Photo: The ink artist in the book mountain
Editor|The ink artist in the book mountain
Preface
In June 22, CCTV reporters Zhuang Sheng and Cai Lei launched their first interview, at that time Cai Lei was full of energy, clear speech, full of hope for overcoming ALS, in April this year, the two met again for an interview.
However, when Cai Lei said the first sentence, CCTV reporter Zhuang Shengchun was shocked!
Who would have thought that the subtle and vague voice had been uttered by Cai Lei with all his strength, but what was even more shocking was the fact that Cai Lei said it like a joke!
The period from April 22 to June this year is just over two years, which is nothing to ordinary people, nothing more than two years older.
However, more than two years have almost killed Cai Lei!
During this period, Cai Lei brushed shoulders with death again and again, and at the beginning of the year, Cai Lei's life sounded the alarm again, reminding people that time is running out for Cai Lei.
For this interview, CCTV reporter Zhuang Shengchun can be said to be highly anticipated, because in March this year, he proposed to visit Cai Lei, but Cai Lei's physical condition was not good at that time, and the interview was over.
Fortunately, this regret was filled in April, before the meeting, Zhuang Shengchun reporter held Cai Lei's book "Believe" in his hand, nostalgic for the scene of the previous two interviews, especially the scene when Cai Lei responded to the hope of only one percent, or even one thousandth.
"If you don't have one, you have to create this one!" Cai Lei's voice was so sonorous and powerful when he replied, and his words were full of confidence, firmly believing that what he did was not wrong. Zhuang Shengchun reporter was even more impressed by Cai Lei's spirit of not admitting defeat.
Two years later, the reporter had "doubts" about this belief, and now what has changed about that belief?
When the reporter saw Cai Lei himself, he was shocked by the scene in front of him, Cai Lei and the two people at this time, especially Cai Lei's words at the beginning, Zhuang Shengchun couldn't help but worry about Cai Lei's situation.
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Obviously, the distance between the two was less than half a meter, but Zhuang Shengchun's reporter couldn't hear what Cai Lei said, and he only heard it clearly after asking again, "Before I fall, get rid of ALS." ”
Zhuang Shengchun, a reporter who has always talked eloquently, became a little taciturn at that time, as if there was a big stone in his heart blocked in his heart, and he couldn't help but ask what ALS had brought to Cai Lei!
And this answer was gradually revealed with the deepening of the interview, Cai Lei, who was only 46 years old, lived and rested like an old man, often waking up at four or five o'clock, and the ventilator has also become an important part of his life, and he must wear a ventilator when he sleeps at night.
Who would have thought that Cai Lei's slurred voice at the beginning was actually the sound he made with all his strength, and this was all because of the effects of ALS, and now his tongue and lower lip also tend to shrink.
But even so, the ordeal never meant to leave Cai Lei, Cai Lei smiled and said to reporters, "Tie me with a rope", I thought it was a joke, but I didn't expect it to be a part of Cai Lei's life.
When ALS gradually eroded Cai Lei's body, his limbs first began to atrophy, and a slight bump was fatal to Cai Lei, in order to ensure that he could overcome ALS in a limited time.
And the rope is tied and hung up by Cai Lei himself, because of the atrophy of his limbs, Cai Lei has been unable to stand up normally, and has no strength to support himself in the bath, and using a rope is the best choice, so as to avoid the hidden dangers caused by bumps.
An understatement, but shocked the people around him, Zhuang Shengchun reporter repeated what Cai Lei said in disbelief, with mixed feelings in his heart, and his eyes were always fixed on Cai Lei when he had a dialogue with Cai Lei, in order to show respect for him, but more of a distress for Cai Lei.
In fact, Cai Lei also thought about giving up this kind of life, instead of lying on the cold hospital bed with an intubation, it is better to take a step first, so that there is no need to suffer again, and the people around him do not have to worry about themselves every day.
But Cai Lei still persevered, because he knew that there were thousands of patients with ALS behind him, and Cai Lei's existence was far more effective for them than drug treatment, because he was their spiritual pillar.
When he saw the messages from thousands of patients, Cai Lei was even more convinced that what he did was not wrong!
Because Cai Lei has been fighting ALS in the past few years, the team has become stronger and stronger, which also means that more people are paying attention to ALS, which is precisely a new hope, even if Cai Lei falls, there will be thousands of Cai Lei.
As for ALS, Cai Lei also takes it seriously, even if his body is not as good as before, he does everything himself, such as the speech is "written" by himself, and recited, so as to ensure that the speech is foolproof.
In Cai Lei's view, as long as his fingers can continue to click the mouse, then he will still sit there and work, as Cai Lei himself said: "The time given to me is too short, if you give me ten years, kill it in seconds!"
But the reality is cruel, as we all know, ALS is the world's top five terminal diseases, simply put, once you suffer from ALS, you can't cure it, you can only delay life.
So far, the person who has suffered from ALS for the longest time is Stephen Hawking, who died at the age of 76, but how much time is really left for Cai Lei himself? Can he be the next miracle, or even create a miracle for thousands of ALS patients!
When Cai Lei saw the book "Believe" he wrote in 22 years, he replied affirmatively: "There is no change", the tone is so firm, and he firmly believes that what he did is not wrong.
Even in the future, he will do better, even if he works for about 15 hours a day, because in Cai Lei's eyes, the biggest problem is not ALS, but time.
It is precisely like this, even if Cai Lei and his wife Duan Rui were slandered by some people with bad intentions during the live broadcast, they were not taken seriously every time they were warned.
As the saying goes: "Don't be a dwarf in words, be a giant in action if you want to do it!" Cai Lei is exactly like this, he and his wife in the icebreaker action account of the proceeds to support the project to overcome ALS, in the live broadcast Cai Lei always shows his best state to people, not to let them worry, but also does not want his family to worry.
But among them, Cai Lei is most relieved of his wife Duan Rui, because Duan Rui really paid too much in this marriage, even though Cai Lei said to Duan Rui more than once Don't be pessimistic, don't be sad, but how can Duan Rui deal with everything in front of him as easily as Cai Lei said.
There is nothing more helpless in the world than the lover's life passing by little by little in front of his eyes, but he can't do anything about it. Whenever others mentioned Cai Lei, Duan Rui's eyes were always red, and tears couldn't stop flowing, after all, she was just a daughter, wife and mother.
But fortunately, Cai Lei is still around, although he does not have the ability to hug others, he does not delay the child's hug of him and the family's love for him.
It is these loves that make Cai Lei firmly believe that he can overcome the problem of ALS, and he said bluntly at the end of the interview: See you in two or three months, and your body will be fine.
At that time, the sun was shining into the room, everyone was smiling, as if everything was going in a good direction, and when the interview was over, Cai Lei sat back down in front of the computer and got to work.
epilogue
I'm sure I'll see you soon!
I hope that the problem of ALS can be solved in the near future, and I hope that there will be more time left for Cai Lei!
I hope that everyone can get rid of the torture of the disease as soon as possible and usher in the day when the clouds will see the day.
What are your thoughts on this?
Information source: CCTV News Weibo on April 23 about Cai Lei still believes a year after writing "Believe"?
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