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History of the Orchid Pavilion
Editor|History of the Orchid Pavilion
"Isn't this the catfish essence in Journey to the West, Ben Bo Ba, Ba Bo Ben!"
In 2021, a short video suddenly went viral on the Internet, and a man's big face in the video crowded the entire screen. The thick nose, the width of the large mouth that almost spans the entire face, and the forward bulging mandible, look like the catfish essence in Journey to the West.
Of course, this is not the most explosive, the picture is everything, his 3 sisters are in the camera, the top faces are strange, it is simply mistaken for entering the "monster den".
In fact, they really are not, deliberately playing ugly and funny, but they were born with facial syndrome and were born with this face. Looking at the world, there are only 12 such cases, and I did not expect that their family accounted for 5.
So, what exactly is this facial disease? And how do they withstand the pressure to live?
A naturally weird face
If it were not for the development of today's self-media, I believe that everyone would not have thought in their lifetimes that someone could really look like this. But after seeing it, I believe everyone can only sigh with emotion, the world is big, there are no wonders.
A middle-aged man living on the Indonesian island of Sumatra, Surya. It seems that since I can remember, I have learned to adapt to the strange gazes of the people around me.
As a child, he knew early on that he was different from others.
The towering, protruding jaws and the lips that reach the root behind the ears are all the objects of fingering of friends of the same age. At first he would try to fight back and argue, but as he grew older, he learned to bear and reconcile with his own face.
Fortunately, he is not a lone outlier, at least he finds that there are people in this world who have similar faces to him. Although that person is the closest relative around him.
In fact, the first person to appear such a strange face should be his father.
Surya's father was a native of the island, and before he was born, the island had never heard of, let alone seen such a strange-faced child.
His brother and sister in front of him were also normal and ordinary children, but when he was born, his parents found that he was still a baby, his lips were extremely wide, and his facial proportions looked particularly strange.
However, parents must like it when they look at their children, and they didn't care too much at that time, just thinking that their children would grow up, and it was estimated that it would be good.
Unexpectedly, Surya's father is longer and more protruding his mouth, and his lips are getting wider and wider. The people around them all avoided it, and they all thought that there were freaks in their house, and they took it for granted that this was a curse from heaven on them.
What big hippos, big lizards and other vicious words are all thrown from time to time.
Fortunately, the family people took good care of him and gave him more love. This also made him grow up, although there was not much communication from the outside world, but he was kind inside, extremely sunny and confident.
Marrying a wife and having children, the defect is inherited
Although he had little to learn, he learned a survival skill to support his family. With diligence and effort, he was able to support himself.
However, his parents have no hope that their son will find a daughter-in-law in this life. Unexpectedly, he actually chased a beautiful girl and became a relative.
According to Surya's mother, the reason why she chose to marry a man with a strange face was because everyone underestimated his inner goodness and goodness.
Too many people were intimidated by his appearance and never really knew him. As the saying goes, although he is ugly, he is very gentle at heart.
Not long after marriage, the girl became pregnant. However, the first reaction of all the people around them was not happiness, but deep worry, they did not know whether the child would inherit the father's genes, and also looked strange.
But in the end, emotion triumphed over reason. They chose to give birth to the child, and Surya was born.
Unfortunately, the child's face was the same, but he soon calmed down. He told his wife that since I could survive well, it would be okay to trust my son Surya.
In this way, they gave birth to 3 daughters in succession, without exception, the children all inherited their father's facial defects, and each looked very different.
For a while, their family became the object of discussion on the entire island.
Just when the couple could not bear the pressure and decided to go to the hospital for ligation and never have children again, the wife became pregnant again.
After thinking about it, they felt that all this was a hint from heaven, and they finally made up their minds to give birth to this child. Acceptable in either case.
But when they really saw the fifth child with their own eyes, the couple all hugged their heads and cried in tacit understanding.
Because the little daughter's face is normal, and all ordinary babies, nothing more. A thing that was originally the most ordinary, but it became the greatest comfort in the years that they had been married.
Surya went out to work to support the whole family
In the days since, his five children have become his biggest motivation to work hard. However, seeing the children grow up one by one, his body collapsed.
Slowly, the burden of the family shifted to the eldest son, Surya.
Although compared to his father, who faced the world alone, he could not find anyone with a similar face. Surya can at least know that she is not a different kind in this world.
But in the same way, Surya is far less fortunate than her father to meet a woman who truly loves her.
