Just because of a fall, the girl was found terminally ill? This kind of plot seems to be encountered only when watching movies.
However, the Japanese drama "A Liter of Tears", which is based on real events, begins with such a plot.
Chi Neiya also originally lived a beautiful life like a campus lady.
It is 15 years old, the youth flower season, excellent results, once admitted to the ideal famous school, the motor nerves are also good, running and jumping flexible, rapid action, an interview successfully joined the school basketball team, as the main force.
Love also seems to be ready to come, and the predecessors of the basketball men's team have a good feeling for each other, and they are almost a formal confession.
There is also a high-cold handsome man Aso Haruka in the class, born with a cold face, but he is not as optimistic as Yaye's sunshine, and will quietly shoot when other students are difficult for Yaya, and the whole "Gao Leng President Falls in Love with Me".
The original family is more happy and harmonious, the father inherits the family craftsmanship, opens the "most delicious" tofu shop in the world, and the mother is a community health worker, often enthusiastic to help others.
There are also two younger sisters and a younger brother below, lively and cheerful and cute. No matter how busy the family is, they gather at the dinner table in the evening to share delicious meals and fun facts of the day.
Appearance, study, love to family without a short board, the heroine of the small talk drama wants to say envy.
However, all this is broken by the vicious disease that is quietly killed, and the happy sub-fate is directly rewritten.
The disease did not come like a storm, and even escaped the eyes of most people, and recently Ya also found that his limbs always did not listen to the call, the sandwich was unstable, he always grabbed the empty when he wanted to grab something, and even if he ran fast, he would fall.
At first, she thought it was just a busy and tired school start, and she didn't care.
It wasn't until Her mother, Ikeuchi Shioka, who had been a nurse, felt that something was wrong and took her to the hospital for examination that she learned that her daughter was actually suffering from "spinocerebellar degeneration", a terminal illness that could not be cured.
For this sunny thunderbolt, my mother chose to hide from everyone in the family, bear the grief alone, and run around looking for a cure.
However, Heaven did not attach love to this poor mother and the energetic girl, the mother did not find a cure, and the family knew that Yaya was suffering from an "incurable disease".
"Isn't she running very normally?" Dad covered his face and choked.
The strange appearance of his parents, the patients in the hospital who have similar diseases to himself, let the clever Yaya quickly know the cruel fact that he can only use a wheelchair in the future.
Obviously he was just 15 years old, and he had already decided to go to the budding of that adolescence, but the heavens beat this "bravery" back unchanged.
School, love, and a bright future suddenly came to naught, tears crawled all over her face, and she cried and asked her mother, "Sick, why did you choose me?" ”
The parents' world and the daughter seem to be in a parallel line, they do not want to face, but the daughter's body is deteriorating day by day, and finally under the advice of the doctor, the family decided to actively do rehabilitation.
Chosen by the disease = can't be an ordinary person?
The truth was always cruel, and gradually, she found that she was sick, and it seemed that no matter how hard she tried, she could not live like an ordinary person.
She wanted to fall in love like a normal person, but she fell heavily on the ground on a date and had to recover in the hospital all summer.
She wanted to walk like a normal person, but she was shaky and ridiculed like a penguin.
She wanted to live like an ordinary person, but her hands became more and more uncontrolled, first the handwriting in the class became more and more messy, and then she couldn't grasp the cups and bowls, and the family had to replace all the tableware with plastic.
But this did not help her, and in the end, she could only sit in a wheelchair, and even reached out with all her strength, shaking and shaking.
Physical pain was eroding her spirit, and her life was a mess.
In order to meet her wish to go to a normal high school, her parents are busy, her father is working everywhere to earn money in addition to the tofu shop, and her mother is considering quitting her job and taking care of her at home full-time.
My sister grew up overnight, helped her parents take care of the store, and took on the responsibility of educating her younger siblings. She found that her brother felt that Yaya's sister was "disgraced" and would not let her watch her own game.
Yahu showed his brother the clothes that Yaye had embroidered during his illness, and he realized that Yaye was disabled and had not given up on himself, and was still his great sister.
The best girlfriends and classmates of the past waited for her to go to school every day in spite of the eyes of others and helped her push her wheelchair.
But in the day after day of persistence, the whole class broke out en masse, "Because of helping her push the wheelchair and waiting for her to write, we delayed the activities of the club, delayed the progress of learning, and did not have our own time!" “
These words were also heard by Ya outside the door, and at this moment, it was as if a pair of hands had violently pulled her away from a normal person. She realized that the "ordinary life" she wanted was based on the sacrifices of others.
However, on the other hand, students also have their own life and goals, and they should also catch up with their goals and realize their life ideals in the beautiful youth.
When one day, they don't want to give so much, it doesn't mean that they are cold or heartless, but it shows that They also need better care.
Yaya also understood this and finally accepted the fact that she was going to a special school.
