Author's small profile
Pseudonym: Dancing Spirit's Eyes
Age: 57
Gender: Female
City: Changchun
Hobbies: Love life, like to eat, drink and cross stitch, like to collect (special amateur)
And the thyroid thing: In October 2010, he underwent a complete radical thyroid dipolae resection, lymphatic dissection of the left neck (16 metastases), and iodine 131 treatment twice after surgery, accumulating 290 Haoju iodine. The first surgery was performed eight months apart (June 2011) and the second cervical debridement was performed, and iodine was not done after the second surgery.
This is the second time I have written about my experience of thyroid cancer, eleven years after the operation, and the memories are full of floods that surround me, there is no sorrow, only the peace and tranquility after rebirth.
<h1 class="pgc-h-arrow-right" data-track="10" > first, nail cancer was found</h1>
Participated in the health examination organized by the unit, did the neck color overtime to find thyroid nodules, and then did a professional examination in the thyroid surgery department of the top three hospitals. At this point I don't know anything about thyroid cancer, which is fine, and the ignorant are fearless.
The final diagnosis was in the thyroid surgery department of the First Affiliated Hospital of Jilin University in Changchun. After the doctor saw the color ultrasound, he arranged for me to operate, and before the operation, I already knew that I was thyroid cancer, and I laughed at myself as a cancer that could not die. Although I am unwilling in my heart, I can only accept the diagnosis calmly and calmly face the facts.
Most of my friends are terrified of cancer, but I am sober and calm, and I have transferred my fear of cancer to surgery. I was extremely resistant to surgery, nervous to death, who knows the more afraid I was, I had two surgeries in total, this is the last word.
<h1 class="pgc-h-arrow-right" data-track="171" > two, two surgeries, two iodine 131 treatments</h1>
My treatment process was like a sandwich cookie, the first surgery + the first iodine treatment + the second iodine treatment + the second operation.
On October 8, 2010, the first day of work after the National Day, my surgery was scheduled to be the first in the morning, from walking in at eight o'clock to being pushed out at three o'clock in the afternoon, with a total of seven hours of surgery.
Radical thyroidectomy, left lymphatic dissection, two foci of the left lobe of the thyroid gland, one foci of the right lobe, microcarcinoma of the right lobe with goiter, more than 40 lymph nodes, 16 lymphatic metastases, breakthrough of the membrane invaded by muscle tissue, there is a tumor and recurrent laryngeal nerve adhesion. Discharge Summary Pathology Stage III, T3N1M0.
The scalpel is in front of the neck and is 8 cm long. Scar cream was applied after the operation, and there was no hyperplasia. Before I was discharged from the hospital, the chief surgeon asked me to make an appointment to do iodine, and the nuclear medicine department scheduled the iodine to be taken two months later.
After the operation, I ate Lele for a month, stopped Lele for another three weeks, and did iodine 131 treatment in the second month after the operation, taking iodine 100 Haoju.
Iodine 131 returned to the hospital for re-examination two months after treatment, and the tg value was slightly higher. The problem was in the lymph nodes, and the nuclear medicine doctor arranged for me to stop the drug for a month, do the second iodine 131, and take iodine 190 Haoju. Twice took a total of 290 iodine luxury house.
Two months after the second iodine-131 treatment, there was still a problem with the ultrasound and tg, and the problem was still in the lymph nodes. I consulted a nuclear medicine doctor, consulted a surgeon in charge, and consulted a head and neck surgeon at a cancer hospital. Nuclear medicine doctors do not recommend continuing to do iodine, the main surgeon recommends surgery or observation for several months, and the doctors in the cancer hospital are very determined, only surgery has no other way.
Following the doctor's advice, I performed a second dissection of the left lymph node in the cancer hospital, and the scope of this cleaning was concentrated in the left 2 and 3 areas, and the lymph nodes were located between the 2 and 3 areas, and the carotid large blood vessels were close, and the operation was risky.
This time the knife edge is 23 cm long from under the root of the left ear to the front of the neck. Apply scar cream and there is no hyperplasia. After the second surgery, Iodine 131 was not treated, and the doctor said that iodine was overtreated. Therefore, taking medicine is inhibited and followed up regularly. Well, the condition is introduced here first.
<h1 class="pgc-h-arrow-right" data-track="173" > several conditions occur after three or two surgeries</h1>
Let's start with the first surgery
1. There is a tumor and recurrent laryngeal nerve adhesion, the doctor relies on superb medical skills, careful and calm, careful peeling, the recurrent laryngeal nerve is not damaged, but the postoperative edema, temporarily compressing the recurrent laryngeal nerve, resulting in small sound, can not make a high sound. After three months the edema is gone, the voice returns, without taking medicine, and naturally recovers.
