Those who hold the salary for all shall not let them freeze to death in the wind and snow.
Last month, a drug dealer who had been detained for more than eight months finally ushered in his trial day.
However, the absurd thing is that before the trial, the court received a petition from hundreds of people pleading for him.
"He was wronged, not a drug dealer."
"We don't know the truth, but only with a conscience, because we have all received his help."
At the end of the petition, it was covered with 132 bright red handprints from the parents of a group of children with rare epilepsy.
For these people, it is this "drug dealer" who has bought life-saving medicines for their children from abroad again and again.
That's right, this is a Chinese realistic version of "I Am Not a Medicine God" that happened in 2022.
The purchaser "Iron Horse Glacier" bought rare drugs from overseas for children with epilepsy, but because this drug is still banned in China, it was eventually prosecuted by the procuratorate for "smuggling, transporting, and selling drugs" and faced jail time.
On the one hand, he saved thousands of families from fire and water, and was good.
On the other hand, he is desperate to take risks, violate the law, and is evil.
But the story of this drug dealer, written between good and evil, is a lament about human nature and reality.
They said I was feeding my child poison
Initially, Iron Horse Glacier was just a desperate father.
His daughter grew up suffering from tuberous sclerosis epilepsy, a rare disease that cannot be cured, and the children's intellectual and motor abilities are almost undeveloped, and the mortality rate is high.
His 8-year-old daughter, who is only two or three years old in intelligence, needs to be cared for by adults 24 hours a day.
When epilepsy occasionally occurs, the Iron Horse Glacier can only watch his daughter convulse in pain, her face is bruised, and her mouth is spitting, and his heart is like a knife.
What is even more desperate is that as the child grows older, the previous medication has developed drug resistance and cannot effectively control the onset of the disease.
〓 Daughter of the Iron Horse Glacier
At the end of 2020, when Tiema Glacier took his daughter to Beijing for a follow-up consultation, the doctor told him that "there is a foreign drug called chlorpachan, which has good efficacy and small side effects, but it cannot be bought in China, so you have to find a substitute to buy."
This is the first time that the Iron Horse Glacier has heard of the drug "Chlobazan".
He did not know that this drug, because of its addictive ingredients, was strictly controlled by the mainland as a second-class psychotropic drug and had no legal status. All he knew was that the more seizures he had, the more he hurt his daughter's brain and could even lead to death.
"Children have medicine to eat and live", this is the only belief of the Iron Horse Glacier.
He repeatedly begged for help, and finally bought Chloebazan from a foreign purchaser. After my daughter ate it for a week, the number of seizures really decreased.
Soon, the Iron Horse Glacier found that in the various groups of children with epilepsy who were warmed by the group, countless people were struggling to find a way to buy Chlobar.
Obviously, the doctor's prescription reads "Chloebazan", but the parents can't buy medicine.
〓 In the treatment of some epileptic encephalopathy, clobats is an irreplaceable presence
In foreign countries, a box of chlorpacham costs between RMB 250 and RMB300.
In China, some ruthless purchasing agents even sold to 1200 boxes at a higher price.
But this is the child's life-saving medicine, the parents who are eager to save their children, can only be forced to buy at a sky-high price, many families in order to treat their children, high debts.
The Iron Horse Glacier can't look at it anymore.
He began to buy clopazhan for domestic children, selling 350 yuan to 450 yuan per box. Take into account the cost of domestic and overseas freight, lost couriers, and occasionally unable to ship.
At this price, there is almost no room for profit.
Rather than making money, what he did was more like for more children like his daughter to take life-saving medicine in time.
Some family members of children who have purchased chlorpalcan said that the evaluation of the iron horse glacier among patients is very high, because the proportion of chlorpah purchased by him is cheap in other channels, the price and supply are relatively stable, and the first shipment, and then the money.
"Other daigou have increased prices like crazy after the epidemic, but he hasn't, and we know that daigous are still at risk of being seized."
With the mutual introduction of patients, more and more parents of children have come to them, and they buy orders in weChat groups to communicate about medication.
During the epidemic, when someone cuts off the drug, but there is no stock in his hand, the iron horse glacier will also take the initiative to contact patients to even the medicine, calling on everyone to help each other.
But just 2 months later, this hopeful situation came to an abrupt end.