After a liter of tears, live
"It was my own decision, but I've shed a liter of tears before I can laugh like this, and I probably need more from now on." She said as she left school.
So within a year, it deteriorated rapidly, making Yaya change from a basketball girl to a wheelchair girl and enter a disabled school for "spinocerebellar degeneration", what is it, and now find a cure?
We first have a systematic understanding of this disease, "spinocerebellar degeneration", also known as spinocerebellar ataxia or hereditary spinocerebellar ataxia, which is essentially an autosomal genetic disease inherited from the family (there are also genetic mutations in some patients).
The cause is progressive degeneration of the cerebellum, spinal cord, brainstem, and neurons in brain tissue, resulting in cerebellar and spinal cord lesions that fail to convey instructions to the muscles.
Initially, patients develop limb disorders such as uncoordinated steps, easy falls, inability to pick up objects, and accurate use of chopsticks or pens.
As the condition worsens, it will gradually lose the ability to walk, there will be language disorders and swallowing difficulties, the patient's mental capacity will not be affected, only the body will gradually lose control, and eventually can only be bedridden for a long time, or even towards death.
The bottom line is that "with the disappearance of the cerebellum, the body will no longer be dominated, but the muscles will not atrophy and the intelligence will not decline."
At present, there is no breakthrough in the research of "gene therapy" and "stem cell transplantation", so the disease is still in the incurable disease, not to mention the real events that occurred in the 2000s.
What doctors can do for patients is generally physical therapy and auxiliary walking devices to alleviate pain or delay the rate of deterioration of the disease and maintain the patient's quality of life.
Fortunately, even if it cannot be completely treated, the real Ya has not given up,
After transferring to a school for the disabled, she learned how to live her own life with her roommate who was sick.
At the same time, he insisted on writing a diary of fighting diseases, because the sentences were beautiful and inspiring, and the works were often posted in the corridors.
This also gave Yaye the opportunity to blossom in another field, and there was a volunteer in the school who was a magazine editor, who felt that Yaye's words were full of positive energy and invited her to share her heart journey in the magazine.
Ya just wrote it, not knowing that this matter would become the logo of her life.
The people around her were infected by her words, first of all, they studied hard for a year with her sister Yahu, put on her sister's school uniform, and helped her realize her wish to graduate from high school.
Haruka Aso, who has a crush on her, also let go of the pain of her brother's death in front of her eyes, regained her strength, and was admitted to the medical school where her father and brother had studied, and worked hard to help Yaya treat her illness.
Many people who suffer from the same illness as her read her words and "reborn" and decided to plan for their countdown.
However, the girl finally left ~ In reality, she walked much more tragically than in the play, and the later Ya also relied on intubation to eat and excrete, the nanny squeezed her, and many people around her looked down on her and laughed at her.
There is no dignity, no quality of life.
But the real Ya also took the test of heaven, and she gave strength to strangers with her talent, strength, optimism, and life.
Although his body died, Ya also left a large number of diaries, which were sorted out by his mother and published books.
Her tenacious soul, who is tenacious and surviving, has eternal life in the words.
In the spring after her death, countless people came to her grave to commemorate her once in this world.
The two levels of beauty and illness are the double dance of happiness and fear
It is hard to imagine, from a healthy and lively girl to a paralyzed person who cannot jump around, every cell in the body is degenerating, but the IQ remains at the level of normal people, and how to maintain an optimistic and strong mentality?
Mom Kito Shioka once went to the crew to visit the class, and when she saw Hiroko Maru, the pharmacist who played her mother, she burst into tears, she did not think about how difficult she was, but "If my daughter was still alive, she would be about the same age as you."
The ruthlessness of time, the old figure of Mu Teng's mother makes people feel very painful
Everyone will inevitably feel that life is painful and cannot live.
But she really faced death, but she was more determined than anyone, cherishing every day of life with incomparable will, and finally left countless words to cheer for the confused.
Her world is full of beauty and suffering, a double dance of happiness and fear at two levels of beauty and suffering
Many people are "confused" about the good, but they remain "sober" about suffering, but suffering is not negatively related to the good, even if it is hard, they must choose the way to make themselves happy.
Just like Yaya was told that she was suffering from a disease that encroached on her body, she did not have time to plan her life, and the best thing in her life was play between classmates, warm getting along with her family, and ignorant love, and even her wish was to ask her mother: "Will I get married?" ”
She had no choice but to be brave, so rather than learning how to make herself happy later, she chose the way to make herself happy.
And her ordinary parents have also become extraordinary choicers on her way to fight the disease, they think very simply, escaping will leave many regrets.
Choose to move forward with courage, face the difficulties head-on, and even if there is no hope and expectation, you will retain the most precious things.
I hope that all young girls can grow up happily, and I hope that we who are favored by fate can embrace the happiness in life.
If you can't see it, you walk over it