Sources: All information stated in this article is based on reliable information, and is summarized at the end of this article.
The eyes are slanted, the ears are deformed, the face is a bird's face, and he was only 3 pounds at birth, and he was diagnosed with bird's face syndrome.
Knowing the symptoms, why did he choose to take risks to give birth to a child, everything stemmed from "luck".
"Birdface"
The facial expression is like that of a small bird, the eyes are slanted, and the ears are deformed, and it is also because of this appearance that he is called "bird-faced man".
The woman's name is Wang Xiaoniu, from Zhumadian, Henan, but speaking of Wang Xiaoniu coming to this world, it can be said that she has experienced a lot of twists and turns.
Wang Xiaoniu's mother exhausted her strength in order to give birth to Wang Xiaoniu.
In 1994, Wang Xiaoniu was born, but the first time she saw Wang Xiaoniu, her mother gasped, just because the child's appearance looked like a bird.
Wang Xiaoniu's mother fell silent and began to doubt the medicine she had taken to get pregnant.
It is also because of this relationship that Wang Xiaoniu's mother treats Wang Xiaoniu with more guilt, for Wang Xiaoniu's life, her mother can be said to be exhausted, it can be said that Wang Xiaoniu is a child who grew up in love.
And the mother does not feel that her child is any different from the others around her.
is also because of her mother's care, even though Wang Xiaoniu feels that her appearance is criticized, Wang Xiaoniu still maintains her love for life.
It's just that this bird-faced syndrome still becomes an obstacle in Wang Xiaoniu's life.
The actual probability of developing this bird-face syndrome in a newborn is about 1 in 50,000. In particular, the craniofacial bone structure is abnormally developed, so when the cheekbones are pushed down visually, the face appears like a bird.
However, there is no cure for this disease, and only timely intervention can be achieved.
In other words, this disease is "carried" for a lifetime.
Although her face is different from others, Wang Xiaoniu has not lost her longing for an ordinary life like ordinary people, and in 2012, Wang Xiaoniu met.
Yuan Dabao, and Wang Xiaoniu are still fellow villagers, 6 years older than Wang Xiaoniu, because of polio, Yuan Dabao has repeatedly hit a wall on emotional issues.
At the moment when he met Wang Xiaoniu, Yuan Dabao felt that there was hope for the future.
The two hit it off at first sight, even though they were physically disabled, but they firmly chose each other and began to get married after four months of knowing each other.
Happiness began to surround the lives of the two, marriage, lovers, and Wang Xiaoniu's hope for life was a little more.
It is not easy for two people to come together, so although it is an expectation to be able to have their own child, the two still decided to follow the doctor's advice.
At the beginning of 2013, Wang Xiaoniu became pregnant.
Such news is both surprising and delightful to others, but the two are more worried in addition to joy, one has bird-faced syndrome and the other has polio, will it be inherited?
There is no effective solution to bird-face syndrome, so intervention is the mainstay.
Regular check-ups, regular tests, Wang Xiaoniu and Yuan Dabao are looking forward to a new life, and the doctor's notification is normal or Wang Xiaoniu is relieved.
In September 2013, the child was born, everything was normal, and the child's health made Wang Xiaoniu happy.
The child was alive and jumping, and there was no sign of bird-face syndrome, Wang Xiaoniu was jealous and this was a surprise given to her by God, and she gradually began to become "bold" in the matter of "having her own child".
And the reason is, of course: the child is fine.
It was also because of this expectation that at the moment when she knew that she was pregnant with her second child, Wang Xiaoniu moved the idea of continuing to give birth.
Only this time, God doesn't care.
A genetic second-born baby
In 2017, Wang Xiaoniu found out that she was pregnant.
Wang Xiaoniu is not without concerns, others also said that there is a child, and it is fortunate that the child is normal.
"At that time, I was thinking about whether to do it, but my husband wanted a daughter, and we thought that the eldest son was all right, so we wanted to give birth to the child. ”
But in the end, it was the "fluke" that made Wang Xiaoniu's second child full of expectations.
It's just that God didn't give Wang Xiaoniu a chance to be lucky this time.
In 2018, the second child was born, bird face syndrome, and Wang Xiaoniu looks very similar.
The moment when the collapse finally became a concretization of the expectations for the second child, Wang Xiaoniu was full of guilt, she was criticized because of this face in the past, what should the future of her son be.
However, the matter has become a foregone conclusion, and Wang Xiaoniu's second child is this bird-faced syndrome.
But just like her mother took care of herself, Wang Xiaoniu gave more care to Erbao, and Wang Xiaoniu blocked too many rumors for him.
If a normal child goes to and from school, if a normal child is treated with due respect.
"Every child is the meat that falls from their mother's body, and no matter what flaws they have, they are my lovely children in my eyes. ”
Picking up and dropping off children to and from school every day, taking children out to play every day, Wang Xiaoniu tries her best to take care of the children.
On April 12, Wang Xiaoniu updated her news on social platforms, and her daily life with her two sons was also gratifying, positive and optimistic.
May Wang Xiaoniu's family get better and better.
Resources:
【Popular Science】Rare Disease Science Series: One Face of a Thousand People - Bird-Face Syndrome - Zibo Maternal and Child Health Hospital
The woman's face is like a "bird's face" when she suffers from a rare disease, and her son is worried and ridiculed by his genetic mother - The Paper