On July 4, 2021, Iron Horse Glacier was taken from his home by police.
Two days later, his family received a notice of arrest and learned that he had been criminally detained on suspicion of smuggling and drug trafficking.
Iron Horse Glacier's wife was incredulous, and she ran to the public security bureau and collapsed and asked: "How did so many children's life-saving drugs become drugs?" ”
"They say I'm ignorant and there are a lot of drugs."
For the next 8 months or so, she never saw her husband again.
It wasn't until last month's trial that she saw her husband on video, "The hair was shaved off, the person also lost a lot of weight, and it hurts to see it." ”
On March 18, 2022, the "Iron Horse Glacier Case" was heard and the verdict will be pronounced at a later date. Iron Horse's defense lawyer said, "The procuratorate's sentencing recommendation is one year to one year and four months. ”
The iron horse fell, and the burden of the family fell on the wife alone: the business of selling vegetables, the sick daughter, the high cost of medicine, the elderly parents...
More importantly, most of the daughters were taken care of by iron horses before, after the incident, the daughter's mood fluctuated frequently, it was difficult to sleep all night, because there was no medicine to eat, the number of seizures also increased, "convulsions did not stop, could not speak, urinated more, I could only look at her for a moment." ”
A father can no longer save his daughter, nor can he continue to save more people.
He couldn't even save himself.
The drug dealer's mother, who refused to plead guilty
In this case, it is not only the Iron Horse Glacier who has been labeled as a "drug dealer".
The mothers of the four children who bought medicine from the Iron Horse Glacier were also identified by the procuratorate as smuggling drugs because they helped them collect the chlorinated packages, becoming the sensational "drug dealer mothers".
Li Fang is one of them.
Her son Long Long is 2 years old this year, can't speak, can't move, can't even lift his head, can only lie down and eat liquid food... Once the seizure occurs, it will tremble, convulse and cry for days and nights without eating, drinking or sleeping.
Only after using Chloepa can Long Long's seizures be controlled visible to the naked eye, and Li Fang can also get the happiness of a mother from the "clues".
"When not sick, the dragon will occasionally kick the little foot happily."
〓 Li Fang is feeding her son Long Long
At the end of May last year, Li Fang received a private message from the Iron Horse Glacier, saying that the address was not enough, and asked her to help receive the Chlobazan package from abroad.
She couldn't have imagined that just because she received a package on her behalf, she became a "drug trafficker".
Fortunately, in the end, the legal network opened up.
Although the prosecution believed that Li Fang and others who had collected chlorobazan had already committed a crime, they finally made a decision to "convict and not prosecute" in view of reasons such as "inducing crimes for the treatment of children".
Of the 4 "drug trafficker mothers", the remaining 3 "voluntarily signed affidavits admitting guilt and accepting punishment", but only Li Fang always refused to "admit guilt and accept punishment".
She couldn't figure out why she had just done what a mother had to do, so why was she so guilty of drug trafficking?
"The child has lived a miserable life than an ant, but I still want him to live, is there anything wrong with that?"
After the incident was reported by the media, some people on the Internet accused her of "feeding her children with poison and not being worthy of motherhood."
When Li Fang was most desperate, she even wrote a suicide note and wanted to commit suicide.
A mother who only wants to save her child has crashed into the high wall of the law: on the one hand, the zero tolerance of drugs in the national law, on the other hand, the mother's simplest idea of "living" and "not stopping the medicine".
Under the contradiction between law and love, Li Fang, the "mother of drug dealers", not only insisted on not admitting guilt, but also decided to appeal.
She was not worried that this crime would affect her, but she was afraid that once she confessed, it would be more difficult for future children like Long Long to buy medicines.
"There are many drugs that this group needs are controlled drugs, in addition to clopazan, many of the drugs for the treatment of early infantile refractory epilepsy need to be purchased from abroad, if they are also judged as drugs in the future, where is the survival of countless children?"
In the face of the common enemy of disease, the parents of this group of children with epilepsy have long formed a trust like comrades-in-arms:
Li Fang was convicted of helping Iron Horse Glacier collect packages, but she had no resentment. She refused to call Iron Horse a "drug dealer" in the interview, convinced that it was not Iron Horse's intention to involve herself in it.
Iron Horse Glacier was arrested for buying life-saving medicine for everyone, and hundreds of people jointly pleaded with the judge to let him go home without guilt.
