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The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

author:Dr. Yu talks about health

Mr. Duan, 39 years old, recalled his experience of being tortured and treated by the disease for so many years, and he told the doctor that his first illness could be traced back to the age of 18, around the time of the college entrance examination in 2001.

That night, Mr. Duan and his classmates went out to eat McDonald's and came home, and while walking on the road, he suddenly developed extremely severe abdominal pain, which felt like he had been hammered hard, causing him to roll on the ground.

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

After being sent to the nearest hospital emergency room, the doctor speculated that it might be acute pancreatitis, a dangerous disease, and in severe cases, it may lead to shock and even death, and the doctor admitted him to the hospital for examination and prepared surgery, but surprisingly, the night before the operation, the hospital's surgical experts judged that it might not be pancreatitis from various examinations, and recommended hormone therapy to see the situation.

Not to mention that the effect is really good, after the high dose of hormones went down, the young Mr. Duan's condition was quickly relieved, and he was discharged from the hospital on the third day, but this was like opening a Pandora's box, and after two or three years, especially in winter and spring, Mr. Duan's condition would repeat.

The symptoms were unbearable severe abdominal pain, but the strange thing was that as long as you went to the hospital for saline treatment, the symptoms could be relieved well, and there was no good way at that time, and Mr. Duan has been like this for many years.

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

Mr. Duan did not wonder if it was because of the food he ate that caused the problem of food poisoning, so Mr. Duan became very careful when eating and began to abstain from seafood and raw and cold food.

No, it was probably in the spring of 2018, Mr. Duan had severe abdominal pain again after a party, and this time the pain made him almost go into shock, and he went to the hospital emergency room for injections to no effect, so he was reluctantly transferred to a tertiary hospital in the next city.

During the operation, the doctor found that Mr. Duan had only a small amount of adhesions in his abdominal cavity and had no other problems.

After the operation, he was treated by drainage of ascites effusion, and Mr. Duan's condition was relieved after a period of time.

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

Unfortunately, less than 3 months later, he had severe abdominal pain again, and came to the internal medicine department of a tertiary hospital for examination, and the doctor was also overwhelmed, so he did an ultrasound examination of his abdomen, and it was found that Mr. Duan's omentum showed a "cloud" shadow.

Experienced doctors thought it might be "cellulitis", but something even stranger happened, just before the preparation for another laparotomy, the "cloud" shadow magically disappeared.

In 2014, Mr. Duan suffered severe abdominal pain again and then went to Guangzhou for medical treatment.

This specialized hospital brought together the top abdominal surgeons in South China, combined with the anesthesiology, internal medicine, hematology, and incurable diseases departments for consultation, and successively performed a comprehensive examination of Mr. Duan's gastroscopy, colonoscopy, capsuloscopy, etc., and finally found the problem, his disease was "colon air sac disease", and the name of the disease was determined, is this a happy thing? But the doctor told Mr. Duan that because the number of people suffering from this disease was too small and the incidence rate was low, the hospital and the doctor did not have any clear treatment method.

After the examination, Mr. Duan's attacks became more and more frequent, and each attack made him feel painful, and due to the previous use of large doses of hormones, he gradually developed drug resistance, and everything fell into a dilemma.

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

Affected by the strange disease, Mr. Duan's weight plummeted, from 140 catties to about 90 catties, and due to the repeated illness, unable to work, Mr. Duan basically cut off the source of income, coupled with the high medical costs of treatment, he suddenly went into debt of one million.

In July this year, Mr. Duan had abdominal pain again, and had a high fever of 39°C for several days, and he developed septic shock and was dying.

After a few days in the ICU of the hospital, several experts shook their heads and pronounced his death sentence, and at the most critical moment, a professor said to Mr. Duan: "We have a young professor who has just returned from studying in the United States, and he has studied this quite a lot, let him try it"?

