In 2009, Liang Xiaoxiao was born in a hospital in Huaihua, Hunan Province. Looking at this newborn baby girl, the doctors felt a little incredible.
Liang Xiaoxiao was born with a weight of only 2.1 kilograms and a body length of 33 centimeters, which is too small for a new student.
How old are normal newborns? Weighing at least about three kilograms and fifty centimeters in length, it is no exaggeration to say that Liang Xiaoxiao is one-third smaller than a normal baby, and even her name is obtained because of her small stature.
When they saw the baby, Liang Xiaoxiao's mother Liu Xinglian and father Liang Zhongnan did not perceive anything wrong, and the two looked at their newborn daughter with love and were very happy. However, when the doctor reminded that even the small size was too small, the couple found the problem.
Before Liang Xiaoxiao, Liu Xinglian and Liang Zhongnan also had an eldest daughter, Liang Yamei, and carefully recalled the scene when the eldest daughter was born, as if she was indeed a little older than Liang Xiaoxiao.
For this situation, the doctors in Huaihua Hospital also did not give a reasonable explanation, there are many reasons for the baby's small size, sometimes genetic influence, sometimes because of premature birth.
But most of the situation will not affect the baby's own development, Liang Xiaoxiao, this situation is really rare, so the doctors at this time can not make up their minds, just explain Liu Xinglian and Liang Zhongnan: "For the time being, I can't see any problems, pay attention to nutrition after going back, and take a good look." ”
A family devastated by illness
Liang Zhongnan, Liang Zhongnan's father, works in a factory in Chongqing, and after the little full moon, he asks his wife Liu Xinglian to take his young daughter to the big hospital in Chongqing for examination to see what is wrong with her daughter.
However, this investigation, the husband and wife duo froze. On the case list is a very strange name - "brain portal closure".
The so-called portal closure refers to the fact that infants and young children are born without fontanelles, and the skull cannot develop normally, which in turn affects the entire body and cannot grow.
As for the cause of this disease, it is difficult to say well, on the one hand, it may be caused by genetic or chromosomal mutations, and on the other hand, it may also be caused by calcium deficiency or the body's obstruction of calcium absorption.
If you suffer from this disease, the skeleton development of infants and young children will be very slow, even completely stagnant, and even lead to life-threatening.
After hearing this news, Liu Xinglian and Liang Zhongnan and their husband and wife almost fainted, how could they not believe that their daughter would have such a strange disease, you know, the husband and wife's body has always been very healthy, Liang Xiao's sister Liang Yamei was born without any bad situation, how did such a strange disease appear here when she got to the little girl?
The two quickly asked the doctor how to treat it and whether it would affect the future of their daughter, and the doctor said: Whether Xiao Xiao has completely stopped growing is still unknown, and it must wait for the results of the expert consultation to come out before it can be known.
During the days of waiting for the results of the hospital, Liu Xinglian and Liang Zhongnan were restless every day, praying to heaven countless times, hoping that the matter was just a mistake. But the result was very cruel, according to the hospital expert consultation, the hospital put forward its own opinion to Liu Xinglian and Liang Zhongnan: not recommended treatment.
Why do hospitals make such recommendations? Because the treatment of this disease is still a problem for the world.
The cost of treatment is a bottomless pit, but the effect is not good, and at this time, Liang Xiaoxiao has just reached the full moon, Liu Xinglian and Liang Zhongnan have a daughter, considering the economic problems of the husband and wife, giving up this child is not a correct choice.
But what people did not expect was that after listening to the hospital's suggestions, Liu Xinglian and Liang Zhongnan and their husband and wife actually categorically refused. Neither husband nor wife has any level of education, but the two are absolutely unwilling to give up their daughters like this, even if they smash pots and sell iron, they will save their daughters' lives!
In order to save as much money as possible, his father Liang Zhongnan voluntarily quit his previous job in Chongqing and went to a railway construction site in Fujian Province to work as a tunnel worker.
Due to the poor working conditions, this job has great harm to the body, but the salary is much higher than the original, and the mother has also worked several jobs, hoping to cure Liang Xiaoxiao as soon as possible.