You've helped me, and I'm going to help you too, because we all want our kids to live.
The patients who help each other show the brilliance of humanity in desperate situations, just like the "Plea Letter" written in the courtroom:
"Because the children in the family got sick, a group of poor parents got to know each other. We, a group of people, have been helped by each other, and feel that there are still fellow travelers, and there are people who feel empathy. ”
This is not the story of how a desperate drug dealer who is desperate for profit sells drugs, but the story of a group of desperate parents who are eager to save their children, and they are united against death.
But he never thought that what fell faster than the scythe of death was the hammer of the law.
Children who have no medicine to eat
The "drug dealer mother" confesses her guilt and Iron Horse Glacier is imprisoned, but the story has not yet reached an end.
Because the cause of the incident is still there: the epileptic children who are on the verge of life and death have no medicine to eat.
After the "Iron Horse Glacier Case", many purchasers were frightened and suddenly "evaporated in the world", and the road to buying chlorphazan was completely broken.
Countless children face the risk of drug discontinuation, parents can only "break open and crush" a pill to use, through the way of borrowing drugs, reducing drugs for their children to "continue life".
In various patient groups, there are a lot of requests for help-
"Please! Who else has Chloempazan? ”
"My daughter can't live without Chlobarbachan, she just eats Chlorpachan a little better."
"Where can I buy Chloebazan?"
Anxious parents tried everything they could to find overseas pharmacies, pay sky-high postage, and send them back to China by direct mail, but in the end they would be seized by customs.
A desperate mother even wrote a request, attached the case, and passed it to the customs, begging the customs to release it.
With the increase of customs investigation and punishment of chlorpalcan drugs, more and more children are at risk of discontinuation. Once the drug is discontinued, those children who originally have a well-controlled condition are likely to aggravate their condition and even endanger their lives.
In the group of patients who are in urgent need of chlorpachan, there are parents who have bid farewell to the group.
"Say goodbye to everyone! My kids left. ”
"Good luck to all of you."
Desperate parents, who gathered more than 1,400 people in 3 days, decided to jointly send a letter of help to the society.
In just 15 hours, the owner of the group collected the real-name signatures of 1402 people.
On November 28, 2021, more than 1,042 families of children with rare diseases and epilepsy sent a letter of help to the society - "How to keep our children alive?" 》
The words wept blood, and the voices contained tears.
Under each red handprint is the name of a parent of the child and a child waiting for Chloepazan.
The child is suffering, but there is no cure!
In the letter of help, desperate parents pleaded:
"As parents of children with rare epilepsy diseases, we know deeply that the first attribute of psychotropic drugs is 'medicine', we have no intention of challenging the national control policy on psychotropic drugs, we just want to buy medicines to treat children, we are not selling drugs!"
After the letter of help was issued, it quickly appeared on the hot search, causing concern, and some patient organizations, hospitals and other organizations also began to call for the relaxation of the control of chlorpazan.
The group of children was finally seen.
According to the official website of the Drug Evaluation Center of the State Food and Drug Administration, on March 11 this year, Yichang Renfu Pharmaceutical submitted a 3-class generic listing application for clopazan tablets and was undertaken. If successfully approved, it will bring hope to this group of desperate domestic children with epilepsy.
Tiema Glacier's wife said she had heard from some of the children's families that the National Health Commission attached great importance to the matter, and that the domestic version of Chlobarzhan was expected to be listed in June.
She was looking forward to this coming true, and she was also looking forward to her husband coming home soon.
At the end of the movie "I Am Not a Medicine God", after the protagonist Cheng Yong was released from prison after being commuted to prison, he found that he had been included in medical insurance because of the rare drugs he had been imprisoned, and no one would ever be unable to take medicine again.
I hope that in the near future, this realistic version of the story will usher in the same happy ending.
Resources:
1. "Parents of children with epilepsy who purchase life-saving drugs on behalf of them are accused of drug trafficking, and hundreds of people jointly write a letter" China News Weekly
2. "In order to save their children, they became "drug dealers' mothers"" Panner: Tencent Medical Code
3. "Medicine 囧 - 1042 parents of children with rare epileptic encephalopathy openly looking for clopazhan", Qilu Evening News
The author | Guo Enyi
#Xu Zheng##Epilepsy##我不是药神 #