As if he had seized the last opportunity, Mr. Duan nodded and agreed to ask the professor for a consultation, and the professor briefly understood Mr. Duan's medical history, and then immediately admitted Mr. Duan to his own department, and organized a number of experts at home and abroad to conduct a comprehensive examination, and then according to the characteristics of Mr. Duan's "colonic balloon disease", the professor was also ready to conduct MDT discussions.

The professor introduced to Mr. Duan's family that "colocyst disease" is characterized by multiple balloon-like cysts under the colonic mucosa or under the serous membrane, most of which occur in the transverse colon, splenic flexure colon, and the sigmoid colon is the most common.

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

Moreover, the incidence of this disease is very low, even in the world, there are only a few dozen cases, and the cause and mechanism are unknown.

In view of Mr. Duan's long-term recurrence, which seriously affected the quality of life, the professor and the MDT team finally discussed that surgery was the best option and the only means.

Despite the risk, in order to save this dying life, the professor decided to immediately arrange for surgical treatment. A month later, Mr. Duan was wheeled into the operating room, and during the operation, the professor found that Mr. Duan's internal condition was complicated, with severe adhesions, and "abdominal calloon signs".

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

The small intestine, large intestine, mesentery, and omentum have lost their normal anatomical layers and are difficult to separate, and the intestinal tract will be damaged if forcibly separated.

After more than an hour of hard work, the professor performed a complex "total colectomy", which lasted a total of 4 hours and had a blood loss of 500ml, which was completed very smoothly.

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

On the second day after the operation, Mr. Duan was able to get out of bed and move, and on the third day, his bowel function and bowel sounds gradually recovered, and he was able to consume some semi-liquid food, and two weeks later, Mr. Duan met the discharge criteria.

On the eve of being discharged from the hospital, he told the professor's team: "Today is the day of my rebirth, more than 20 years, tormenting me for more than 20 years, I finally came back to life"!

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

Three possible mechanisms are responsible for the cause of a colic air cyst.

First, congenital factors. Some studies suggest that colic balloonism may be associated with congenital structural anomalies. This may include structural abnormalities in the muscular or mucosal layers of the colon wall, leading to the formation of a balloon-like cyst.

Second, intestinal motility disorders. The normal peristaltic movement of the intestines plays an important role in pushing food and waste through the digestive tract. If the peristaltic movement of the intestine is disturbed, it can lead to stool accumulation and colon dilation, which can lead to the formation of air sac-like cysts.

  1. Intestinal gas retention. Some studies suggest that intestinal gas retention may be a factor in the development of coloon balloonism. Retention of the gas may lead to an increase in pressure in the colon, which can cause the colon wall to distangle and the formation of a balloon-like cyst.
The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

Patient symptoms

The main manifestations of this tormenting disease are as follows:

(1) Abdominal pain. This is one of the most common symptoms, and abdominal pain can be intermittent or constant. The pain usually occurs on the lower left side of the abdomen, particularly in the area of the sigmoid and transverse colons.

(2) Bloating. A feeling of distended abdomen is another common symptom that can be caused by a balloon-like cyst that causes gas or expansion in the intestines.

(3) Changes in bowel Xi. People with colonic balloon disease may experience changes in bowel Xi, such as constipation, diarrhea, or alternation.

(4) Palpable lumps. In some cases, a balloon-like cyst can be felt by palpation of the abdomen. It depends on the location and size of the lesion.

The man had unexplained severe abdominal pain for 20 years, and the "real culprit" was found in many hospitals, and there were only dozens of cases in the world

(5) Weight loss. Long-term abdominal pain, bloating, and abnormal bowel movements may lead to loss of appetite and weight loss.

To sum up, colonic air cyst is not common at present, and its symptoms are similar to many acute abdomen, so when the patient does not pay attention to this disease, the doctor will not diagnose it, which has caused a great obstacle to the patient's quality of life, and I hope you will not encounter this situation in your life.

The man had unexplained severe abdominal pain for 20 years, and found that the "real culprit" was a rare disease with only a few dozen cases in the world, and surgery was his last straw

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