The originally happy family, because of a terminal illness, completely fell into the abyss.
For Spending money on Liang Xiaoxiao's treatment, Liu Xinglian and Liang Zhongnan did not have any complaints, but what made them extremely distressed was that the real money and silver were spent in a pen, but Liang Xiaoxiao's illness never improved, and the couple for a period of time measured Liang Xiaoxiao's height almost every day, and every time they saw their daughter grow tall, they would be very surprised and comfort themselves that the small illness was going to be better.
However, in 2012, when XiaoXiao was 3 years old, her height completely stopped growing, staying at 54 cm forever, weighing only 5 kg, compared with when she was just born, Liang Xiaoxiao's height and weight have a certain growth, but the growth rate can be said to be minimal.
What is even more difficult to accept is that in addition to stunted height and weight, small intellectual growth is more slow. At this time, she still can't speak, let alone walk, which makes Liu Xinglian and Liang Zhongnan very helpless.
Parents who always insist
Liang Xiaoxiao's incident was reported by the media as a public awareness, occurring on July 15, 2012.
At this time, Liang Xiaoxiao was taken by his parents to Hunan Provincial Children's Hospital for treatment because of a lung infection caused by a cold, and it was at this time that the reporter of Hunan Provincial Legal Weekly met Liang Xiaoxiao's family and interviewed them.
According to Liang Xiaoxiao's mother, Liu Xinglian, Liang Xiaoxiao has been sick since childhood, and due to his poor resistance, a little problem of other people's children is almost fatal to Liang Xiaoxiao.
Originally it was just a small cold, but unexpectedly led to a lung infection, at this time Liang Xiaoxiao has been admitted to the hospital for a week, the average daily treatment cost is as high as thousands of yuan. At this time, her heart was already out of line, and she didn't know how long she could hold on, how long her family could hold on.
Since the week of admission, Liu Xinglian has hardly slept a stable sleep, in order to prevent the little night crying, she has not dared to sleep too dead, every day said that in addition to using a nebulizer to give the little expectorant, but also to accompany her to play and make her happy.
According to Liu Xinglian, during XiaoXiao's hospitalization, every day the doctor would inject her with a bottle of 60ml of potion and sixty milliliters of liquid, which was not even a bite for an adult, but Xiaoxiao had to inject for ten hours because of her small size.
At about four o'clock in the afternoon of the reporter's interview, Liu Xinglian communicated with the doctors of Hunan Provincial Children's Hospital. The doctor who exchanged this exchange did not talk to Liu Xinglian about treatment, but threw out a very "realistic" question: Do you want to give up the treatment of your daughter?
The implication of the doctor's words is that it is too difficult to cure Liang Xiaoxiao, a single cold can cause such a major problem, even if this treatment is successful, then what about the next time?
What's more, from the current cases in various countries in the world, children with similar diseases usually have a short life expectancy, knowing that they are irretrievable but insisting on treatment, which is an irrational choice.
After hearing the doctor's words, Liu Xinglian fell silent, she knew that what the doctor said was right, but she was still unwilling to accept it, in front of the reporter, Liu Xinglian shed tears and said: "My husband is still out of town, I want to discuss with him, but we will never give up."
In the face of reporters, Liu Xinglian said: What she is most looking forward to seeing is that one day, her daughter can wear a skirt and carry a school bag to go to school, but unfortunately, this day may never come.
When Liang Xiaoxiao was hospitalized, many patients and their families entered the small room to visit her, and once a family member said to reporters: "The little girl is really pitiful, my child is two months younger than her, and now she is one meter tall." ”
Every time she took Xiao Xiao out, there would always be a large crowd of people around to watch. Liu Xinglian also once told reporters: "There was once a circus owner, after listening to an acquaintance say a small illness, he called me and wanted to spend fifty thousand yuan to buy a small one." ”
On the phone, the other party even directly called Xiao Xiao "Little Monkey", at this time, Liu Xinglian's family economic situation was already very bad, but she still categorically rejected the other party's proposal and had a big fight with him on the phone.