2. Drinking water for a short period of time after surgery will choke, can not be in a hurry, to drink slowly.
3. The edema around the knife edge is eliminated in about three or four months. I used scar cream, applied it twice a day, started very seriously, and forgot about it after three months. Now the scar is very flat, like a thin straight line, a little natural curvature, and I am very satisfied with this scar.
Less than a month after the operation, I went to work, driving by myself was fine, and I tried not to be tired at work. My family is not together, I buy vegetables, cook, go to work, and have a dog, and I have a good emotional stability after surgery.
Speaking again after the second surgery
1. Prepare the skin before surgery, shave off part of the hair on the back of the left side of the head, and wait for the hair to grow for more than half a year, or it cannot be covered in the summer. Fortunately, I can't see it myself, I don't know the ugliness.
11 years after the operation, the scar recovered
2, the scar is 23 cm long, around half of the neck, swollen to no neck, the new scar is dangling dazzling. It was hot in the summer, I didn't cover it, I wasn't afraid, I was afraid of others.
3. The movement of the posterior left arm is limited, and the lifting is not high. The attending doctor taught me to do a shrug to help restore function, I was lazy, didn't take it seriously, and didn't stick to it. It took about a year to recover, and it was no problem to lift, but the arm was weak, and after doing the action, it was weak and weak.
4. Say a few numb and unconscious parts: the left shoulder muscle atrophied, the left shoulder is numb, and the perception is very poor. The left side of the neck is numb, poor perception, and the body temperature is slightly cooler than the right side. Poor numbness in the left hindbrain area.
My left ear: My left ear is numb, poorly perceptual, and painful. The left ear cannot be touched, even if it is slightly touched, it is very painful, and it cannot be blown by the cold wind, and it hurts when the cold wind blows. It is said that the old cold legs can not be cold, my left ear became the "old cold ear", after three or four years to recover, even if the recovery is not exactly the same.
5. There is often swelling in the left side of the neck and under the root of the ear.
6. Because of the ligation of blood vessels in the neck, the blood drawn by the laboratory test does not bleed in the vein of the left arm.
7. Other symptoms: dry skin, dry mouth and eyes, cold wind and tears, hair loss, low body temperature, chest tightness and shortness of breath, fatigue, bone and joint pain. Some of these symptoms are related to iodine administration, and some are related to TSH suppression.
Don't look at the list of a bunch, all symptoms will gradually ease over time. At present, there is still a poor numbness perception in the neck, which is a reality that cannot be changed.
When I decided to operate, my heart was fully prepared. After the operation is the new me, what the new me is, I don't know, but no matter what, it is me, and it must be accepted unconditionally. Not accepting is not going with yourself, changing can change, accepting can not change.
<h1 class="pgc-h-arrow-right" data-track="177" >4</h1>
Postoperative rehabilitation is based on attunement, and finding happiness is my daily homework.
In the new period, I take the prevention of recurrence as the top priority to grasp, find information, read popular science, watch old patients and new patients chat to obtain information and knowledge, and diet has also been very careful. During the period of taking iodine, the diet control of iodine was extended and extended, but it did not take long to break the work, and it was not taboo.
I have always had a good attitude, taking the regulation of emotions as the first task, and the search for happiness as a medicine to complete the great cause of rehabilitation. Here's a detailed explanation of how I find happiness and how I use the happiness method to recover.
Leave yourself homework – find joy and write little essays
1, every morning to eat Lele, I am grateful to eat, thank Lele for not abandoning the companionship for life, to the bland medicine to add fun. From time to time, the water cup medicine box decorations are posted to the group, which is to remind a friend not to forget to take medicine, and to show a good state to enjoy their mood.
I have written a lot of written records related to eating music, and I have written "Some Experiences of Serving Music" to summarize the precautions for eating music in detail. First published in qq space, post-sent in WeChat Mini Program, and obtained star diary. Posted many times in Thyroid Tieba and wrote about Lele. That's happiness.
2, three meals a day to eat well, food is indispensable. Make your own food to take a pat, take a pat on the outside food, send it to the group, and write it into the article to show a show. In order to satisfy my family, I often bring food to the office to share with colleagues.
Now I have been retired for three years, and my colleagues still talk about my porridge, cucumber, beef jerky, pot, leek box... Articles about food are written too much.
3, find a favorite hobby, focus on new things, learn from scratch, to the final completion, the sense of achievement is bursting. After the operation, I learned and made a variety of handmade cloth boxes, and I kept them and sent them to friends and colleagues. Everyone who got it was overjoyed.
I also learned to sew cloth masks by hand, keep them for myself, and also send them to friends and colleagues, and the people who got them were all happy. I wrote the production process into an article. That's happiness.
4, develop the habit, see the beautiful scenery, see the flowers and grasses, always want to shoot. The process of shooting is to be happy, take out the mobile phone, find a good angle, aim at the object to be taken, take a satisfactory photo, with simple text. You can send a circle of friends to get likes, you can write a picture and text, you can upload it to the group, and spread the good harvest. That's happiness.