Seeing that he is over 30 years old, no girl dares to approach him. And with the passage of time, he can't be like his father, who only nests in a small village all his life, away from the crowd and communicates.
Finally, he mustered up enough courage to become the first person in his family to bravely go to the big city to seek a living.
But reality hit him back. When he first walked into the city to get a job, he discovered that the world was full of malice.
People simply don't take the time to stop and get to know your heart. The first impression after seeing the appearance determines their next move.
Taking people by their looks is vividly reflected in Surya.
He applied for a job as a waiter, but was accused to his face of intimidating customers; applied for a job as a car washer, but was ridiculed to scare away customers; There were even some interviews, and he scared the interviewer out of a scream as soon as he entered.
The constant blows made his self-confidence completely low. Finally, he got a cheap job washing dishes in the back kitchen.
Although his boss made an exception to hire him, it was a long workload and a mismatched salary. Fortunately, he no longer has to face the strange gazes of others and has a place to rest.
But the good times did not last long, and the new crown epidemic in 2020 swept the world. Indonesia's tourism industry has plummeted, there are no foreign tourists, and the natural restaurant business is also very popular.
The boss, with the attitude of not raising idlers, was the first to fire him.
Helpless, Surya, walking alone on the streets of Indonesian cities, feels so strange everywhere. But the only thing that made him happy was that everyone was wearing masks because of the epidemic.
In this way, he can cover his face in an upright manner and no longer have to worry about other people's fingers.
But the superficial psychological comfort could not be eaten, and he could only choose to flee back to the village in ashes.
Global rare disease, brother and sister live broadcast to save money for medical treatment
With her father ill and bedridden, and the family of seven needing to feed themselves, Surya returned home and began experimenting with various ways to earn a living.
However, affected by the general environment, the overall employment is sluggish. He tried many times and never found a suitable job.
At this time, the overseas version of TikTok appeared in his field of vision, and he learned for the first time that live streaming can also make money. After watching a lot of strange eyeball live broadcasts, he suddenly had a bold idea.
Start a live broadcast, appear on your own, attract traffic, and then monetize and make money.
At first, he didn't dare to tell his family, but secretly registered an account, took a short video about himself, and posted it.
I didn't expect that in less than a few days, the number of clicks and views actually exceeded one million. Everyone was attracted by this strange face, and also left various messages under the video.
Of course, bad words are certainly indispensable, and all kinds of personal attacks are inevitable.
But Surya was surprised to find a message in it, which stated that his strange face was caused by congenital facial syndrome.
However, such diseases are so rare that the previous global statistics were only single-digit cases. The reason why the other party knows is because there is a case in Utah, where he is located, the same female patient.
Surya was more excited than ever to learn that there were people on the other side of the ocean who were suffering from the same illness, and he quickly told his family the news.
Finally, they untied the decades-long knot in their hearts, and they were not mutated outliers. Nor is it the cursed "ominous man" in the village, there are people like him in other corners of the world.
They simply suffer from a rare disease, like a congenital disability, congenital deafness. They're not monsters, they're just the same wretched people.
After passing this long-buried hurdle in his heart, Surya completely opened his heart. He began to appear boldly and confidently in front of the camera, recording the bits and pieces of his life and transmitting them to the Internet.
Soon, he accumulated hundreds of thousands of fans and supported his family with short videos. Seeing that this method was feasible, the four younger sisters also appeared on camera and participated.
Countless viewers saw through the screen that the 5 brothers and sisters who were also compatriots could have such a big difference, and they all sighed at the magic of the world.
At the same time, many people expressed encouragement for Surya's positive attitude towards life.
As it spreads more and more, not only the whole of Indonesia knows about this special one. Even different corners of the globe were informed of them.
At the end of 2021, some media contacted and interviewed their siblings. Before the official interview, the reporter friends told them the good news.
Patients like them with rare facial syndromes have only 12 people in the world so far, but they account for 5 people in a family.
In addition, although there is no effective drug to cure this disease, it can be improved by plastic surgery.
And there have been patients who have tried surgery before and achieved certain results.
Surya, who finally knew the cause and saw the hope of a new life, said in an interview that he would insist on live broadcasting, hoping to use the money earned from live broadcasting to arrange plastic surgery for several sisters, after all, they can't always live alone like themselves.
postscript
The strange face is not necessarily an evil person, but it brings real hardship to real life.
We are not them, we can't empathize in any way, we can only marvel at the magic of nature and be more tolerant of the world.