However, after the fight, she hugged her head and cried, and she found that this was the only thing a mother could do for her daughter, and she couldn't change anything.
Liu Xinglian was only 28 years old in 2012, which is not too old.
But at this time, she has begun to consider a problem, that is, after she and her husband are old or die, what to do with the small, with a small situation, future schooling and employment, marriage are all problems. If she didn't have her parents, then she really only had herself left.
Liu Xinglian's first thought was to let her eldest daughter, Liang Yamei, take care of Xiaoxiao. At this time, Liang Yamei was still young, but under the guidance of Liu Xinglian, she had begun to learn to take care of her sister. Not only would she show her TV, but she would even cut fruit for her.
To this day, it still persists
Liang Xiaoxiao's parents have a special affection for their daughter, perhaps they have had the experience of their daughter being discriminated against, and they have always been reluctant to talk more about what happened to their daughter.
After this interview with the media, they completely disappeared from the public eye, and no one knew what happened to the family, or even whether Xiao Xiao had succeeded in rescuing him.
However, thankfully, in January 2021, Liu Xinglian, Liang Xiaoxiao's mother, has now opened her own Douyin account to share Xiaoxiao's daily life, and the name of the Douyin account is "Huaihua Pocket Girl Liang Xiaoxiao". This shows that Liang Xiaoxiao has temporarily escaped from danger.
On April 13, 2021, in a new douyin released by "Huaihua Pocket Girl Liang Xiaoxiao", it was written that "I don't want to become a burden on society, but I have become a burden on society." ”
So what happened to Liang Xiaoxiao's family during this time? It can only be said that it is weathered by wind and frost.
Liang Xiaoxiao was admitted to the hospital shortly before her grandfather had died, the old man gave all his savings to Xiao Xiao before he died, leaving his grandmother alone to be old, Liu Xinglian took care of Xiao Xiao in addition to taking care of the old man, and the pressure on his body was very large.
Secondly, Liang Zhongnan's father Liang Zhongnan also suffered an accident, Liang Zhongnan suddenly felt weak during a job, even some simple small work could not be done, after admission to the hospital found that there were a large number of white objects in Liang Zhongnan's lungs, the initial suspicion was silicosis.
The daughter has not yet recovered, the husband's body has collapsed again, and the heavy burden of the family has all weighed on Liu Xinglian's body. In order to save money, Liu Xinglian arranged xiaoxiao in her hometown in Huaihua and let her mother-in-law take care of her, while she went out to Fujian Province to work and earn money by going out to Fujian Province to work and earn money like her husband did in those years.
Now, she is the pillar of the family. Liu Xinglian is brave and unfortunate, although Liang Xiaoxiao's incident has been widely known through media coverage.
But what is admirable is that Liang Xiaoxiao's parents have never planned to win attention through their daughter's illness, and even his Douyin account currently has more than 2,000 fans.
If we search for words such as "Liang Xiaoxiao" plus "donation" through the search engine, we will find that there is no matching result, which shows that the external help that Liang Xiaoxiao has received during this period is very limited, and may even not have been helped at all, it is difficult to imagine how Liu Xinglian persisted under such conditions.
The current situation of Liu Xinglian's family is still not optimistic, from the perspective of their Douyin sharing content and time, the family is still gathering less and leaving more.
But it is worth mentioning that liang xiaoxiao is already a thirteen-year-old lively girl, although physically flawed, but she has always lived optimistically, we can see her appearance in a skirt and play scenes, from the little girl's current mental outlook, it is still very healthy.
Under the arrangement of her parents, XiaoXiao has now successfully enrolled in school, and the teachers and classmates of the school have also taken great care of Xiaoxiao.
But there are still many small questions, how should she get a job after leaving school? How to survive in society?
This is all a question worthy of the consideration of the whole society, how should we take care of those vulnerable groups so that they have a place to live?
In the Liang Xiaoxiao incident, we see the love of Liu Xinglian and Liang Zhongnan for their daughter, just like a sentence in "Tateshina": "Mourn your parents, give birth to me." "May this family get better soon."
Resources:
Pocket Girl: The love of parents who never give up