When I came to the home of Brother Zhang in Xinyang City, Henan Province, although I was mentally prepared, I was also startled by the scene in front of me. The shabby courtyard revealed a slight breath of life, and on a shabby bed, I watched my sister-in-law Yang Jie silently use her hand to hold the phlegm for Lao Zhang!
I also had a chance to learn about the patients I had helped, and I just came to Henan on a business trip. But the situation was worse than I expected!
I said let's take a picture, but Brother Zhang couldn't lift his head, and later I learned that general weakness, muscle atrophy, and breathing difficulties were one of the main manifestations of "frostbite". Only the sister-in-law holding her head can take a positive photo. Later, in our conversation, I learned that this is an ordinary family's son in junior high school, and the eldest daughter is working in a foreign country. In order to take care of her husband and wife, she can only accompany her at home full-time, in fact, Brother Zhang has reached the point where he needs to be eager, and even it is difficult to breathe independently. When I asked "why don't you go to the hospital", my sister-in-law replied to me in a slightly helpless tone, "There is no money, and you can't see any spare money in this situation at home." The child has to go to school, and in order to buy medicine for his father, the child has to go out to do odd jobs during the summer vacation." After hearing this, I was silent, I couldn't actually do anything. A feeling of powerlessness crept deep into my heart!
Just when I wanted to leave, I seemed to hear Brother Zhang shouting "live" in a slightly hoarse voice, I seemed to understand, this was his declaration of war on fate, and the indomitability of a father and a patient! It instantly reminded me of a quote from another of my alzheimer's friends, "Jago, you know what? The most painful thing in my life is to watch myself being frozen little by little when I am awake and I can't do anything about it, and the saddest thing is that I don't even have the strength to bite my tongue to kill myself because my tongue can't move"!
"Frostbite" may be one of the cruelest diseases in the world, and there are no good treatments in the world. The country is rich and strong, and I hope that the country will pay enough attention to this disease!