problem, and the high cost is a problem
Girls suffering from rare diseases are a problem, and the high cost is a problem

Mr. He said that he and his wife both rely on odd jobs to make ends meet, and the family earns less than 4,000 yuan a month. Although the child has health insurance, the cost of treating the disease is very high. In the past few months, the family has spent more than 600,000 yuan, relying on the help of relatives and friends to support it until now. Now, when will the child be able to get out of the laminar flow ward? How much will it cost for follow-up medical treatment? It's all an unknown.

Girls suffering from rare diseases are a problem, and the high cost is a problem
Girls suffering from rare diseases are a problem, and the high cost is a problem

If you would like to lend a helping hand to help this special family, please get in touch with Mr. He at 13628234119.

(1st Eye - Chongqing Radio and Television Reporter Yin Heng)