5, must work, the body allows to go to work as soon as possible. In a healthy person, as long as I don't treat myself as a cancer patient, others will not despise discrimination. I even took the initiative to popularize the knowledge of nail cancer, when colleagues encounter thyroid problems, and use the knowledge they have mastered to help people in need win respect. That's happiness.
In short, find something you are interested in and can stick to, and focus on doing things. With concentration and busyness to drive away the whimsical thinking about the disease, I have always believed that the heart can be done...
<h1 class="pgc-h-arrow-right" data-track="179" >5, away from the atmosphere of nail cancer, happy life</h1>
1. Patient group
For more than ten years, I have not left the patient group, from the initial qq patient group to the current WeChat patient group, I have been. At the same time, I also set up two patient groups. A group does not talk about the disease, the purpose is to "live happily away from the atmosphere of nail cancer". "Wine aroma is not afraid of deep alleys" I never do publicity to automatically attract A friends, there are currently more than 400 people in the group, the longest cancer age of 26 years, more than 5 years of cancer age of more than 40 people.
The group does not talk about the disease, and the group friends share every day that they eat, drink, and have fun, food and beauty, and parent-child education. Koto sings songs by himself, knits crochet and paints by hand. Irregular organizational activities, we have carried out two "21 Days of Emotional Regulation Challenge", and participants record the happy things they find every day.
During the severe epidemic last year, we clocked in in the group to report safety. At the beginning of the new year, we write down new year's wishes and honor them at the end of the year. Under the leadership of "Yujie Bingqing" Jiayou, we recited poems one a day for more than a year.
Since I submitted articles in "Jiayou Tiandi", I volunteered to publicize and call on friends to submit articles, and at present, there have been "Dayong" photographic works published and won the third place, there are "Sunshine" published articles, "Xiaoli" submissions, and others are ready to contribute.
In addition, I also set up a group of patients with more than 300 new people. This group meets the needs of newcomers to understand the condition, can talk about the condition, and rarely has negative emotions under my continuous guidance, and everyone communicates about the condition normally.
Once a friend himself mistakenly operated to withdraw from the group, immediately let the friend pull into the group, said: "Other groups come out, this group can not be lost." ”
2, code words pen ploughing - to the majority of friends to show a good state
Since 2011, I have been writing journals on qq, writing small essays on finding happiness. The first goal I set for myself in 2013 was to find 100 happy things and record them. Because it was a happy thing, I named the theme "My Pepsi", subtitled it based on the things recorded, and it took more than a year to write 100 things by 2014.
In 2015, the search for happiness continued, with the second theme being "New Pepsi", with 100 things completed in less than a year.
Continuing to find happiness in 2016, the third theme is "Nail Removal and Sweetness", which does not complete 100 things, but 178 things in one year.
Next, it is extremely simple to find happiness, I will compare the Buddhist writing, no theme, no quantity requirements, according to the year, each year to complete: 40 articles in 2017, 124 articles in 2018, 93 articles in 2019, 51 articles in 2020, 79 articles in July 2021.
Not only did I write a log on qq, but around 2014 or 2015, I wrote two long posts on the Tianya forum, which was later interrupted to stop updating. One of the posts was posted in Tianya Hospital, and the post was excerpted by a thyroid public account and published separately into two articles on the public account.
After the Tianya Forum stopped, in 2016 I switched to Thyroid Tieba and wrote 8 long posts, one that is still being updated since the eighth year of my surgery on October 8, 2018, and is still writing, with a cumulative reading of more than 300,000. A few times I couldn't stop writing, but it was the fans who kept me writing.
These words have helped many A people out of fear, face up to the disease, and no longer be afraid. There are also many friends who have found me and added WeChat.
<h1 class="pgc-h-arrow-right" data-track="182" >6, your existence deserves all the good</h1>
Now I don't spend the rest of my time with illness except for eating and having fun every morning. Lele gradually reduced from the initial 150 micrograms to 87.5 micrograms, fine-tuned with the season, and basically remained unchanged for many years. Diet is not taboo, should eat and drink, once a year to recheck.
An illness changed my body and corrected my heart. When fate forced me with nail cancer, I was passive, but not helpless. With the help of advanced medical means, turn passive into active, and fight a beautiful turnaround battle that will definitely win!
I would like to say to my friend:
For the rest of our lives, may all the goodness belong to us. - The eyes of the dancing spirit
<h1 class="pgc-h-arrow-right" data-track="188" > interactive topics</h1>
Life is so wonderful, there will be unexpected stories, it doesn't matter, bravely step over it, in order to see the brilliant rainbow! After everyone saw the sharing of this friend, I don't know if I have any feelings. What do you want to share? Let us know from the message below!